A pen and three blister packs of hydrocortisone tablets rest on a piece of torn notebook paper. The pen is wooden with a silver tip and clip, and it is printed with the URL "addisonsdisease.org.uk" and the Addison's Disease Self-Help Group logo. Below the image is the caption: “Exams, Addison's disease & adrenal insufficiency.”

A quote in a speech bubble reads: “We find that we have to juggle doses during exam season because of the stress & we also keep her well supplied with snacks. That was a huge advantage of the rest breaks & separate room, she could have a drink & snack halfway through if needed.” Below the quote it says: “Karen, mother to K.” Beneath this is a promo for a resource titled "When A Student Has Addison’s: A Guide for Schools and Parents" with a small image of the guide’s cover featuring a group of young people. The website link at the bottom reads: www.addisonsdisease.org.uk. The background is pale purple.

❓ "Should I take extra medication for exams?"

We all deal with stress differently, but students who are steroid-dependent and unable to mount a normal physiological stress response may need extra hydrocortisone medication.

➡️ www.addisonsdisease.org.uk/young-adults-addisons

Thank you to our team of 13 runners who took on the LLHM for us 💜

Together, they’ve raised almost £26,000 - the most we’ve ever raised from this event! We’re so grateful for every mile run and every donation given.

✨ Register your interest for 2027 🔗 www.addisonsdisease.org.uk/Event/llhm2027

The Spring issue of Keeping You Posted is here!

🌷Spring clean your injection kit
🚀The future of emergency injections
💉Bring Injection Training to your area
🚦New: Action Plan & 3-month prescriptions
🏆@socendocrinology.bsky.social round-up & research awards

🎉👏 our voices are stronger and have a greater impact when we work together! The awareness raised on this day and all throughout the year will make a real difference to the community worldwide ✨

Fundraising Campaign: Host an Addison’s Afternoon Tea This May - 01/05/2026 01:00:00 Bring people together to raise a cup, awareness and funds to support those affected by Addison’s disease and adrenal insufficiency. Host your tea party anytime this May, leading up to Addison’s Disease Day on 29 May.

Host an Addison’s Afternoon Tea this May! ☕🍰

It’s easy to get started! Simply choose a date, create your JustGiving page and use our FREE afternoon tea fundraising pack to host a fun and meaningful tea party.

💜 Sign up today 🔗 https://www.addisonsdisease.org.uk/afternoon-tea-2026

The Future of Emergency Hydrocortisone Injections for Adrenal Crisis A summary of progress towards an improved delivery technique for an emergency hydrocortisone injection to prevent or treat adrenal crisis.

“Why isn’t there an ‘epi-pen’–style option for a quick and easy emergency injection?”

With hydrocortisone sodium phosphate discontinued, this issue is more urgent than ever.

For answers to your questions, visit our new webpage ⬇️ www.addisonsdisease.org.uk/future-hydrocortisone-in...

A digital note titled "Managing the stress of a chronic condition" created at 13:30. On the left, above this title, is the word "Notes" in yellow with a back arrow button next to it. Opposite this, on the right, is a grey sharing button alongside a small circular logo for the Addison's Disease Self-Help Group (ADSHG). At the top right of the note, there are three icons which include the battery, Wi-Fi and signal strength symbols. The note provides supportive advice from the ADSHG and includes five points: 1. 💬 Connect with others who understand 2. ✍️ Knowledge is power, become an expert patient with the ADSHG resources 3. 🗓️ Create small daily routines to help you feel more in control 4. ✨ One size doesn't fit all, your journey may be different to others and that's ok 5. 💜 You're not alone At the bottom of the note, the source is credited as the Addison's Disease Self-Help Group (ADSHG).

To mark #StressAwarenessMonth, we want to share some reminders that can help ease the stress & anxiety that can be experienced when living with a chronic condition like Addison's & adrenal insufficiency.

More support ➡️www.addisonsdisease.org.uk/reducing-the-stress-of-a...

