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FTD Disorders Registry -MARCH QUESTION:

How long did it take to receive a formal FTD diagnosis after first symptoms?

Answer here: ftdregistry.org/quick-questi...

#FTD #Parkinsons #atypicalparkinsonism

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#loser #fdt #dementia #ftd

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Lake Oswego, OR 3/28/2026.
Over 5000 showed up to fight tyranny at today’s No Kings rally. Power to the people!

#NoKings #protest #resist #LakeOswego #FTD

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Yep. THAT! GROSS AND THIS IS LACK OF DEI IN THE WORK FORCE. #FTD

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Weekend Watch:
Lumbar Puncture Procedure for FTD Research

Cerebrospinal fluid (CSF) holds key insights into brain health and diseases like #FTD.

Watch: www.youtube.com/watch?v=JXND...

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I'm so sorry. It was exactly like that with my sister who had #Alzheimers and #FTD Unfortunately I got very good at keeping a poker face even though I was screaming inside.

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Fen-Biao Gao named fellow of the American Association for the Advancement of Science Fen-Biao Gao, PhD, has been named a fellow of the American Association for the Advancement of Science.

Congratulations to the RTI's Fen-Biao Gao, PhD, on being named a fellow of the American Association for the Advancement of Science today for advancing our understanding of disease pathogenesis in frontotemporal dementia: direc.to/o3Dn

#FTD #AAASfellow
@aaas @umasschan

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Fen-Biao Gao named fellow of the American Association for the Advancement of Science Fen-Biao Gao, PhD, has been named a fellow of the American Association for the Advancement of Science.

UMass Chan congratulates Fen-Biao Gao, PhD, on being named a fellow of the American Association for the Advancement of Science today for advancing our understanding of disease pathogenesis in frontotemporal dementia: direc.to/o3Dn

#FTD #AAASfellow @aaas.org @rti-umasschan.bsky.social

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#FTD #EpsteinFiles

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Chapter 22: Efrem Zimbalist Jr. for the Win – Five and a Half Years

Chap 22 is up. This post is about Peggy's imminent move to memory care, her deep stage 5 progression - how do you take a shower? What if you can't find the bathroom? Still - good times - remembering the TV show The FBI.

fiveandahalfyears.net/chapter-22-e...
#Alzheimers #dementia #FTD

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Original post on mstdn.social

Quite the night. My wife managed to escape from her Assisted Living/Memory Care facility. A family called the police after she ‘broke’ into their house. I am sure she was wearing her purple pig slippers. Police notified the facility but had to have her checked out at the ER. I called the ER and […]

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Chapter 21: Life in Stage 5 – Five and a Half Years

Chap 21 is up. This post is about getting in and out of the car (harder than you think), communicating with doctors so that your person with dementia has agency - and noting that there are still good times to be had.
fiveandahalfyears.net/chapter-21-l...
#Alzheimers #dementia #FTD

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He truly is a stupid, stupid man.

#FTD

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When you have a tiny mushroom, you compensate by threatening people with a huge mushroom cloud.

#25thAmendment
#PedophilePresident
#TinyHandsTrump
#FTD

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ALS und FTD: Manche Nervenzellen sind besonders anfällig Molekulare Fingerabdrücke identifizieren fünf besonders betroffene Zelltypen im „motorischen Kortex“

Schäden durch #AmyotropheLateralsklerose (ALS) und Frontotemporale #Demenz (FTD) betreffen bestimmte Nervenzellen mehr als andere, wie Forscher der @dzne.science‬ und des Universitätsklinikums Ulm entdeckten. Diese neue Erkenntnis ist ein wichtiger Wegweiser für neue Therapieansätze. #ALS #FTD

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Eyes as a window to hidden brain diseases | Waterloo News A retinal image could help doctors quickly distinguish between similar neurodegenerative diseases such as ALS and Alzheimer’s disease, and with remarkable accuracy, according to new research. Research...

Eyes as a window to hidden brain diseases uwaterloo.ca/news/media/e...

