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Posts by Celiac.com

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How Gut Bacteria and Fungi May Influence the Development of Celiac Disease in Children Celiac.com 04/23/2026 - Celiac disease is an autoimmune disorder in which the immune system reacts to gluten, a protein found in wheat, barley, and rye. This reaction damages the lining of the small intestine and can interfere with the absorption of nutrients. While genetics plays an important role in determining who may develop celiac disease, genetics alone does not explain why only some people with the genetic risk actually become ill. Many people carry certain genetic markers linked to celiac disease, yet most of them never develop the condition. This has led scientists to investigate other possible influences, including the microorganisms that live inside the digestive tract. The human gut contains trillions of microbes, including bacteria and fungi, which together form what is known as the gut microbiome. These organisms interact closely with the immune system and may influence inflammation, digestion, and disease development. This study explored whether differences in gut microbes might help explain why some genetically susceptible children develop celiac disease while others do not. Researchers examined both bacterial and fungal communities in the intestines of children with newly diagnosed celiac disease, their healthy siblings, and children with no known risk for the condition. Purpose of the Study The goal of the research was to better understand how genetic risk and gut microbes interact in children. Scientists wanted to determine whether children with celiac disease show distinct microbial patterns compared with their siblings and unrelated healthy children. They were particularly interested in identifying specific bacteria or fungi that might signal early risk for developing the disease. By studying siblings of children with celiac disease, the researchers hoped to gain insights into early biological changes that might occur before symptoms appear. Because siblings share many environmental exposures and often similar diets, they provide a valuable comparison group for investigating genetic and microbial influences. How the Study Was Conducted The research involved children and adolescents between the ages of one and eighteen. Participants were divided into three groups. The first group consisted of children who had recently been diagnosed with celiac disease and had not yet begun a gluten-free diet. The second group included siblings of these children who did not have symptoms of the disease. The third group served as a control group and included healthy children without celiac disease. Researchers collected stool samples from all participants to examine the microorganisms living in the gut. These samples were carefully preserved and analyzed using modern genetic sequencing techniques. This approach allows scientists to identify many different microbial species by reading fragments of their genetic material. The study focused on two major types of microorganisms: bacteria and fungi. While bacteria have been widely studied in relation to digestive health, fungi are less understood but are increasingly recognized as important members of the gut ecosystem. Key Findings About Gut Microbes The researchers discovered that the composition of gut microbes differed among the three groups of children. Children with celiac disease and their siblings showed differences in bacterial diversity compared with healthy children. These differences suggest that the intestinal environment of children at risk for celiac disease may already be altered before the disease becomes fully apparent. Interestingly, the fungal component of the gut microbiome showed particularly noticeable differences between children with celiac disease and their siblings. This finding highlights the possibility that fungi may play a previously underappreciated role in autoimmune conditions affecting the digestive system. Several microbial species stood out as potential indicators of disease risk. Some bacteria commonly associated with healthy digestion appeared in altered levels in children with celiac disease. In some cases, microbes that normally support intestinal health were less abundant, while others that may promote inflammation were more prominent. The study also identified certain fungal species that were more common in either children with celiac disease or their siblings. These fungi could potentially serve as early markers of changes occurring in the intestinal environment before the disease becomes clinically evident. The Role of Genetics The researchers also examined how specific genetic markers related to celiac disease might influence gut microbes. Certain genes are known to increase the likelihood of developing the condition. These genes help control how the immune system recognizes foreign substances, including fragments of gluten. The study confirmed that children with celiac disease carried one or more of these genetic markers. However, the relationship between genetics and microbial composition appeared to be complex. Some genetic variants were associated with changes in specific microbial species, while others showed little direct influence on the overall microbial community. This suggests that genetic risk may interact with the microbiome in subtle ways rather than completely determining which microbes are present. In other words, genetics may set the stage for disease, while the gut environment helps determine whether that risk becomes reality. Connections Between Bacteria and Fungi Another important discovery was that certain bacteria and fungi appeared to interact with one another. The presence of particular fungal species often corresponded with the presence or absence of specific bacterial species. This indicates that the gut microbiome functions as a complex ecosystem in which many organisms influence each other. For example, some fungi were associated with bacterial species known to support intestinal balance and immune health. Other fungi appeared to correlate with microbial patterns that could contribute to inflammation or disruption of the intestinal barrier. These relationships highlight the importance of studying both bacterial and fungal communities together rather than examining them separately. The balance between these organisms may play a significant role in maintaining digestive health. What Makes Siblings Unique One of the most intriguing findings was that siblings of children with celiac disease displayed their own distinct microbial patterns. Even though they did not have the disease, their gut microbiomes differed from those of unrelated healthy children. This suggests that siblings may represent an intermediate state between health and disease. Their microbial communities might reflect early biological changes associated with genetic susceptibility. These changes could either increase the likelihood of developing the condition or represent protective adaptations that prevent disease onset. Understanding these differences could help scientists identify early warning signs and possibly predict which children are most likely to develop celiac disease later in life. Limitations of the Research While the findings are promising, the study had some limitations. The number of participants was relatively small, which means that some subtle differences may have been missed. Larger studies will be needed to confirm the patterns observed in this research. Additionally, the study analyzed stool samples rather than tissue samples from the small intestine. Although stool samples provide valuable information about the gut microbiome, they may not fully reflect microbial activity occurring directly at the intestinal lining where celiac disease causes damage. Despite these limitations, the research provides important insights into how microbes and genetics may interact in the development of autoimmune digestive disorders. Why These Findings Matter for People With Celiac Disease The results of this study may have important implications for understanding how celiac disease begins. If certain microbial patterns appear before the disease develops, scientists may eventually be able to identify individuals at high risk earlier than ever before. In the future, microbial testing could potentially help guide preventive strategies. Researchers may explore whether diet, probiotics, or other approaches could influence the gut microbiome in ways that reduce the likelihood of disease onset. The discovery that fungal organisms may play a role alongside bacteria is also significant. Most research has focused on bacteria alone, but this study suggests that fungi could provide valuable clues about the early stages of celiac disease. For people living with celiac disease and their families, these findings highlight the growing importance of the gut microbiome in autoimmune conditions. Continued research may eventually lead to new methods for identifying risk, preventing disease development, and improving long-term health for those affected. Read more at: wjgnet.com
2 hours ago 0 0 0 0
Alcohol gluten free? I am wondering if anyone knows if Vodka is 100% gluten free. The only one I know of is Tito’s. And other alll alcohol in general like apricot brandy etc
11 hours ago 0 0 0 0
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How Testing for the Two Celiac Risk Genes Can Speed Up a Celiac Diagnosis This Celiac Genetic Risk Test Can Rule out Celiac Disease for Life or Help Make the Diagnosis.

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16 hours ago 0 0 0 0
Struggling with gluten challenge and not sure it’s worth it - looking for advice / experiences / encouragement Hi, I’m new to this forum and hope this post is okay. I’m just having a hard time and not sure what to do, and hoping maybe someone here can offer advice or at least encouragement. My husband is great and super supportive, but he doesn’t know any more about this than I do and it’s hard on him worrying about my health. Long story short, I’ve been struggling with a poor immune system, lots of fatigue, muscle & joint pain, mood disorders, brain fog, etc. for a long time now. I also have pretty frequent abdominal pains, bloating/gas, constipation, and diarrhea, but TBH I didn’t worry much about my stomach issues and kind of wrote them off as the least of my problems. On paper I’m perfectly healthy and nothing ever shows up in my annual bloodwork, so I felt like I’m crazy for having all these vague symptoms and struggling to function so much. Anyway this year I finally reached a breaking point and decided to really look for an explanation. I got lucky and found that eating gluten free helped my symptoms a lot (though ironically it helped the digestive issues the least). But I wanted to have a definitive answer still so I got in with a gastroenterologist for testing. now my situation is: - I ate gluten free and felt significantly better (but not perfect) for ~2 months. - I saw the gastro and he told me to start doing a gluten challenge so they can test. I’m 1 week in and struggling with how bad I feel. - In the meantime he also did bloodwork and a genetic test, and they both came back negative. He said the negative genetic test means I don’t have Celiac, but when I pushed him to keep looking for other things he told me to still be eating gluten and get an endoscopy w/ biopsy in a couple months. - He’s also looking into gallbladder issues and SIBO as other possibilities to rule out. Pending tests on those. I’m honestly really disappointed about the genetic test and just discouraged. I was really hopeful I was close to having answers and finding out my condition is treatable after all these years. I’m crushed now that it’s not looking that way. The gluten challenge is also tanking my mood and I feel like I don’t have the capacity to think rationally about all this. I keep wanting to quit every day. I see a few people saying genetic testing is far from perfect and stuff like that, but I guess that statistically speaking there’s almost no chance they’ll find Celiac disease from the endoscopy. I don’t know if they’re looking for other things or why I need to be eating gluten if not for Celiac testing. Am I putting myself through 8 weeks of feeling lousy for nothing? Should I just be grateful to find some relief, eat gluten free, and accept not knowing what’s going on? tl;dr I’m supposed to do a gluten challenge and endoscopy even though genetic testing was negative. I’m feeling pretty awful only 1 week into the challenge. Is the juice worth the squeeze or should I quit and get on with enjoying my life and just accept the uncertainty?