ADSHG 2026 London Landmarks Half Marathon Runners Our 'Fantastic 15' LLHM 2026 runners are making a huge difference by raising vital awareness and funds in aid of our charity.

Good luck to our amazing London Landmarks Half Marathon (LLHM) runners hitting the streets of London a week from today!

🏃 Support our team 🔗 https://www.justgiving.com/campaign/adshg2026llhm

We’ll be cheering you on every step of the way! Good luck team 👏

Happy Easter graphic from the Addison's Disease Self Help Group (ADSHG). A purple background features colourful bunting along the top, with the text "Happy Easter – From everyone at the ADSHG" in bold black and white lettering on a white banner with a teal highlight. The website address www.addisonsdisease.org.uk is displayed in the centre. At the bottom, the ADSHG logo has been made egg shaped and is surrounded by illustrated Easter eggs in pink, blue, yellow, and purple nestled in green grass.

Happy Easter from the ADSHG 🐣

We hope you have a lovely time, but don't forget we're still here to support you:
💬 Chat on our online forum ➡️ www.addisonsdisease.org.uk/online-forum
📮 Become a member so you don't miss news updates and our summer magazine ➡️ www.addisonsdisease.org.uk/magazine

Graphic in purple and teal branding reads “MAKE YOUR VOICE MATTER – Write to your MP!” followed by “Using our letter templates.” It highlights an urgent patient safety concern: the discontinuation of liquid hydrocortisone for preventing and treating life-threatening adrenal crisis. Text encourages sending an email or writing a letter to your MP. Includes Addison’s Disease Self-Help Group logo and an image of hydrocortisone injection crossed out.

📣 Make your voice matter - write to your MP!

The discontinuation of hydrocortisone sodium phosphate is a serious patient safety issue that puts people at risk. We've created letter templates for you to write to your MP to support our actions for change.

📝 Download here ⬇️
https://loom.ly/yR0adyk

Teal background with a large white rounded speech bubble containing a member quote in black text, framed by teal quotation marks. The message states that it is a thank-you note, following a recent emergency hospital admission. The member explains that the ADSHG information booklet they printed and took with them was an invaluable tool, helping them through several tough weeks. They say it was also widely used by healthcare staff, with multiple photocopies made, and that it saved them a lot of breath and effort when trying to explain Addison’s and its effects while unwell. At the bottom left is a photo of the ADSHG hospital folder, which contains a red alert cover note stating “Life-threatening Condition – Risk of Adrenal Crisis” and “Hospital Folder – Important Information Enclosed”. At the bottom in the centre is the Addison’s Disease Self-Help Group logo in white. There is also a white hand-drawn style arrow in the bottom right corner, suggesting to swipe or continue to the next image.

Teal background with a large white rounded speech bubble containing the second half of a member quote, shown in black text with teal quotation marks. The text explains that the person will definitely use the ADSHG information booklet again in the future, especially when navigating emergency admission and hospital stays. They add that they already keep a copy in their overnight bag in case they need to be admitted again. Below the quote, three short statements appear in white text: “Be aware. Be prepared. Be understood.” Beneath this, a bold call to action reads “DISCOVER OUR FREE RESOURCES,” followed by a white hand-drawn arrow pointing toward a website link. The URL “www.addisonsdisease.org.uk/publications” is displayed inside a white rectangular box at the bottom. On the left in the middle, is a photo of the ADSHG hospital folder, which contains a red alert cover note stating “Life-threatening Condition – Risk of Adrenal Crisis” and “Hospital Folder – Important Information Enclosed”.

Feedback like this means so much to our small charity & we're so pleased to hear how our resources have helped when it matters most. Thank you to our member for sharing 💜

📥 Explore our range of free downloadable publications or order from our shop🔗 https://www.addisonsdisease.org.uk/publications

Catch up on our Injection Training & Sick Day Rules event last Saturday!