#Alzheimers #FTD #ALS #dementia #neurology #ophthalmology

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I don't think trials will start within a few months so..... Hopefully he will join satanyahu in hell before we know it. #frontaltemporaldementia #ftd #dementia #felon47 #pedolf #shitler #cheetolini #babyhands

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Chapter 20: The Spectre of Memory Care – Five and a Half Years

Chap 20 is now up. This post is about needless medical bureaucracy, self-care, music, and Peggy's friends showing up. Also, when do you take the phone away?
fiveandahalfyears.net/chapter-20-t...
#Alzheimers #dementia #FTD

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Florida DOH is requiring its employees to attend a misinformation seminar on vaccines. #ftd #misinformation #howisthislegal

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"...but my design changes to the façade of the People's House are important!
Change the Ionic columns to
Corinthian columns!"
👀🤪😵‍💫😆🤣🤡

#FTD
The PEOPLE MUST
get rid of him
IMMEDIATELY.
Pretendident PEDO Shakedown has got to go!
Boot his 🇷🇺Regime!
Save DEMOCRACY!

#ETTD
#EpsteintRUmpCoverUp

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Remember the good ol days when wearing a tan suit was the worst thing a president could do?

#FTD #NoNewWars

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The overwhelming stupidity & inhumanity should come as no surprise. The surprise is that we’ve allowed it to continue this long. WTF is wrong with us? There aren’t any super heroes waiting for just the right moment to save us. This is not a Marvel comic, it’s the real world. #FTD #NoKings #NoICE

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Chapter 19: The Good, the Bad, the Word Salad – Five and a Half Years

Chap 19 is now up. This post is about the aftermath of Jezebel's death and the effect it had on Peggy. Also, looming incontinence 😱 and a lot of word salad.
fiveandahalfyears.net/chapter-19-t...
#Alzheimers #dementia #FTD

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Cognitive Flexibility and Task-SwitchingLong COVID impairs the ability to shift efficiently between tasks — a function of the anterior cingulate cortex and orbitofrontal regions, which show progressive dysfunction even beyond the acute phase. � A multi-matter practice requires constant context-switching: moving from one client's legal strategy to another's factual record to a third's research question within minutes. Long COVID makes each switch cognitively expensive, slow, and error-prone, with carryover contamination between tasks (intrusive thoughts from matter A appearing during work on matter B).Processing Speed and Reading ComprehensionExecutive function tests in long COVID cohorts show significantly prolonged reaction times, increased interference effects, and impaired inhibitory control. � For a professional whose work requires reading dense legal or medical literature rapidly, synthesizing it, and applying it strategically, slowed processing speed is not merely inconvenient — it means that a task that previously took 30 minutes now takes 90, directly eroding the professional's ability to maintain throughput across matters.Temporal Organization and Deadline ArchitectureThe hippocampal involvement in long COVID — reduced gray matter, impaired contextual encoding — directly disrupts the ability to maintain an accurate mental model of where each matter stands in time. � This is distinct from simple forgetfulness: it is the loss of temporal-contextual binding, the ability to know not just what needs doing but when, in what order, contingent on what. For a patent attorney managing prosecution timelines, response deadlines, and multi-jurisdictional filing requirements simultaneously, this is a systemic capacity failure.The Serotonin and Dopamine Depletion LayerA Cell (2023) paper linked long COVID brain fog to serotonin depletion driven by viral-associated interferons. � ADHD is itself a dopamine-deficiency syndrome. Serotonin and dopamine systems are tightly ...

Cognitive Flexibility and Task-SwitchingLong COVID impairs the ability to shift efficiently between tasks — a function of the anterior cingulate cortex and orbitofrontal regions, which show progressive dysfunction even beyond the acute phase. � A multi-matter practice requires constant context-switching: moving from one client's legal strategy to another's factual record to a third's research question within minutes. Long COVID makes each switch cognitively expensive, slow, and error-prone, with carryover contamination between tasks (intrusive thoughts from matter A appearing during work on matter B).Processing Speed and Reading ComprehensionExecutive function tests in long COVID cohorts show significantly prolonged reaction times, increased interference effects, and impaired inhibitory control. � For a professional whose work requires reading dense legal or medical literature rapidly, synthesizing it, and applying it strategically, slowed processing speed is not merely inconvenient — it means that a task that previously took 30 minutes now takes 90, directly eroding the professional's ability to maintain throughput across matters.Temporal Organization and Deadline ArchitectureThe hippocampal involvement in long COVID — reduced gray matter, impaired contextual encoding — directly disrupts the ability to maintain an accurate mental model of where each matter stands in time. � This is distinct from simple forgetfulness: it is the loss of temporal-contextual binding, the ability to know not just what needs doing but when, in what order, contingent on what. For a patent attorney managing prosecution timelines, response deadlines, and multi-jurisdictional filing requirements simultaneously, this is a systemic capacity failure.The Serotonin and Dopamine Depletion LayerA Cell (2023) paper linked long COVID brain fog to serotonin depletion driven by viral-associated interferons. � ADHD is itself a dopamine-deficiency syndrome. Serotonin and dopamine systems are tightly ...