17 hours ago 0 0 0 0
Is it celiac? Hi, hopefully its ok to ask this here, or if not feel free to delete! I was given a "soft" diagnosis for celiac back in 2019. I had been off and on gluten free for years, but started eating gluten again two weeks before my upper endoscopy. This is what they found: -Immunoglobulins were not elevated, even after two weeks of eating gluten -Upper endoscopy showed increased intraepithelial lymphocytes -I had one of the genes for celiac. At the time, my GI doc said, while it wasn't a slam dunk for celiac, she thought given that I already felt like I had an intolerance to gluten, I should just steer clear. She said either my gluten-free diet was keeping it at bay, or it was just developing. She was perplexed that I had the increased IEL on endoscopy. She initially didnt expect to find anything; given that she didn't think I was "sick enough" to have celiac. I am still happy being gluten-free, but living in a busy household with young kids can make cross contamination more likely, I'm just wondering how fanatical i should be. Doc said the fact that my immunoglobulins were not elevated was highly unusual. But she didn't know of anyhting else that could elevate the intraepithelial lymphocytes there. Has anyone here had celiac with increased IELs but no immunoglobulin elevation? Thank you! Lindsey
17 hours ago 0 0 0 0
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Does Fish Sauce Contain Gluten? What People With Celiac Disease Need to Know (+Video) Celiac.com 04/22/2026 - Fish sauce is one of those ingredients that often looks simple at first glance. Many people assume it should contain only fish and salt, which leads them to believe it must be gluten-free. In some cases, that is true. Traditional fish sauce can be made from just fish, salt, and time. However, not every bottle on the shelf follows that simple formula. This is where the confusion begins for people with celiac disease or gluten sensitivity. Some fish sauces contain added ingredients that can introduce gluten, including hydrolyzed wheat protein, wheat, barley-based ingredients, flavor enhancers, or caramel coloring sources that may not be immediately clear to the average shopper. A bottle may look traditional, but the ingredient label can tell a very different story. For people who must avoid gluten strictly, fish sauce is not an ingredient that should be judged by reputation alone. It is a product that needs to be checked bottle by bottle, brand by brand, and sometimes even flavor by flavor within the same brand. What Fish Sauce Usually Is Fish sauce is a salty, fermented liquid used in many Southeast Asian dishes. It adds depth, savory flavor, and a kind of rich saltiness that is difficult to replace. It is commonly used in dipping sauces, marinades, soups, stir-fries, noodle dishes, and salad dressings. Traditional versions are often made from anchovies or other small fish layered with salt and allowed to ferment over time. In that more basic form, fish sauce may be naturally gluten-free. But modern commercial products do not always stay that simple. Manufacturers may add sweeteners, preservatives, flavoring agents, colorants, or protein ingredients to change taste, cost, or shelf stability. That is why the name "fish sauce" alone does not answer the gluten question. The label is what matters. How Gluten Can Show Up in Fish Sauce Gluten can enter fish sauce in several ways. One of the clearest is exactly what you mentioned: hydrolyzed wheat protein. If a bottle contains hydrolyzed wheat protein, it should not be considered safe for someone with celiac disease unless the manufacturer has clearly established that the final product meets strict gluten-free standards and the product is specifically labeled that way. In practical day-to-day shopping, most people with celiac disease would be wise to avoid it. Other bottles may include wheat directly, or may contain soy sauce made with wheat. Some products use barley-derived ingredients, malt, or flavor blends that are not obvious from the front label. In imported products, labeling may be less familiar, which can make quick decisions harder. There is also the issue of sauces that are not pure fish sauce but fish sauce blends. These blended products may contain added seasonings, sugar mixtures, spice extracts, or protein additives. A shopper who assumes all fish sauce is basically the same could easily miss an ingredient that makes one bottle unsafe. What About Hydrolyzed Wheat Protein? Hydrolyzed wheat protein deserves special attention because it can sound technical and harmless, even though the word "wheat" is right there in the name. Hydrolyzed means the protein has been broken down into smaller pieces. Some people hear that and assume the gluten must somehow be gone. That is not a safe assumption. For people with celiac disease, wheat-derived ingredients are a red flag unless a product is clearly labeled gluten-free and comes from a source that can be trusted to meet gluten-free standards. Even then, many highly cautious consumers prefer to choose products that do not use wheat-derived ingredients at all. That is often the simplest and least stressful approach. For people with gluten sensitivity, hydrolyzed wheat protein can also be a problem, since it may still trigger symptoms. In both cases, seeing that ingredient on a fish sauce label should prompt caution rather than optimism. Why Some Fish Sauces May Be Gluten-Free and Others Are Not The reason fish sauce can be safe in one bottle and unsafe in another is that there is no single required recipe. Some brands stick close to traditional fermentation methods and keep ingredients minimal. Others create products aimed at different markets or taste preferences. These versions may include added sweeteners, flavor boosters, or stabilizers that change the gluten risk. This means there is no universal answer to the question "Does fish sauce contain gluten?" Some do not. Some do. The only accurate answer is that it depends on the specific product. That may sound frustrating, but it is actually helpful because it points toward the safest habit: do not trust the category, trust the label. How to Read the Label Carefully When checking fish sauce, start with the ingredient list. Look for wheat, hydrolyzed wheat protein, barley, malt, soy sauce, or vague flavoring language that leaves you uncertain. Then check the allergen statement. In many countries, wheat must be clearly disclosed when present, which can make the decision easier. A gluten-free label can offer extra reassurance, but not all safe products carry one. Some bottles may have very short ingredient lists and no obvious gluten-containing ingredients, yet still leave questions about manufacturing or imported labeling practices. If the wording is unclear, it is often best to contact the company or choose a different brand that gives more confidence. For people with celiac disease, this is especially important because fish sauce is often used in small amounts. Some people are tempted to think that a tiny amount does not matter. But when gluten is involved, even small exposures can be a problem. Restaurant Risks Can Be Even Higher Fish sauce is frequently used in restaurant food, especially in Thai, Vietnamese, and other Southeast Asian dishes. It may appear in dipping sauces, noodle bowls, curries, marinades, dressings, and stir-fry sauces. Often it is not listed clearly on the menu. Even if a restaurant dish sounds naturally gluten-free, the fish sauce used in the kitchen may not be. Some restaurants also combine fish sauce with soy sauce, oyster sauce, hoisin sauce, or other ingredients that commonly contain wheat. That can make the final dish much riskier than it appears. For someone with celiac disease, asking whether a dish contains fish sauce is only the first step. It is also worth asking whether the fish sauce used by the restaurant contains wheat or whether the sauce mixture includes regular soy sauce. Cross-contact is another concern if shared utensils or prep areas are used. Safer Ways to Use Fish Sauce at Home Home cooking gives you much more control. Once you find a fish sauce brand with ingredients you trust, it becomes easier to make gluten-free versions of dishes that are often risky in restaurants. You can combine it with gluten-free tamari, rice vinegar, lime juice, sugar, garlic, and herbs to build sauces that would otherwise be hard to enjoy safely. Keeping one trusted bottle at home also reduces the chance of accidental exposure from trying new, unfamiliar brands. For many people with celiac disease, that kind of routine is one of the best long-term strategies. It lowers stress and helps avoid repeated label uncertainty. If you cannot find a fish sauce you trust, there are recipes that use gluten-free alternatives to create savory depth, though the flavor will not be exactly the same. Still, many people prefer a close substitute over the risk of an unclear ingredient list. What This Means for People With Celiac Disease For people with celiac disease, fish sauce belongs in the category of ingredients that can look simple but still hide risk. A bottle that contains only fish and salt may be fine, but a bottle containing hydrolyzed wheat protein, wheat, barley, or soy sauce made with wheat is not a safe choice. This matters because fish sauce is often used in dishes that already have a healthy or naturally gluten-free appearance. A rice noodle dish, a broth, or a fresh herb salad may seem safe at first glance, but the seasoning ingredients can completely change that. Fish sauce can be one of those hidden sources of gluten that catches people off guard. The best rule is to verify every bottle and every restaurant preparation. Assumptions are not enough when even a small amount of gluten can trigger an immune response. What This Means for People With Gluten Sensitivity For people with gluten sensitivity, fish sauce can also be a hidden source of symptoms. Even if the medical stakes differ from celiac disease, accidental exposure can still lead to digestive distress, fatigue, headaches, or other reactions. Because fish sauce is usually used as a background ingredient, it may be easy to overlook when trying to figure out why a meal caused trouble. Paying attention to ingredient details can help avoid that problem. If you have noticed reactions after meals that seemed rice-based or otherwise low risk, seasoning ingredients like fish sauce may be worth a closer look. Bottom Line Fish sauce does not always contain gluten, but it certainly can. Some bottles are made from simple ingredients and may be gluten-free, while others contain hydrolyzed wheat protein, wheat, soy sauce with wheat, or other gluten-containing additives. The only safe approach is to read each label carefully and avoid products that leave doubt. For people with celiac disease or gluten sensitivity, fish sauce is not an ingredient to assume is safe just because it seems traditional or minimal. The label matters, the brand matters, and the specific formulation matters. With careful checking, many people can find a version that works for them. Without that caution, fish sauce can become an easy way for hidden gluten to slip into an otherwise safe meal. Watch the video version of this article: { "@context": "https://schema.org", "@type": "VideoObject", "name": "Does Fish Sauce Contain Gluten? What People With Celiac Disease Need to Know - Celiac.com", "description": "Fish sauce is often made from fish and salt, but some brands contain hydrolyzed wheat protein or other gluten ingredients. Learn how to identify safe options if you have celiac disease or gluten sensitivity.", "thumbnailUrl": "https://img.youtube.com/vi/N4411_Lb_Kg/hqdefault.jpg", "uploadDate": "2026-04-22T13:30:00+00:00", "embedUrl": "https://www.youtube.com/embed/N4411_Lb_Kg" } Watch the super short video version of this article: { "@context": "https://schema.org", "@type": "VideoObject", "name": "Does Fish Sauce Contain Gluten? What People With Celiac Disease Need to Know - Celiac.com", "description": "Fish sauce is often made from fish and salt, but some brands contain hydrolyzed wheat protein or other gluten ingredients. Learn how to identify safe options if you have celiac disease or gluten sensitivity.", "thumbnailUrl": "https://img.youtube.com/vi/quIKbnCQCW8/hqdefault.jpg", "uploadDate": "2026-04-22T13:30:00+00:00", "embedUrl": "https://www.youtube.com/embed/quIKbnCQCW8" }