Supported by Endocrine Nurse Specialists, people living with adrenal insufficiency came together for hands-on practice & refresher on Sick Day Rules, building confidence to act in an adrenal crisis.
➡️https://loom.ly/UmUT4bM

Beckenham/South London Local Meet-Up: 9 May 2026 - 09/05/2026 14:00:00 Join Jan at their local meet-up in Beckenham on Saturday 9 May 2026

Join our wonderful volunteer host, Jan, for a warm and welcoming local meet-up in Beckenham! 💜

📅 Saturday 9 May, 2 - 5pm
📍 Beckenham, South London
👥 ADSHG Members Only

✨ RSVP here 🔗https://www.addisonsdisease.org.uk/beckenham-9-may

Text at the top in an arc reads: "Remember to Change Your Clocks!" At the bottom, the text reads: "Make sure your medication doses match the new times of day." In the centre is an illustration of an alarm clock shaking in teal and purple, which are the colours of the Addison's Disease Self-Help Group (ADSHG). Alongside this is a grey pill packet and the ADSHG circular logo.

Tomorrow at 1am the #ClocksGoForward ⏰

Here are some reminders for those with Addison's & adrenal insufficiency:
🌙 Change your clocks before bed so your morning dose matches the new time.
💊 On Sunday, make sure the clocks in your house are correct.
🔔 Check alarms you have for remembering doses.

Paramedic Training: 2 April 2026 - 02/04/2026 12:00:00 A Zoom session focusing on adrenal crisis and the emergency management of steroid dependency for patients with Addison's disease and adrenal insufficiency.

Last chance to sign up for our next Paramedic Training session ⏰

Learn more about Addison's, adrenal insufficiency & the emergency management of adrenal crisis.

📅 Thurs 2 April 2026, 12-1.15pm
⬇️ Free! Register now
www.addisonsdisease.org.uk/Event/paramedic-training...

#ParaCPD

@aace.org.uk org is supporting further excellent, free #adrenalinsufficiency information & training sessions hosted by
@addisonsdisease.bsky.social UK - available for ALL #paramedics & clinical #ambulance personnel.

Register for the next one (2 April) at addisonsdisease.org.uk/adshg-parame...

The front cover of the Adrenal Insufficiency Action Plan leaflet displayed on a fridge, held by a red magnet reading "Risk of Adrenal Crisis – Steroid Dependent – Life-threatening condition" from the Addison's Disease Self-Help Group. Text overlay reads "Keep it handy and share with others!" and "Give a copy to your GP, family & friends, colleagues or anyone you spend time with."

A copy of the "Adrenal Insufficiency Action Plan" leaflet fanned out on a wooden surface. This leaflet is co-branded by the Addison's Disease Self Help Group and The Pituitary Foundation. The three-panel adrenal crisis action plan leaflet shows the daily steroid medication (green), sick day rules (amber), and emergency adrenal crisis treatment, including dosing guidance and urgent hospital instructions (red).

When you live with a rare disease like adrenal insufficiency, it can feel like you're constantly explaining your condition & how it's managed to others.

So pick up a copy of the new Adrenal Insufficiency Action Plan to easily share your vital info.

👉 www.addisonsdisease.org.uk/adrenal-insu...

Teal graphic from the Addison’s Disease Self Help Group and The Pituitary Foundation reading “What is the Adrenal Insufficiency Action Plan?” with a note to “Swipe to discover the ‘traffic light’ system to help you manage your condition,” alongside an illustration of a traffic light showing red, amber, and green.

The green section of the Adrenal Insufficiency Action Plan leaflet, showing Section 1 "My Daily Medication." The page includes a table for recording daily steroid medication times, doses, and medications, plus an allergies section and information about carrying spare tablets and an emergency injection kit. Beside the leaflet, a graphic reads "GREEN" with a traffic light icon, and the text "Explains your daily medication & it's time-critical nature."

The amber section of the Adrenal Insufficiency Action Plan leaflet, showing Section 2 "My Sick Day Rules." It covers when to increase steroid doses, recommended doses for hydrocortisone, prednisolone, and Plenadren/Efmody users, and when to use an emergency injection and go to A&E. Beside it, a graphic reads "AMBER" with a traffic light icon, and "Explains your Sick Day Rules & recommended doses in a 24hr period."

