Happy St George's Day 🐲

Are you celebrating today? Let us know in the comments 👇

#StGeorgesDay

Meet our London Marathon Runners!

Jess, whose family is affected by adrenoleukodystrophy (ALD), is coming all the way from New Zealand to run for Alex TLC! You can read her story here:

https://www.justgiving.com/page/jess-winter-1

Thank you, Jess!

#AlexTLC #LondonMarathon #LondonMarathon2026

It's #StressAwarenessMonth

Today we're sharing the difference between stress vs anxiety.

If you feel you might benefit from talking to someone, please reach out by emailing counselling@alextlc.org 📩

alextlc.org/condition-management/services-and-equipment/mental-health/stress/

#AlexTLC

When you donate to the Alex TLC Community Weekend Appeal, you help people affected by leukodystrophy:

💙 Connect with others who truly understand
💙 Learn from experts in the medical and research field
💙 Create lasting memories together

https://www.justgiving.com/campaign/alextlc-cw

Meet our London Marathon Runners!

Colin is a dad to 3 boys affected by adrenoleukodystrophy (ALD). You can read his story here:

https://www.justgiving.com/page/colin-lovelady-1

Thank you, Colin!

#AlexTLC #HelpToCope #HelpToHope #LondonMarathon #LondonMarathon2026

Huge congrats to Tracey who won £195 in our April 50/50 Cash Draw! 💙

"It was super easy to sign up and supports a fantastic charity that is very close to my heart. The work that Alex TLC does is so important and I am happy to support them 🎉 "

https://alextlc.org/donate/5050-cash-draw/

#AlexTLC

Dr Charles Wade is a Clinical Research Fellow at University College London and a Neurology Registrar at the National Hospital for Neurology and Neurosurgery 🩺
Meet Dr Wade & the team:alextlc.org/nhs-england-iwmd-leukody...
#IWMDService #Leukodystrophy #NHSEngland #AlexTLC

Meet our London Marathon Runners!

Andy is running in memory of his son, Cameron (pictured), who sadly passed away last year after a two year battle with Krabbe’s Leukodystrophy 💙

https://www.justgiving.com/page/andrew-macrae-2

#AlexTLC #HelpToCope #HelpToHope #LondonMarathon #LondonMarathon2026

Parallel Windsor is a Festival of Inclusivity with challenge events for all ages, health conditions & abilities.

If you'd like to take part and raise funds for Alex TLC, find out more here: : https://www.parallellifestyle.com/windsor2026

#AlexTLC #ParallelWindsor #NoLimitsLiving

It's #StressAwarenessMonth

Today we're sharing the signs of stress.

If you feel you might benefit from talking to someone, please do reach out to our Counsellor, Mel, by emailing counselling@alextlc.org 📩

alextlc.org/condition-management/ser...

Attention adrenaline junkies!

We've teamed up with skyline events to offer you the chance to #skydive 😱 for Alex TLC.

Sign up here: booking.skylineskydiving.co.uk/book/v91p1dm3

#AlexTLC #SkylineEvents #CharitySkydive

Want to experience the thrill of a lifetime while making a difference? Take on a 170ft abseil at Trafford Palazzo, Manchester’s landmark leisure destination beside the Trafford Centre.

www.bigbangexperiences.com/event-details/big-bang-a...

Today we're saying a huge good luck to Ian, who is taking on the Mersey Tunnel 10k to raise funds for Alex TLC! You can read his story by clicking the link below:

https://www.justgiving.com/page/ian-ginge-davies

#AlexTLC #HelpToCope #HelpToHope #ALD #MerseyTunnel10K

Your donation helps bring together people who often feel lonely and isolated in daily life due to their condition. It gives them the chance to connect and make memories with others who truly understand, so that for one weekend they no longer feel 'rare'.

www.justgiving.com/campaign/alextlc-cw

April is #StressAwarenessMonth

If you feel you might benefit from talking to someone, please do reach out to our Counsellor, Mel, by emailing counselling@alextlc.org 📩

Find out more about stress: alextlc.org/condition-management/ser...

#AlexTLC

It's #NationalSiblingsDay! A day to recognise and celebrate the special bond between brothers and sisters.

We'd like to dedicate this post to all the siblings in our #AlexTLC community. You are all amazing 🌟

Tag a sibling in the comments to give them a special shout out.

#Leukodystrophy

Chag Sameach to all marking the end of Passover this evening.

#Passover

Our lucky 50/50 Cash Draw winner for April has won £195 with number 92!

Sign up now to be in with a chance of winning in the May draw 💰

https://alextlc.org/donate/5050-cash-draw/

#AlexTLC #HelpToCope #HelpToHope #CashDraw #CharityDraw #CashPrize #Win

Today is International Adrenal Disease Awareness Day.

80% of males with adrenoleukodystrophy (ALD) also experience adrenal insufficiency?

We are working to raise awareness about this critical connection. Please share & spread the word!

#adrenalinsufficiency #ald #addisonsdisease

Every egg added to our Easter Basket goes towards our Community Weekend Appeal, bringing joy, connection and empowerment to those affected by #leukodystrophy.

Please donate if you can, and help them create memories that matter:

https://visufund.com/alex-tlc-easter-basket

#AlexTLC #EasterBasket

We understand that research is a significant priority and source of hope for the leukodystrophy community 🔬👩‍🔬

We actively promote and support research in a number of ways: alextlc.org/research-and...

#AlexTLC #Leukodystrophy #HelpToCope #HelpToHope

Happy Easter from everyone in the Alex TLC Team 🐰🌼

We hope you are all having a lovely Easter weekend, and would love to see your photos in the comments 👇

#Easter #HappyEaster #EasterBunny #Spring #EasterEggs #EasterSunday

Want to be a part of something special this #Easter weekend? 🐣🐰

Every egg added to our Easter Basket goes towards our Community Weekend Appeal.

Please donate if you can, and help them create memories that matter:

https://visufund.com/alex-tlc-easter-basket

#AlexTLC #HelpToCope #HelpToHope

Exciting news, we've added more designs and colours to our awareness t-shirts and bags! Even better, Teemill are offering FREE postage all weekend, including bank holiday Monday!

alex-tlc.teemill.com/collection/new

Please share with the wider leukodystrophy community to help spread the word 💙

Today is Good Friday ✝️

Good Friday is celebrated by Christians to remember the suffering and death of Jesus Christ on the cross.

#GoodFriday

Please join us in saying a big thank you to Steve Caines and his family and friends for raising a fantastic £260 at a party hosted by Steve. We really appreciate their continued support 💙

#AlexTLC #HelpToCope #HelpToHope #ThankYou #Fundraising

To celebrate turning 40, Sam Cochrane is taking on the 40th Marathon Des Sables in support of little Sam Weale, who lives with ALD.

Wishing you the best of luck Sam. Thank you so much for all the work you’ve put into raising funds and awareness.

https://www.justgiving.com/page/forlittlesam

Wishing a peaceful and meaningful Passover to everyone celebrating.

Chag Pesach Sameach.


#Passover

As #WomensHistoryMonth draws to a close, we're giving a special shout out to Laura Rodriguez, Director of Biology at Minoryx Therapeutics. Minoryx is currently trialling Leriglitazone in adult male subjects with cerebral adrenoleukodystrophy.

alextlc.org/news/womens-history-month/#lr

#AlexTLC

This month we are sharing about Vanishing White Matter Disease (VWMD)💙

To find out more about VWMD: alextlc.org/condition/vanishing-whit...

We support all leukodystrophies - for support email info@alextlc.org 📩

#AlexTLC #VanishingWhiteMatterDisease