1 day ago 0 0 0 0
Need help trusting real food again — what brands of meat, eggs, rice, fruits, veggies, and snacks do you rely on? Hi everyone, I’m dealing with a lot of food anxiety right now as a celiac. I want to switch to eating only real, simple foods — things like chicken, eggs, rice, fruits, vegetables, and a few safe snacks. I don’t want to rely on frozen foods anymore at all. The problem is: I’m honestly scared of contamination. I don’t even fully trust certified gluten‑free labels anymore. My anxiety gets so bad that I lose sleep worrying about getting glutened, and it’s making it really hard to eat normally. I’m hoping some of you can share what you personally buy and trust. What brands do you use for: Chicken (fresh only) Eggs Rice Fruits Vegetables And also: What snacks do you eat that never give you issues or stomach pain? I’m not looking for anything fancy — just reliable, simple foods that feel safe for you as a celiac. Hearing what other people in this community eat without problems would really help me calm down and rebuild trust in food again. Thank you to anyone who replies.
2 days ago 0 0 0 0
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Does Anyone Else Feel This on Cruises? Not sure if it’s just me, but even on amazing cruises, there are moments where it feels a bit… lonely? Like during dinner when everyone’s in groups, or when you want to try an excursion but don’t have someone to go with. I love cruising, but sometimes I feel like it would be even better with the right people around. Has anyone else felt this? Or have you found good ways to meet people onboard?
3 days ago 0 0 0 0
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New Study Reveals Why Children with Celiac Disease May Still Struggle After Going Gluten-Free (+Video) Celiac.com 04/20/2026 - Celiac disease is an autoimmune disorder that develops when the immune system reacts to gluten, a protein found in grains such as wheat, barley, and rye. When people with this condition eat gluten, their immune system damages the lining of the small intestine. This damage can interfere with the body’s ability to absorb nutrients and can lead to a wide range of symptoms throughout the body. Although the disease affects the digestive system, it is now widely understood to be a whole-body condition that may also cause problems such as fatigue, headaches, anemia, and behavioral changes. The primary treatment for celiac disease is a lifelong gluten-free diet. Removing gluten from the diet typically leads to improvement in symptoms and healing of the intestine. However, many people continue to experience symptoms even after beginning the diet, and the lifestyle changes required by the diet can affect daily life and emotional wellbeing. A recent study published in Scientific Reports explored how symptoms and quality of life change in children during their first year after being diagnosed with celiac disease and starting a gluten-free diet. The researchers also examined whether other dietary factors might influence lingering symptoms. Purpose of the Study The researchers wanted to better understand how symptoms change in children after they begin treatment for celiac disease. While a gluten-free diet is known to improve the condition, previous research has shown that some people continue to experience digestive or other health problems even when they follow the diet carefully. Another goal of the study was to determine whether certain carbohydrates known as fermentable sugars might contribute to ongoing digestive symptoms. These substances are poorly absorbed in the intestine and can cause gas, bloating, and abdominal discomfort in some people. By studying children soon after diagnosis and following them for a full year, the researchers hoped to learn more about how symptoms evolve over time and what factors influence recovery.  How the Study Was Conducted The study followed forty-six children between the ages of three and fourteen who had recently been diagnosed with celiac disease. The participants were treated in several hospitals and clinics in Spain. All children began a gluten-free diet after their diagnosis and were monitored for one year. The research team collected information at three key points in time: at the moment of diagnosis, three months after starting the gluten-free diet, and twelve months after diagnosis. At each stage, the children and their families completed questionnaires about digestive symptoms, other health problems, dietary habits, and overall quality of life. The children and their parents also took part in educational sessions led by nutrition specialists. These sessions focused on teaching families how to follow a balanced gluten-free diet, avoid accidental gluten exposure, understand food labeling, and reduce the risk of cross-contamination. Activities included workshops about gluten-free cooking and shopping for safe foods. The goal was not only to monitor the children but also to support them and their families during the early stages of managing the disease. Changes in Digestive Symptoms At the time of diagnosis, many of the children reported several digestive problems. These included abdominal pain, diarrhea, constipation, reflux, and general indigestion. On average, each child reported more than five digestive symptoms at the beginning of the study. After three months on a gluten-free diet, the number and intensity of digestive symptoms decreased noticeably. By the end of the twelve-month follow-up period, the improvement was even more pronounced. Fewer children experienced severe symptoms, and the average number of digestive complaints continued to decline. These findings confirm that the gluten-free diet is effective at reducing digestive problems in children with celiac disease. The improvement was particularly strong during the first few months after diagnosis, which may reflect both the removal of gluten from the diet and the increased awareness of dietary management gained during educational sessions. Changes in Symptoms Outside the Digestive System Celiac disease can affect many parts of the body beyond the digestive tract. The study also tracked symptoms such as fatigue, headaches, anxiety, depression, anemia, weight loss, and difficulty concentrating. These symptoms were relatively common when the children were first diagnosed. However, the researchers observed steady improvement over the course of the year. Many symptoms, especially those related to fatigue and mental wellbeing, became less frequent after the children had been on a gluten-free diet for several months. By the end of the twelve-month period, many of the extra-digestive symptoms had either improved significantly or disappeared entirely. This suggests that the immune response triggered by gluten may contribute to a wide range of health effects and that removing gluten can gradually improve overall health. The Role of Nutritional Education One important aspect of the study was the emphasis on nutritional education and regular follow-up. Families attended multiple educational sessions designed to help them understand the disease and learn practical strategies for maintaining a safe and balanced diet. The researchers believe that this guidance played an important role in helping children recover from symptoms. By learning how to avoid hidden gluten and maintain a nutritionally balanced diet, families were better equipped to manage the disease effectively. Regular follow-up visits also helped identify potential dietary mistakes or risks for accidental gluten exposure. These visits provided an opportunity to reinforce dietary guidance and ensure that the children were adhering closely to the treatment plan. Did Other Dietary Factors Affect Symptoms? The researchers also examined whether certain fermentable carbohydrates in the diet might influence persistent digestive symptoms. These carbohydrates are found in many foods, including fruits, vegetables, dairy products, and certain grains. Some scientists have suggested that reducing these substances could help people who continue to experience digestive discomfort despite following a gluten-free diet. However, in this study, the researchers did not find evidence that these carbohydrates had a meaningful impact on symptoms during the first year after diagnosis. The reduction in symptoms observed during the study appeared to be mainly related to adherence to the gluten-free diet rather than changes in these other dietary components. Quality of Life Challenges Although symptoms improved significantly over the year, the study found that overall quality of life remained lower than expected for many children. Both the children and their parents reported that living with celiac disease continued to affect daily life. One of the main challenges is the strict nature of the gluten-free diet. Children must constantly monitor what they eat, avoid cross-contamination, and often navigate situations where safe food options are limited. Social activities such as eating at restaurants, attending parties, or sharing food with friends can become complicated and stressful. Parents also reported concerns about the cost of gluten-free foods, the risk of accidental gluten exposure, and the emotional impact of managing the disease over time. These factors can contribute to anxiety and a sense of social isolation for both children and their families. Limitations of the Study Like many clinical studies, this research has some limitations. The number of participants was relatively small, and the study relied heavily on self-reported questionnaires. Because of this, the results may not fully represent the experiences of all children with celiac disease. In addition, the study did not include a comparison group of children who did not receive the same level of nutritional education and follow-up. As a result, it is difficult to determine exactly how much of the improvement was due to the educational intervention compared to the gluten-free diet alone. Why This Study Matters for People with Celiac Disease This study provides valuable insight into how children adjust to life with celiac disease during the first year after diagnosis. The findings reinforce the importance of strict adherence to a gluten-free diet for improving symptoms and overall health. They also highlight the value of ongoing nutritional guidance and medical follow-up during the early