The red section of the Adrenal Insufficiency Action Plan leaflet, showing Section 3 "In an Adrenal Crisis." It lists signs of adrenal crisis, urgent emergency actions (including injecting 100mg hydrocortisone and calling 999), and hospital treatment protocols including IV hydrocortisone and saline infusion. Beside it, a graphic reads "RED" with a traffic light icon, and "Signs of adrenal crisis & emergency actions, treatment & monitoring."

The Adrenal Insufficiency Action Plan w/ @pituitaryorg.bsky.social inc key guidance using a traffic light system🚦

✅ Daily meds
⚠️ Sick Day Rules
🚨 Adrenal crisis

➡️www.addisonsdisease.org.uk/adrenal-insufficiency-ac...

Purple graphic with Addison’s Disease Self Help Group logo and the headline “News Update: Liquid Hydrocortisone Discontinued.” Text explains that hydrocortisone sodium phosphate 100mg/1ml injection has been permanently discontinued. An image of the product box and ampoules is shown with a red cross over it. Footer text directs users to the website for more information.

Purple graphic with Addison’s Disease Self Help Group logo. Text explains that patients should order hydrocortisone sodium succinate 100mg powder for solution for injection (previously Solu-Cortef) when renewing emergency kits. Includes images of injection training materials, a person administering an injection, and a training video. Footer directs users to the website for full details and support resources.

Advanz Pharma has confirmed that hydrocortisone sodium phosphate has been permanently discontinued in the UK.

💉If you have adrenal insufficiency, including Addison’s, you'll need to order the alternative, hydrocortisone sodium succinate, for emergency injection kits.
➡️ https://loom.ly/1l2GmG0

Two blue and white NHS prescription bags on a white background. The prescription bag on the right is smaller in size and sits slightly in front of the one on the left, which is larger. The text on the bags reads "Prescription" in large white letters, and there is a green cross symbol to the right of this, with the words "Providing NHS services" underneath. In the bottom-right corner of the bags is the NHS logo. In the centre, and in front of the white prescription bags, is a white box with rounded corners. The headline in the middle of this box is in teal and reads "Reminder" in a simple, bold font. Below this it says, "Request a repeat prescription" in the same font, but in a smaller size and a dark grey colour. The bottom of the white box is divided into two sections, with the words "Order today" on the left side, and "Medication ready" on the right side. Placed over the top edge of the white reminder box, is the circular logo for the Addison's Disease Self-Help Group (ADSHG).

⏰ In preparation for the Easter weekend, make sure you have enough of your essential medication. This includes extra steroid medicine in case you become unwell and an emergency injection kit.

For more Addison's admin tips, read our magazine 🔗
https://www.addisonsdisease.org.uk/magazine-winter-2026

Shoreham-by-Sea Local Meet-Up: 18 April 2026 - 18/04/2026 11:00:00 Join Wendy at their local meet-up in Shoreham-by-Sea on Saturday 18 April 2026

Shoreham-by-Sea Meet-Up 🤗

Join our wonderful volunteer host, Wendy, for a warm and welcoming local meet-up in Shoreham-by-Sea.

📅 Saturday 18 April, 11am - 1pm
📍 Shoreham-by-Sea, West Sussex
👥 ADSHG Members Only

👉 RSVP here 🔗 www.addisonsdisease.org.uk/shoreham-by-sea-apr-26

This #FundraiserFriday, please join us in thanking Gareth, Harvey and Emer, who ran the Eastbourne Half Marathon to raise funds for our charity – raising over £1,500 (and counting!) 🎉

✨ Donate here 🔗 www.justgiving.com/page/gareth-morgans-2

Graphic promoting a “3-month prescription request letter” for people with adrenal insufficiency or Addison’s disease. The image asks “Having difficulties getting a 3-month supply of essential medication?” and says “Our new letter is here to support you.” It shows a preview of the letter template addressed to a GP, including sections for patient details and requests for longer prescriptions and emergency medication. A “NEW” envelope icon appears on the right. At the bottom, it notes affiliation with the Society for Endocrinology and includes a call to action: “Download and share with your GP.”