The Functional Collision: Specific Professional Capacity ImpactsFor a professional managing simultaneous high-stakes matters — each with independent deadlines, research requirements, factual backgrounds, and strategic demands — the neurobiological injury maps onto discrete functional failures:Working Memory CollapseWorking memory — the ability to hold multiple active information sets in mind simultaneously while manipulating them — is the single most load-bearing cognitive function in multi-matter professional work. � COVID-19 directly damages the prefrontal circuitry governing working memory, � and in a person with ADHD whose working memory was already their primary vulnerability, this creates a compounding deficit: matters bleed into each other, recently reviewed facts evaporate before they can be applied, and the mental "desktop" that tracks where you are in each file shrinks dramatically. The Gomes et al. paper's finding that people are initiating stimulants far more rapidly post-pandemic (median 348 days vs. 2,493 days pre-pandemic) likely reflects clinicians seeing exactly this presentation. �Prospective Memory FailureProspective memory — remembering to execute future-oriented tasks at the right time — is among the most impaired domains in long COVID. � In a professional with multiple concurrent deadlines and procedural obligations, this is catastrophic: filing deadlines are missed not because they weren't calendared, but because the intention-to-action bridge collapses. The PMC case report of post-COVID ADHD-like syndrome describes a professional who began "forgetting professional commitments" and had "difficulties with planning and monitoring his actions" — a direct parallel to this scenario. �

The Functional Collision: Specific Professional Capacity ImpactsFor a professional managing simultaneous high-stakes matters — each with independent deadlines, research requirements, factual backgrounds, and strategic demands — the neurobiological injury maps onto discrete functional failures:Working Memory CollapseWorking memory — the ability to hold multiple active information sets in mind simultaneously while manipulating them — is the single most load-bearing cognitive function in multi-matter professional work. � COVID-19 directly damages the prefrontal circuitry governing working memory, � and in a person with ADHD whose working memory was already their primary vulnerability, this creates a compounding deficit: matters bleed into each other, recently reviewed facts evaporate before they can be applied, and the mental "desktop" that tracks where you are in each file shrinks dramatically. The Gomes et al. paper's finding that people are initiating stimulants far more rapidly post-pandemic (median 348 days vs. 2,493 days pre-pandemic) likely reflects clinicians seeing exactly this presentation. �Prospective Memory FailureProspective memory — remembering to execute future-oriented tasks at the right time — is among the most impaired domains in long COVID. � In a professional with multiple concurrent deadlines and procedural obligations, this is catastrophic: filing deadlines are missed not because they weren't calendared, but because the intention-to-action bridge collapses. The PMC case report of post-COVID ADHD-like syndrome describes a professional who began "forgetting professional commitments" and had "difficulties with planning and monitoring his actions" — a direct parallel to this scenario. �

#LongCOVID impairs the ability to shift efficiently between tasks — a function of the anterior cingulate cortex and orbitofrontal regions, which show progressive dysfunction even beyond the acute phase.

A multi-matter practice requires constant context-switching & may cause #FTD.

#medsky

#ADHD

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Care partners are essential partners in research.

By sharing lived experience through the FTD Disorders Registry, families help researchers understand how #FTD unfolds in real life.

Read more:
ftdregistry.org/press/what-c...

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Recognizing the Easily Mistaken Signs of Young-Onset Dementia

The Association for Frontotemporal Degeneration (AFTD) has an interesting summary on its website of an article about young-onset dementia in The Telegraph (UK).

www.theaftd.org/1ftd-in-the-...

#FTD #dementia

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To those who are considering running in 2028. Tell me who your press secretary will be before I decide. Because I CANNOT listen to someone like KKKaroline who has no honest answers and only blames the opposing party. It's disgusting.

#ftd

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Chapter 18: Harbingers and New Normals – Five and a Half Years

Chap 18 is now up. This post is about the aftermath of a fall that Peggy had that landed her in the emergency room. She needed stitches, but was okay. But then sadly, her favorite cat died. Ugh. Definitely a difficult time.
fiveandahalfyears.net/chapter-18-h...
#dementia #Alzheimers #FTD

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I'm with you. Those types of ads are corrosive as people tend to believe them. When my sister had dementia I was constantly fending off people who wanted to make it all her fault. Maybe it's their own fears showing? #Alzheimers #dementia #FTD

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