stages of treatment. Perhaps most importantly, the study shows that while physical symptoms often improve relatively quickly, the social and emotional challenges of living with celiac disease may persist. Addressing these challenges requires not only dietary education but also greater awareness and support from schools, restaurants, communities, and society as a whole. For individuals and families living with celiac disease, the research underscores that recovery is not only about healing the intestine. It also involves learning to navigate everyday life in a way that supports both physical health and emotional wellbeing. Continued education, community understanding, and improved access to safe gluten-free foods may play an important role in helping children with celiac disease lead healthier and more fulfilling lives. Read more at: nature.com Watch the video version of this article: { "@context": "https://schema.org", "@type": "VideoObject", "name": "New Study Reveals Why Children with Celiac Disease May Still Struggle After Going Gluten-Free - Celiac.com", "description": "A new study of children with celiac disease shows that a gluten-free diet significantly reduces digestive and other symptoms during the first year after diagnosis, but many children still report reduced quality of life. Learn what the research reveals and why continued nutritional guidance and support are essential.", "thumbnailUrl": "https://img.youtube.com/vi/A2CtgUqDM4g/hqdefault.jpg", "uploadDate": "2026-04-20T13:30:00+00:00", "embedUrl": "https://www.youtube.com/embed/A2CtgUqDM4g" } Watch the super short video version of this article: { "@context": "https://schema.org", "@type": "VideoObject", "name": "New Study Reveals Why Children with Celiac Disease May Still Struggle After Going Gluten-Free - Celiac.com", "description": "A new study of children with celiac disease shows that a gluten-free diet significantly reduces digestive and other symptoms during the first year after diagnosis, but many children still report reduced quality of life. Learn what the research reveals and why continued nutritional guidance and support are essential.", "thumbnailUrl": "https://img.youtube.com/vi/UTh4uTiks6Q/hqdefault.jpg", "uploadDate": "2026-04-20T13:30:00+00:00", "embedUrl": "https://www.youtube.com/embed/UTh4uTiks6Q" }
3 days ago 0 0 0 0
Celiac Crisis - Experience? Hello! I have never posted on here. I want to preface this post by saying a have no official diagnosis of Celiac disease, but I have been gluten free for the past 5 years. I was too ill to wait to see a gastro, and out of desperation started the low fodmap diet. Surprise, the only things I couldn't eat were gluten and oats but I wasnt tested until I had essentially eaten next to nothing for 2 months and then was gluten free for 4 weeks leading up to my bloodwork. I very recently was in the ER twice in one week for an intense abdominal pain, diarrhea and vomiting. The first time they didn't find anything but only Morphine killed the pain, the second time they did a CT with contrast and found a small bowel infection and inflammation. After antibiotics, I still needed a round of steroids to get better and I'm still struggling with some fatigue and swelling in my abdomen. I was actually able to see a gastroenterologist pretty soon after despite a mixup with referrals. However, I just got my blood work back and there is still no sign of celiac disease. My question is, has anyone had a celiac flare or celiac crisis and what type of pain did you feel? I had an extremely specific type of pain. It felt like contractions in my stomach, intense squeezing that would last for several minutes accompanied with extreme burning pain from my stomach area (small bowel I am guessi g) up my esophagus. None of my pain was below my belly button. It would subside and there would be no pain for a few minutes, and the it would come back. I did end up vomiting a few times which was extremely painful and difficult (not your average expel at all costs type of vomiting) and I nearly fainted/blacked out, but mostly it was intense watery diarrhea. To be clear the pain (for those that get it) felt like contractions around the 7-8 cm mark and it came on out of nowhere. My gastro said she thinks I had a stomach virus but no one else in my 5 person household has been sick at all. I would love to hear your experiences because at this point I'm really struggling to not have any answers, even if it doesn't confirm my suspicion that I have celiac.
3 days ago 0 0 0 0
Is Thiamine Deficiency the Beginning of Celiac Disease? I've been researching Celiac disease and Thiamine deficiency for a long time. Recently I found information that shows a relationship between the lack of Thiamine and Celiac Disease pathogenesis. What do you think? Thiamine is used in the mitochondria to produce energy (ATP) in the body for cells use as they go about their various functions. Various chemical reactions take place as the glucose moves through the transport chain in the mitochondria. Oxygen is needed at the end of the transport chain to pick up electrons leftover from the chemical reactions and combines with Hydrogen electrons to form water. One molecule of glucose results in 32-36 ATP. If there is not enough Thiamine for the mitochondria to produce ATP using Oxygen to mop up the spare electrons, the mitochondria switches to anaerobic (without oxygen) production of energy. Only 2 ATP are produced in this manner. Anaerobic production of ATP leaves lactic acid as a byproduct. Oxygen delivered to the cell passes through unused or is ignored since it's not capable of being used. This induces a state of hypoxia. Thiamine deficiency causes hypoxia. Hypoxia-Inducible Factor 1 alpha (HIF-1a) is part of a checks and balances system. HIF-1a is degraded (turned off) by byproducts from aerobic production of energy using thiamine. However, if the byproducts build up too much, HIF-1a is stimulated. During low oxygen levels and anaerobic production of ATP, a build up of lactic acid stimulates HIF-1a. Hypoxia-Inducible Factor 1α binds to thiamine transporter SLC19A3 and activates it to increase thiamine uptake. HIF-1a affects genes in the nucleus, entering through micro-pores. HIF-1α signaling triggers the release of inflammatory cytokines and increases inflammatory cell proliferation. It can also cause cell death. Hypoxia and high levels of HIF-1a are found in many autoimmune diseases and cancer. Thiamine attenuates HIF-1a signaling. Thiamine restores ATP production to aerobic production. Here's an excerpt... "HIF-1α shows its functions through translocating into the nucleus, dimerizing with HIF-1β and binding to hypoxia-responsive elements of the HIF-1α target genes. Recent data have also suggested that HIF-1α plays a role in maintaining intestinal epithelial barrier functions [37,38]. Accumulating evidence has also shown that HIF-1 α plays an essential role in cells via interaction with the NF-kB p65 pathway in the pathogenesis of inflammation [17]. In addition, previous research has further reported that HIF-1α expression is increased in the duodenal tissue of celiac disease patients [19,39]. It has been pointed out that activated HIF-1α is involved in celiac disease pathogenesis.". https://pmc.ncbi.nlm.nih.gov/articles/PMC9954839/ References: Increased Expression of Hypoxia-Inducible Factor 1α in Coeliac Disease https://www.nature.com/articles/pr2010143 Intestinal parameters of oxidative imbalance in celiac adults with extraintestinal manifestations https://pmc.ncbi.nlm.nih.gov/articles/PMC5703914/ Emerging role of hypoxia-inducible factor-1α in inflammatory autoimmune diseases: A comprehensive review https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2022.1073971/full Thiamine deficiency activates hypoxia inducible factor-1α to facilitate pro-apoptotic responses in mouse primary astrocytes https://pmc.ncbi.nlm.nih.gov/articles/PMC5646851/ Stabilization of the hypoxia-inducible transcription Factor-1 alpha (HIF-1α) in thiamine deficiency is mediated by pyruvate accumulation https://pubmed.ncbi.nlm.nih.gov/30008376/ Thiamine (Vitamin B1)-An Essential Health Regulator https://pmc.ncbi.nlm.nih.gov/articles/PMC12251314/ https://pubmed.ncbi.nlm.nih.gov/40647310/ Role of HIF-1α in the Hypoxia Inducible Expression of the Thiamine Transporter, SLC19A3 https://pmc.ncbi.nlm.nih.gov/articles/PMC5097002/ https://pubmed.ncbi.nlm.nih.gov/27743994/ Thiamine insufficiency induces Hypoxia Inducible Factor-1α as an upstream mediator for neurotoxicity and AD-like pathology https://pubmed.ncbi.nlm.nih.gov/36241022/ Mito-Nuclear Communication by Mitochondrial Metabolites and Its Regulation by B-Vitamins https://pmc.ncbi.nlm.nih.gov/articles/PMC6379835/ The role of hypoxic microenvironment in autoimmune diseases https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1435306/full Emerging role of hypoxia-inducible factor-1α in inflammatory autoimmune diseases: A comprehensive review https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2022.1073971/full Increased Expression of Hypoxia-Inducible Factor 1α in Coeliac Disease https://www.nature.com/articles/pr2010143 Peroxiredoxins and Hypoxia-Inducible Factor-1α in Duodenal Tissue: Emerging Factors in the Pathophysiology of Pediatric Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC9954839/
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Oats and Gluten? Cross Contamaination? During my gluten-free journey I have been reading alot about not necessarily oats have gluten but other parts in processing causing cross contamination. Bobs Redmill gluten-free oats have been good and I have heard One Degree Oats sprouted are more nutritious and gluten-free. I am curious if others had issues with ats and if so what have you switched to as your morning daily breakfast. Thanks
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Sautéed Bell Peppers This recipe is extremely quick and easy, yet nutritious and delicious. It's novel and a treat for the eye. I haven't modified it in any substantial way, although I added (comments) and Tips based on my experience. If you like this recipe, please go to the link and give the author some love. thenaturalnurturer.com/15-minute-sauteed-bell-peppers/ Ingredients 3 bell peppers, cut into ½-inch strips 1½ Tablespoon olive oil 1 teaspoon dried thyme (don't skimp - this makes the dish) ½ teaspoon salt (you can use less if you are watching your salt) Instructions • Heat oil in large skillet or Dutch oven over medium heat. • Once oil is hot, add sliced peppers and season with salt and thyme. • Cook, stirring occasionally, until peppers are tender and starting to brown, about 10-15 minutes or until your preferred tenderness is achieved Tips • I prefer to cook these a little less than the recipe calls for. I like the peppers to still be a little crisp. • Use fresh, crisp peppers. I tried this once with past-peak peppers and it was not nearly as good. • Don't try to crowd too much into the pan or they will steam more than fry. I tried increasing the peppers and it was not as good. • Any color bell pepper works, but the dish is best with 3 different colors of pepper. • If there is a lot of septum I knock some of it off but I don't worry about getting all of it. Similarly, I don't worry about the seeds. • I find it easier to manage the pan if I cut the peppers into strips and then cut the strips in half, particularly if the peppers are tall.