📄 New! Share with your GP our 3-Month Prescription Request Letter explaining why you need a 3-month supply of steroid medication.

👉 www.addisonsdisease.org.uk/adrenal-insufficiency-ac... | @socendocrinology.bsky.social

British Endocrine Society (BES) Conference 2026 Hear how ADSHG made an impact at the Society for Endocrinology BES Conference 2026! We highlighted the challenges faced by people living with adrenal insufficiency and collaborated with healthcare professionals to drive improvements in patient safety and quality of life.

Read our roundup of @socendocrinology.bsky.social BES Conference 2026!

From receiving a ‘Highly Commended’ award to presenting two research grants & vital conversations with clinicians - all to represent people with adrenal insufficiency.
https://loom.ly/05mDzso

Mauve's Story: My Addison's Journey In 2023, Mauve was diagnosed with Addison's aged 29. As a painter, Mauve uses painting to story tell and encapsulate memories onto canvas. Mauve cares deeply for the Addison’s community and shares her story to advocate and push for better medical treatment and management of Addison's.

💬 "My steroids are my life force. If I want to live, it is my responsibility to give my body what it needs so I can do the things I want to do."

In 2023, Mauve was diagnosed with Addison's at the age of 29.

Read her story ⬇️
www.addisonsdisease.org.uk/blog/mauves-story-my-add...

Fasting with Adrenal Insufficiency A patient leaflet for people living with adrenal insufficiency who are thinking about fasting for Ramadan. It gives tips on reducing the risks of becoming ill if you decide to fast, when it's advisable not to fast and offers alternatives to those who are considered too high risk for fasting.

Ramadan Mubarak to everyone in our community who is observing 🌙

As Ramadan continues, our "Fasting with Adrenal Insufficiency" patient guidance leaflet is here to help you manage your health.

📥 Download your free copy ⬇️
www.addisonsdisease.org.uk/fasting-with-adrenal-ins...

Meet Our 2026 LLHM Runners! 🏃‍♂️🏃‍♀️

We’re beyond excited to introduce our amazing fundraisers who are taking on the LLHM this April in aid of our charity!

👉 Support the team here 🔗 www.justgiving.com/campaign/adshg2026llhm

Show your support today - every donation makes a difference! 💜

A cream background with an illustrated circular patch in the middle. There is a navy inner circle with a half moon and stars inside it, which is surrounded by a white thick outline with black text that reads, "resting can be fighting too." The whole design has a thin navy outline to frame it. By @ThisThingTheyCallRecovery

It's #NationalNappingDay - a day those with adrenal insufficiency can relate to!

Pre diagnosis, 94% of people report overwhelming exhaustion which we describe as tired in a way no amount of sleep will fix 💤 www.addisonsdisease.org.uk/diagnosis-infographic-with-comics

📸 @thisthingblog.bsky.social

Reading Member Get-Together: 21 March 2026 - 21/03/2026 13:00:00 Join our first Member Get-Together in 2026, to be held just outside Reading on Saturday 21 March. Find out more and how to get your tickets!

🎉 Only 2 weeks to go!

Our Member Get-Together is fast approaching and we can’t wait to welcome you for a day of connection, support, and talks from Endocrinology experts.

📆 Sat 21 Mar 1-6pm
📍 Reading
🎟️ RSVP ⬇️
www.addisonsdisease.org.uk/Event/reading-member-get...

Tilly's Story: The Double Life Tilly reflects on the “double life” of living with Addison's, celebrating major life moments while simultaneously calculating cortisol doses, managing symptoms and dealing with emergencies. She explains how her book launch became another balancing act, resulting in her being admitted to hospital in adrenal crisis just 48 hours later.

📚 On #WorldBookDay, we catch up with @thattillyrose.bsky.social. In her blog, she shares the double life of Addison's, celebrating major life moments while managing symptoms & dealing with emergencies. www.addisonsdisease.org.uk/blog/tilly-the-double-li...