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Anybody have issues with popping corn kernels and cross-contamination? I'm wondering about popping corn kernels - the kind you make with an air popper or on the stovetop (not microwaved popcorn or pre-popped and bagged stuff). I know these kernels are naturally gluten free, but I can't help but wonder about the risk of cross-contamination with gluten, either in the growing stage or during processing. So, I'm curious what the community here has to say about this.
4 days ago 0 0 0 0
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Iies in medical record This is completely INSANE! I thought i had established gi care close to home and wondered why my celiac diagnosis is still at a standstill. I went to my pcp and its up to the gi specialist. Per pcp to sign off on it. Even with the materials given amd told him what i knew , it was pointless on my part.The gi specialist I thought i was going to continue, isn't since he dropped me without giving me to another gi.I did file compliant to medical board. I do believe it's a certain gi group in my area that is the core issue of my celiac run around no thanks to another bay area that wasn't familiar with GLUTENFREE celiac asking for help of why their body is going to craps when not eating wheat. I do think it's time to see if I can go to celiac hospital eat what and do legal on them because It's mental abuse of why do you feel that way when the blood HLA-DQ2 is there and I was already positive in 1994.i went to pain management today and they had zero information on any of my medical issues! what the heck
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Classic French Comfort Made Safe: A Hearty Gluten-Free Cassoulet Celiac.com 04/18/2026 - Cassoulet is one of those dishes that feels like it was invented to get people through cold weather and long days. Originally from southwestern France, it grew out of practical home cooking: beans that could simmer for hours, bits of preserved meat, and aromatics from the pantry, all brought together into something far greater than the sum of its parts. Traditionally, cassoulet is baked slowly until the top becomes deeply browned and the stew underneath turns silky and rich. Because classic cassoulet can sometimes include wheat-based breadcrumbs on top, it is a dish that benefits from a thoughtful gluten-free update. This version keeps the spirit of the original—creamy white beans, savory meats, and a long, gentle bake—while using a crisp gluten-free topping that still delivers that signature crackly crust. Ingredients For the Cassoulet * 1 pound dried white beans (such as Great Northern or cannellini), rinsed * 1 tablespoon olive oil * 1 large yellow onion, diced * 2 medium carrots, diced * 2 celery stalks, diced * 5 cloves garlic, minced * 2 bay leaves * 1 teaspoon dried thyme (or 1 tablespoon fresh thyme leaves) * 1 ½ teaspoons kosher salt, plus more to taste * ½ teaspoon black pepper * 1 tablespoon tomato paste * 1 cup dry white wine (optional, replace with broth if needed) * 6 cups gluten-free chicken broth (or more as needed) * 12 ounces gluten-free smoked sausage, sliced * 4 bone-in chicken thighs (or 6 smaller thighs) * 8 ounces cooked duck confit or cooked shredded duck (optional but traditional) * 1 tablespoon chopped fresh parsley For the Gluten-Free Crust * 1 cup gluten-free breadcrumbs (or crushed gluten-free crackers) * 2 tablespoons chopped fresh parsley * 1 teaspoon garlic powder * 3 tablespoons olive oil or melted butter * Pinch of salt and pepper Instructions 1) Soak and Cook the Beans Place the beans in a large bowl and cover with several inches of water. Let soak overnight (8 to 12 hours). Drain and rinse. Add the soaked beans to a pot and cover with fresh water. Bring to a gentle boil, then reduce to a simmer and cook for 45 to 60 minutes, until the beans are tender but not falling apart. Drain and set aside. 2) Build the Base Flavor Preheat the oven to 325°F. In a large oven-safe Dutch oven, heat the olive oil over medium heat. Add the onion, carrots, and celery, and cook for 8 to 10 minutes, stirring occasionally, until softened. Stir in the garlic and cook for 30 seconds. Add the tomato paste and stir for 1 minute to deepen its flavor. Pour in the white wine (if using) and simmer for 2 to 3 minutes to reduce slightly. 3) Add Broth, Beans, and Meats Stir in the cooked beans, bay leaves, thyme, salt, and pepper. Add the chicken broth and bring the mixture to a gentle simmer. Nestle the chicken thighs into the beans. Add the sliced sausage. If using duck, tuck it into the stew as well. The liquid should come close to covering everything; add a little extra broth if needed. 4) Slow Bake Cover the pot and bake for 1 hour. Remove the lid and continue baking for 45 minutes, allowing the top to begin concentrating and browning lightly. If it looks too dry at any point, stir in a splash of broth. 5) Make the Gluten-Free Crust In a small bowl, combine the gluten-free breadcrumbs, parsley, garlic powder, olive oil (or melted butter), and a pinch of salt and pepper. The mixture should look like damp sand. 6) Finish with the Signature Crust Sprinkle the breadcrumb mixture evenly over the top of the cassoulet. Increase the oven temperature to 375°F and bake uncovered for 20 to 25 minutes, until the top is golden and crisp. For an extra-crisp finish, broil for 1 to 2 minutes at the end, watching closely so it does not burn. 7) Rest and Serve Let the cassoulet rest for 10 to 15 minutes before serving. Remove bay leaves. Stir in the chopped parsley and taste for seasoning. Serving Notes * Serve with a simple green salad dressed with lemon and olive oil to balance the richness. * Leftovers taste even better the next day as the flavors deepen. * If you are highly sensitive, confirm the sausage and broth are certified gluten-free and prepared in a gluten-free facility. Conclusion Cassoulet has always been about patience and comfort: humble ingredients transformed by slow heat into something celebratory. This gluten-free version keeps the soul of the classic dish—creamy beans, savory meats, and that irresistible browned topping—while making it safe for anyone avoiding gluten. Whether you cook it for a weekend gathering or portion it out for cozy leftovers, it is the kind of meal that feels like a warm kitchen in a bowl.
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Starting gluten free diet Hey everyone so I started a gluten free diet for now almost 4 months I gained 5 kg but the problem is I feel more fatigued as time goes by it's worse before eating gluten. I take iron, magnesium glycinate , probiotics, and omega 3 they helped me I could feel my hair and nails growing and I gained weight but the bloating fatigue and head pressure in my jaw and neck is insane someone help me
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Retirement/assisted living facility and cross contamination in the kitchen I have Celiac Disease. I live in a retirement/assisted living facility. I cannot eat the food they serve because of cross contamination in the kitchen. I have to order my food from places like Whole Foods or other markets, and prepare it myself. In spite of that, the nurse is telling prospective new tenants that "Yes, we can serve gluten free food!", which is not true! I think this is against the law. Is there something I should do?
5 days ago 0 0 0 0
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Meet Bahama Burger: A Rice-Based, Soy-Free Option for Gluten-Free and Celiac-Conscious Eaters Celiac.com 04/17/2026 - Finding a convenient plant-based burger can be frustrating for people with celiac disease and others who need to watch ingredient labels closely. Many meat alternatives rely on common allergens or ingredients some shoppers prefer to avoid, including soy and wheat-derived components. Bahama Burger is positioned differently: according to the company, it is made with Risofu®, a rice-based meat alternative, and the product page lists it as soy-free, gluten-free, vegan, non-GMO, and free of the top 9 allergens. For people who need more confidence in what they are buying, that kind of labeling clarity matters. Why this matters for people with celiac disease Celiac disease is a chronic digestive and immune disorder triggered by gluten, and the core treatment is a strict lifelong gluten-free diet. Even small amounts of gluten can cause symptoms and intestinal injury, which is why ingredient review, labeling, and cross-contact awareness are so important. The FDA's gluten-free labeling framework exists to help consumers identify foods more confidently, but research also shows that people with celiac disease still face challenges with label interpretation and inadvertent exposure. That context helps explain why a clearly labeled plant-based burger can stand out. Bahama Burger's product page explicitly states that the patties are soy- and gluten-free, and it publishes a full ingredient list that centers on Risofu®, a rice curd base made from brown rice, black rice, wild rice, rice purée, and rice milk, along with pea and rice protein, chia, lentils, chickpeas, and a small number of additional ingredients. For gluten-free shoppers, transparent ingredient disclosure is not just a branding feature. It is part of how safer food decisions get made. The rice-based difference One reason the product may appeal to celiac-conscious consumers is its rice-based foundation. Rice is naturally gluten-free, and reviews of rice proteins describe them as relatively hypoallergenic compared with many other cereal proteins. Rice is also not one of the FDA's major food allergens, unlike wheat and soy. That does not mean every rice-based product is automatically safe for every individual, but it does help explain why rice can be an appealing base for a product aimed at broader dietary inclusion. Bahama Burger's appeal is not only about what it leaves out. The company also highlights substantial protein content, a 3oz patty delivers 17g of protein, and a 4oz serving of Bahama Burger contains 22g of protein, and emphasizes a short, recognizable ingredient profile compared with many heavily formulated alternatives. Those points may resonate with shoppers who want a plant-based option that feels less dependent on soy isolates or more conventional allergen-heavy formulations. A practical option for mixed-diet households Products like this can be especially useful in households balancing multiple dietary needs at once. Someone may need gluten-free food for celiac disease, another person may avoid soy, and others may simply want a plant-based dinner that still feels familiar. A burger that is marketed as gluten-free and soy-free can simplify meal planning, especially when the product can be used in several formats such as burgers, wraps, bowls, and salads. Bahama Burger's site includes recipe ideas along those lines, including wraps, bowls, quesadillas, and barbecue-style applications. Company background Bahama Burger is sold by Morini Brands, a food company rooted in Delray Beach and Orlando, Florida. On its website, the company describes a long-running focus on food innovation and says the Morini brothers developed Risofu® as part of an effort to create allergen-conscious, plant-based foods that emphasize taste, safety, and sustainability. Those are company descriptions rather than independent clinical claims, but they do help explain the product's positioning in the market. What to know before buying For people with celiac disease, the most important point is still the same: rely on explicit gluten-free labeling, review the ingredient statement, and stay mindful of cross-contact risks in preparation and serving. Research shows that gluten exposure can still happen through labeling confusion or contamination during handling, even when a food category appears naturally gluten-free. In other words, a rice-based formula is promising, but safe use still depends on the full chain from manufacturing to the plate. Current offer and where to find it Right now, Bahama Burger is running a buy-one-get-one offer: purchase a 4-pack of patties and get a second 4-pack free, a solid way to try the product without a big commitment. Orders ship directly from Bahama Burger. For shoppers who prefer to buy in person, the site includes a store locator where you can search by city or ZIP code to find nearby retailers carrying Bahama Burger. Final thoughts For gluten-free shoppers, and especially for people living with celiac disease, the strongest case for Bahama Burger is not hype. It is readability, ingredient transparency, and a rice-based formulation that avoids wheat and soy while fitting into a wider range of dietary needs. That does not replace the need for careful label reading, but it does make Bahama Burger a notable option for consumers looking for a plant-based burger built around clearer ingredient choices and broader dietary compatibility. Visit our site to find out more.    
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France and Italy in denial Hello everybody, we just got back from a trip to England, Scotland, and France. Gluten-free options were everywhere in the UK but almost impossible to find in France or at least in Paris. I found it finally found a café that serves gluten-free crêpes! We have been in Europe in the fall in France and Italy and I tried eating the bread but started having stomach ache. I’ve heard that bread in Europe is supposed to be safe for people with gluten problems. Has anybody else figured out how to deal with this?
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EDG 3 years ago fine, now it shows focal villous blunting, I have had Celiac for 16 years and have always followed a Gluten free diet. I am now at a loss, nothing is different in 3 years. Has anyone had any experience like this. My GI is currently doing blood testing for Anti-bodies, 1st one back is IGA and it's normal, Vitamin D low...waiting on others. Any comments is appreciated. Thank you
6 days ago 0 0 0 0
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Emergency Aid Launched to Deliver Gluten-Free Food to People with Celiac Disease in Gaza Celiac.com 04/17/2026 - Humanitarian crises often create severe shortages of food, clean water, and medical care. For most people, emergency food aid focuses on providing calories and basic nutrition to prevent hunger and starvation. However, for individuals with celiac disease, the challenge goes beyond simply getting enough food. They must also avoid gluten, a protein found in wheat, barley, and rye. Consuming gluten can trigger a damaging immune response that harms the small intestine and prevents the body from absorbing nutrients. Because of this, the gluten-free diet is not a lifestyle choice but a medical necessity for people with celiac disease. In emergency settings where food options become extremely limited, individuals with the condition may face a dangerous dilemma: either eat foods that make them sick or go without food altogether. This situation can quickly lead to malnutrition and serious health complications. A New Humanitarian Initiative Focused on Celiac Disease Recognizing this urgent problem, the Association of European Coeliac Societies has launched a humanitarian initiative aimed specifically at supporting people with celiac disease in the Gaza Strip. The program, called the Huda Emergency Initiative, was created to raise funds that will be used to provide gluten-free food supplies to individuals affected by the ongoing humanitarian crisis in the region. The goal of the initiative is to ensure that people with celiac disease have access to safe food during a time when normal supply chains have been severely disrupted. In many emergency responses, special dietary needs are difficult to accommodate, and gluten-free food is rarely prioritized in large-scale food distributions. As a result, people with celiac disease can become especially vulnerable when crises occur. The funds collected through this effort are intended to help purchase gluten-free foods, organize logistics, and distribute supplies through trusted humanitarian partners who are operating in the region. These efforts are designed to make sure that assistance reaches those who require medically appropriate food to stay healthy. The Story Behind the Initiative The initiative is named in memory of Huda, an eight-year-old girl with celiac disease who died after suffering from severe malnutrition due to lack of access to safe gluten-free food. Her story highlights the tragic consequences that can occur when the medical needs of people with celiac disease are overlooked during humanitarian emergencies. Huda’s story also symbolizes the many children and adults living with celiac disease whose dietary needs often remain invisible in large-scale relief operations. While general food aid may provide grains such as wheat or barley, these foods can actually worsen health outcomes for those who cannot tolerate gluten. By naming the initiative after Huda, organizers hope to bring attention to the unique challenges faced by people with celiac disease during crises and to encourage more targeted solutions. Why Celiac Disease Creates Unique Risks in Food Emergencies Celiac disease is an autoimmune disorder in which the immune system mistakenly attacks the small intestine when gluten is consumed. Over time, this damage interferes with the body’s ability to absorb vitamins, minerals, and other nutrients from food. Under normal circumstances, individuals with the condition can manage their health by following a strict gluten-free diet. However, in places where food options are scarce or where gluten-free products are unavailable, maintaining this diet becomes nearly impossible. During humanitarian crises, food systems often collapse. Grocery stores may close, farms may stop producing food, and transportation networks can break down. Aid organizations typically distribute staple foods that are inexpensive and easy to store, such as wheat flour or other grain products. Unfortunately, these staples contain gluten. For people with celiac disease, eating these foods can cause serious intestinal damage and lead to symptoms such as diarrhea, fatigue, abdominal pain, and severe nutrient deficiencies. Over time, continued exposure to gluten can cause chronic malnutrition, especially in children whose bodies are still developing. The Challenge of Providing Safe Gluten-Free Food Providing gluten-free food during emergencies presents several logistical challenges. Gluten-free products often require specialized manufacturing processes to prevent cross-contamination with wheat or other gluten-containing grains. These foods can also be more expensive and less widely available than standard food supplies. In addition, ensuring safe food preparation is essential. Even small traces of gluten can trigger symptoms in people with celiac disease. This means that food distribution systems must carefully manage storage, packaging, and preparation to avoid contamination. The emergency initiative aims to address these challenges by coordinating shipments of certified gluten-free foods and ensuring that they are distributed through trusted networks familiar with the needs of people with celiac disease.  International Collaboration in Delivering Aid The humanitarian response is being coordinated through partnerships with national celiac organizations and international aid groups. These partnerships allow experts familiar with the gluten-free diet to guide food selection and distribution. For example, regional celiac associations and international humanitarian partners are working together to identify individuals with celiac disease who need assistance and to arrange safe deliveries of gluten-free food supplies. Some shipments are planned to move through established humanitarian channels and partner organizations already operating in the region. Local coordinators also play an important role in notifying registered patients about distribution locations and ensuring that aid reaches the intended recipients safely and efficiently. Why Awareness Matters in Global Relief Efforts The initiative highlights a broader issue within humanitarian relief efforts: many medical dietary needs remain overlooked during emergencies. Conditions such as celiac disease require specific foods to maintain health, yet emergency responses often focus only on general nutrition. Raising awareness about these needs is an important step toward improving humanitarian support systems. When relief organizations recognize conditions like celiac disease as medical concerns rather than lifestyle preferences, they are more likely to incorporate safe dietary options into their aid programs. This awareness can also help policymakers and aid organizations develop more inclusive emergency response strategies that consider the needs of people with chronic health conditions. What This Means for People with Celiac Disease or Gluten Sensitivity For people living with celiac disease or gluten sensitivity, the situation in Gaza serves as a powerful reminder of how essential access to safe food is for maintaining health. In stable environments, individuals with the condition can manage their diet by purchasing gluten-free products and preparing meals at home. However, when food systems collapse during conflicts or disasters, this safety net disappears. The Huda Emergency Initiative underscores the importance of building stronger global support systems for people who depend on gluten-free diets. It also highlights the need for greater recognition of celiac disease in humanitarian planning. For the broader celiac community around the world, the initiative represents a call for solidarity and awareness. It reminds us that while many people with celiac disease have access to safe food choices, others living in crisis zones may face life-threatening challenges simply because gluten-free foods are unavailable. Looking Ahead Efforts like the Huda Emergency Initiative demonstrate how targeted humanitarian programs can address the unique needs of vulnerable populations. By focusing on medically necessary diets, organizations can help prevent avoidable illness and suffering. As global awareness of celiac disease continues to grow, future humanitarian responses may become better equipped to provide appropriate food assistance for those who require it. In the meantime, initiatives like this one play a crucial role in ensuring that people with celiac disease are not forgotten during times of crisis. Ultimately, the message is clear: for people with celiac disease, safe gluten-free food is not just a preference—it is essential for survival. Read more at: mynewsdesk.com
6 days ago 0 0 0 0
Hypoglycemia, ketones in urine and weight lost. I need advice. Due to malabsorption, I have hypoglycemia and I excrete ketones in my urine. I am losing a lot of weight. I don’t know what to do — I drink juice, eat fruit, take honey, but I don’t notice much improvement. Any advice?
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Walt Disney World Gluten Free If you are traveling to the Orlando area and in need of some “bird dogging “ to help you find gluten free options, I am here to help. I can give suggestions on content to watch or do a personal deep dive for you if traveling to the area. My first tip is to check out Gluten Free Disney with Gluten Free Gina. She covers a lot of the restaurants and quick service locations within the Disney bubble. She also reviews the surrounding area and parks, including cruise ships. If you can’t find the answer to your question, contact me, and I will look until I find you the answer. I am glad to help. This is an altruistic adventure, my payment is from helping people not experience the same level of frustration as I have had to deal with when traveling. Come on down to Orlando. The weather is great, and the gluten-free food is even better! your friend, The Gluten Free Bird Dog
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Virginia Gluten Disclosure Bill for Medications Delayed After Debate Over Federal Rules Celiac.com 04/16/2026 - A recent legislative proposal brought renewed attention to an issue that many people with celiac disease already understand too well: gluten can sometimes appear in places where few expect it, including medications and dietary supplements. The discussion began after a Virginia public official with celiac disease shared her personal experience with hidden gluten in medical treatments. The official described the difficulty of determining whether a prescription medication or supplement contained gluten. When she asked pharmacy staff about the ingredients in a medication, she was told that they could not easily determine whether wheat was present and that she would need to contact the manufacturer herself. For someone already dealing with serious health conditions, this added burden created both frustration and potential health risks. Her experience became the inspiration for a proposed state bill that aimed to improve ingredient transparency for medications and supplements sold in Virginia. Although the proposal ultimately stalled in a legislative committee, the debate surrounding it highlighted an important issue: people with celiac disease often struggle to determine whether medications are truly gluten-free. The Hidden Gluten Problem in Medications Many people associate gluten exposure with food products such as bread, pasta, and baked goods. However, gluten can also appear in unexpected places, including medications, vitamins, and supplements. In some cases, wheat-derived ingredients may be used as fillers, binders, or stabilizers during manufacturing. For individuals with celiac disease, even small amounts of gluten can trigger an immune reaction that damages the small intestine. This damage interferes with the body's ability to absorb nutrients and can cause symptoms ranging from digestive problems to fatigue, neurological issues, and long-term health complications. Because of this, people with celiac disease must remain vigilant about everything they consume—including medications. Unfortunately, identifying gluten in pharmaceuticals can be far more complicated than reading a food label. The Goal of the Proposed Disclosure Bill The proposed legislation sought to require clearer ingredient labeling on medications and dietary supplements. Specifically, the bill would have required manufacturers to list both active and inactive ingredients and to include a separate disclosure if a product contained gluten. The intention behind the bill was to make it easier for patients, pharmacists, and physicians to quickly determine whether a product was safe for people with celiac disease or gluten sensitivity. Supporters argued that ingredient lists can sometimes be vague. For example, labels might list “starch” without specifying whether it comes from corn, potatoes, or wheat. For most consumers, this distinction may not matter. For someone with celiac disease, however, the difference is critical. Advocates for the bill believed that requiring manufacturers to clearly identify gluten-containing ingredients would eliminate much of the uncertainty that patients currently face. Federal Regulations and Their Limitations During the legislative discussion, lawmakers and industry representatives examined how current federal regulations already address ingredient labeling. Federal law does require certain allergens, including wheat, to be disclosed in many products. However, critics of the existing system argue that the rules do not always provide enough detail to protect people with celiac disease. One issue involves how gluten is defined and detected. Federal guidelines for labeling foods as gluten-free typically rely on testing thresholds. Because laboratory tests cannot reliably detect extremely tiny amounts of gluten, regulations often use a limit of twenty parts per million. While this level is generally considered safe for most people with celiac disease when it comes to food products, the situation becomes more complicated in medications. Drugs and supplements are not always subject to the same labeling standards as packaged foods. Additionally, some ingredients used during manufacturing may not appear clearly on labels, especially if they are considered processing aids rather than primary ingredients. Industry Concerns About State-Level Rules Opponents of the proposed legislation argued that creating state-specific labeling requirements could conflict with existing federal regulations. Industry representatives noted that the federal government already regulates drug and supplement labeling, and adding separate state rules might create inconsistencies. They also raised concerns about technical limitations related to testing. Because detecting extremely small amounts of gluten can be difficult, defining products as completely gluten-free may present scientific challenges. Another concern involved regulatory consistency. Industry groups warned that if individual states created their own labeling rules for gluten disclosure, manufacturers could face a complex patchwork of requirements across the country. These arguments contributed to the decision to delay the bill while lawmakers gather more information and explore possible solutions. The Bill Is Delayed—but the Issue Remains Although the proposal did not advance immediately, lawmakers chose to postpone rather than abandon the idea. The bill has been carried over for further study, giving policymakers more time to evaluate how improved labeling could work without conflicting with federal regulations. Officials indicated that they plan to continue working with regulatory agencies and industry groups to examine potential paths forward. The goal is to better understand how ingredient transparency might be improved while maintaining compliance with existing laws. This means that while the bill has been halted for now, the issue of gluten disclosure in medications is likely to remain part of future legislative discussions. Why This Issue Matters for People with Celiac Disease For people living with celiac disease, the debate highlights an ongoing challenge: identifying safe medications can sometimes be difficult. Unlike food packaging, pharmaceutical labeling does not always clearly identify whether gluten-containing ingredients are present. Patients may need to research ingredient sources, consult pharmacists, or contact manufacturers directly before taking certain medications. This process can be stressful and time-consuming, particularly for individuals who rely on multiple prescriptions or who are dealing with serious illnesses. The issue becomes even more complicated when generic medications are involved. Different manufacturers may use different fillers or binding agents, meaning that one version of a medication may be gluten-free while another may not be. The Importance of Ingredient Transparency Clear labeling benefits both patients and healthcare providers. When ingredient sources are clearly identified, pharmacists can more easily determine whether a medication is safe for someone with celiac disease. Improved transparency would also help patients make informed decisions about their health. Instead of conducting extensive research or contacting manufacturers, individuals could simply read a label to determine whether a product contains gluten. Advocates believe that better labeling could reduce accidental gluten exposure and improve safety for people with autoimmune conditions related to gluten. What People with Gluten Sensitivity Should Know While celiac disease involves an autoimmune reaction to gluten, some individuals experience symptoms related to gluten sensitivity without having the same intestinal damage. These individuals may also benefit from improved ingredient disclosure. Even though gluten sensitivity does not carry the same long-term complications as celiac disease, avoiding gluten remains an important part of symptom management for many people. Clear labeling of medications and supplements would make it easier for both groups to maintain their dietary restrictions. Looking Ahead The debate surrounding this proposed legislation illustrates how complex healthcare policy can become when medical needs intersect with regulatory systems. For people with celiac disease, however, the core issue remains simple: they need reliable information about what is in the products they consume. Although the bill has been delayed, it has already succeeded in bringing attention to a problem that affects millions of Americans. Continued discussion among lawmakers, healthcare professionals, and patient advocates may eventually lead to clearer guidelines and improved labeling practices. Until then, people with celiac disease will likely continue to rely on careful research, communication with healthcare providers, and advocacy efforts to ensure that medications and supplements are safe for them to use. Read more at: newsontheneck.com
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Iies in medical record I just looked today at my records from past celiac circus and what I thought was my current gi i had locally.Im not at all surprised that they put i was negative for sibo from past dr which isn't true. I gave them the positive results along with the other results of my tests requested by the none bay area googled specialist. All I wanted was doctors closer to home.. The gi that is my last did a sibo test though I showed and gave him a copy of a positive result just several months prior. I did breath test as requested by gi and results showed positive. I was given antibiotics which my body was having issues with also it showed on my online records, I screenshot it and since deleted the app. What im saying and want documented is the medical records I requested and got from current medical association states that both sibo test i did were NEGATIVE what the heck......NOOOO NO NOOO NO I'm having alot of issues stomach wise and I have POSITIVE results by BOTH test .HOW IS THIS LEGAL???? I'm NOT FEELING WELL.they are playing.I went to pain management and they had ZERO information on my medical information. My stomach feels so bloated and burning. I read the its not good for pain meds and sibo. I had a shot in my spine which didn't do anything but give me bloat, brup and gas...
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Dreams Macao Beach in Punta Cana DR We are going to my sister-in-law's destination wedding at the end of April. It is at the all-inclusive Dreams Macao Beach in Punta Cana. She chose this place specifically for the gluten-free options for me, because she is the best SIL in the world! Has anyone gone here and how was your experience with the food options and gluten-free adherence?
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Coeliac And Cardio Vascular Disease I have been a Coeliac for many years and coped really well, but in 2022 I was diagnosed with High blood pressure and still on medication, I have now been advised that Coeliac's are more prone to Cardio Vascular disease has anyone else experienced this?
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Idahoan contains gluten? As a person with celiac I’ve eaten Idahoan instant potatoes for years. I had them last night without checking the package and had a significant reaction. I suspected other things that when I checked, did appear to be gluten free but when I checked the Idahoan package, it no longer has their gluten free logo. Has anyone else noticed this?
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New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease Celiac.com 04/15/2026 - The human immune system relies on specialized cells and molecules to recognize and defend against harmful substances such as bacteria, viruses, and toxins. Among the most important components of this defense system are B cells, a type of immune cell responsible for producing antibodies. Antibodies recognize foreign substances and help the immune system eliminate them. A recent scientific study explored how inherited genetic differences influence the earliest stage of antibody development in B cells. Specifically, researchers examined how variations in certain genes affect the receptors found on naïve B cells, which are B cells that have not yet encountered an invading substance. Because B cells play a role in autoimmune diseases, including celiac disease, understanding how genetics shapes these receptors may help scientists better understand why certain immune reactions occur. The Role of B Cells and Antibody Receptors B cells recognize threats using structures called B cell receptors. These receptors are proteins on the surface of the cell that bind to specific targets, known as antigens. Each B cell has a unique receptor that allows the immune system to detect an enormous variety of possible threats. The diversity of these receptors is largely created from segments of genes that encode antibodies. These gene segments combine in different ways during B cell development, producing a vast library of possible receptors. This process ensures that the immune system is prepared to recognize a wide range of substances. Three main groups of genes help build these receptors. One group produces the heavy chain portion of the antibody, while two others produce the light chain components. The combination of these elements determines the shape and specificity of each receptor. However, these genes vary slightly from person to person due to inherited genetic differences. These variations, known as polymorphisms, can influence which gene segments are used when receptors are formed. As a result, each person’s immune system begins with a slightly different set of potential antibody receptors. Why Researchers Studied Naïve B Cells The study focused on naïve B cells because they represent the earliest stage of B cell development before any exposure to infections or environmental triggers. By studying this population of cells, researchers can observe the genetic blueprint that shapes the immune system before it is influenced by outside factors. Previous research had shown that genetic variation could affect antibody gene usage in total B cell populations circulating in the blood. However, those studies included both naïve cells and cells that had already encountered antigens. This made it difficult to separate inherited genetic influences from changes caused by immune responses. By isolating naïve B cells, the researchers were able to analyze the genetic control of antibody receptor diversity more clearly. This approach allowed them to examine the underlying structure of the immune repertoire before environmental influences altered it. How the Study Was Conducted The research team examined immune cells from more than two hundred individuals. Half of the participants had celiac disease, while the other half served as healthy comparison subjects. This design allowed the researchers to investigate whether genetic differences affecting antibody genes might also influence the risk of developing celiac disease. To carry out the study, scientists used advanced sequencing technology to analyze the receptor genes expressed by naïve B cells. They also examined genetic variations across the antibody gene regions of each participant’s genome. By comparing genetic variations with patterns of gene usage in antibody receptors, the researchers were able to determine how strongly inherited differences influenced the formation of the B cell receptor repertoire. Genetic Variation Strongly Influences Antibody Gene Usage The results revealed that genetic variation had a major effect on how antibody genes were used during B cell development. A large proportion of the genes responsible for forming antibody receptors showed clear associations with inherited genetic variants. In many cases, specific genetic variants were linked to higher or lower usage of particular gene segments when receptors were formed. This means that an individual’s genetic makeup can influence which antibody building blocks are most commonly used by their immune system. Overall, the study showed that most antibody genes involved in forming receptors were influenced by inherited genetic differences. These findings demonstrate that the early structure of the immune system is strongly shaped by a person’s genetic background. Connections to the Immune Response in Celiac Disease Celiac disease is an autoimmune disorder triggered by gluten, a protein found in wheat, barley, and rye. In people with the condition, the immune system reacts abnormally to gluten and produces antibodies that target certain components of the body’s tissues. One characteristic feature of celiac disease is the presence of highly consistent antibody responses against gluten-related molecules. These antibodies often arise from particular gene segments that appear repeatedly in different patients. The new study found that some of these same antibody gene segments are influenced by inherited genetic variations. In other words, genetic differences can affect how frequently these gene segments appear in the naïve B cell receptor repertoire. This observation suggests that the immune system of some individuals may be genetically predisposed to generate the types of antibody responses commonly seen in celiac disease. However, the study also found that these genetic variations alone do not appear to directly cause the disease. Genetic Differences Do Not Fully Explain Disease Risk Although genetic variations strongly influenced the structure of the B cell receptor repertoire, the researchers did not find strong evidence that these variations alone increase the likelihood of developing celiac disease. This finding highlights an important concept in autoimmune disease research. While genetics may shape the immune system’s potential responses, additional factors are usually required to trigger disease. Environmental influences, such as exposure to gluten, infections, and other immune signals, likely interact with genetic predisposition to determine whether autoimmune reactions develop. The immune system can therefore be thought of as having a genetically defined starting point that is later shaped by life experiences and environmental exposures. Broader Implications for Immunology Beyond celiac disease, the study provides important insights into how genetic variation shapes the immune system more generally. By demonstrating that inherited differences strongly influence antibody receptor formation, the research helps explain why immune responses vary from person to person. These differences may affect how individuals respond to infections, vaccines, and other immune challenges. They may also contribute to susceptibility to other autoimmune diseases in which antibodies play a role. The study also demonstrates the power of combining genetic analysis with immune receptor sequencing. This approach allows scientists to map how specific genetic variants influence immune cell behavior at a detailed level. In the future, this type of research may support personalized medicine approaches in which a person’s genetic profile helps guide prevention strategies or treatment decisions. Conclusion: Why This Research Matters for People with Celiac Disease This study provides new insight into how inherited genetic differences shape the earliest stages of the immune system. By showing that antibody gene variation strongly influences the repertoire of receptors on naïve B cells, the research helps explain why certain immune responses appear repeatedly in autoimmune conditions such as celiac disease. Although the study did not find evidence that these genetic variations alone cause celiac disease, it suggests that the immune system may be partially predisposed to produce the characteristic antibodies seen in the disorder. For people with celiac disease, this research highlights the complexity of the condition. The disease likely arises from a combination of genetic factors that shape immune responses and environmental triggers such as gluten exposure. Understanding how genetics influences immune receptor diversity may eventually help scientists identify individuals at risk earlier and develop new strategies to prevent or treat autoimmune reactions. As research in this field continues, it may open new pathways toward personalized approaches to managing immune-related diseases, including celiac disease. Read more at: nature.com
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