11 months ago
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Posts by LCAP (Long Covid Action Project)
Now on the main feed, my interview w/ @joshuapribanic.bsky.social + @amymitchellart.bsky.social from @lcap.bsky.social. They discuss their groundbreaking new book, A National Treatment and Research Agenda for Long Covid. /1
www.lastborninthewilderness.com/episodes/lca...
11 months ago
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11 months ago
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Now available to all members (free and paid), my interview w/ @joshuapribanic.bsky.social @amymitchellart.bsky.social, discussing #LongCovid, #viralpersistence, & the groundbreaking new @lcap.bsky.social book, A National Treatment and Research Agenda for Long Covid.
www.patreon.com/posts/viral-...
11 months ago
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There are two kinds of people in this world: Those who have Long Covid and those who don't know they have it... yet. While the world was talking about the leak of the century, Trump and RFK Jr gutted research on it.
www.the-sentinel-intelligence.com/p/we-dont-ha...
1 year ago
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A copy of LCAP's book A National Treatment and Research Agenda for Long Covid on a table with pens.
My book arrived from LCAP's LongCovidBook.shop!
I'm going to highlight passages and add a few comments before giving it to my doctor.
It's a great tool to share knowledge and start a discussion.
Time to Change the Agenda for Long Covid! ⚠️⏱️💥
Read the 14! 📕
1 year ago
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LCAP CURE Committee for hours and hours of research and writing
Public Herald Studios for printing and distribution of book and merch
Copy Editor Mitch Raney
The 1989 Treatment Action Group (TAG) and ACT-UP for AIDS for the inspiration.
1 year ago
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You can also download a copy for free.
This was a huge effort by Long Covid patients who pulled off a miracle in completing this.
LCAP wants to acknowledge and thank everyone who helped including:
1 year ago
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Advertisement
Book 📕 “A National Treatment and Research Agenda for Long Covid”
Time to Change The Agenda for Long Covid ⚠️⏱️💥
Read the 14! 📕
For Long Covid Awareness Month, LCAP has published the new book “A National Research and Treatment Agenda for Long Covid,” available here: ✅ LongCovidBook.shop
#LongCovidAgenda #LCAgenda #LongCovidAwareness #LongCovidKids #CureLongCovid
1 year ago
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LCAP hopes you will join us this month as we start a new chapter to empower people with Long Covid.
Patients must lead the way to #CureLongCovid.
1 year ago
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March is #LongCovidAwarenessMonth 📣 signaling a time to act! LCAP joins with all victims of this dreadful disease to commemorate yet another year of no approved diagnostics or treatments.
This story needs action if we’re going to find a better ending.
(FULL SHORT FILM) youtu.be/Yx8cXasJnjg?...
1 year ago
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From Stat News: "House lawmakers voted 366-34 to pass a spending bill on Friday. The bill, which funds the government for three months, still needs to pass the Senate and be signed by President Biden. Funding for under-the-radar public health programs survived in the bill, as did a short-term extension of older adults’ ability to access telehealth from their homes. But lawmakers were unable to accomplish any health care goals this Congress beyond the status quo. After two years, all of Congress’ work on legislation to rein in prescription drug middlemen called pharmacy benefit managers came to nothing. Lawmakers introduced 95 bills related to PBMs in that timeframe, according to Congress’ legislative database. It’s a gift for the PBM industry that has survived nearly a decade of scrutiny untouched — and the massive insurers that own them. The biggest PBMs are UnitedHealth Group’s Optum Rx, CVS Health’s Caremark, and Cigna’s Express Scripts."
From Stat News: "Doctors lost out on their holiday bonus. Medicare pay for doctors will be 2.8% lower on Jan. 1, after lawmakers ignored doctors’ calls to continue bonus payments that began during the Covid-19 pandemic. Legislation to address legal tactics that pharmaceutical companies use to delay competition for expensive medicines failed too, five years after the debate began. Provisions of a law passed to prevent pandemics expired, less than five years after society shut down following the deadliest pandemic in a century. And even as more than 100,000 Americans died from drug overdoses last year, a law to address the opioid crisis lapsed. Hundreds of pages of smaller provisions were slashed in the rush as well, including provisions aimed at helping kids with cancer, opening up Republicans to attacks from Democrats. Medicare coverage for blood tests to screen for cancer went in the trash, too."
OK, folks, here's confirmation from Stat News: yes, the CR includes a 3 month telehealth extension (it will be gone in a blink; we need to ORGANIZE, PRONTO.) But losers are:
🔹️PBM reform
🔹️Medicare reimbursements (docs may drop us)
🔹️Cheaper Rx
🔹️Pandemic prevention
🔹️Addiction Response...
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1 year ago
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My letter to Congress is sent, and I also wrote this thread:
x.com/ebony_dog/st...
1 year ago
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Please sign this petition
1 year ago
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I sent mine already and its super easy. We have to save telehealth!
1 year ago
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SAVE TELEHEALTH! BLITZ ACTION! Deadline Dec 20th:
#Telehealth coverage expansion created as part of the COVID-19 Health Emergency is set to expire Dec 31 unless Congress acts now. Access to safe medical appointments is on the line! Send a letter to Congress:
actionnetwork.org/letters/save...
1 year ago
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Advertisement
Thank you to Amanda Crist, Jessica Offir, PhD & LCAP’s team who worked collaboratively to get this action out 🔥 and to everyone who’s been writing letters and calling on congress to save telehealth! Solidarity ❤️
1 year ago
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BLITZ💥ACTION RELEASED! Tell congress to SAVE TELEHEALTH ☎️ before they leave office! Telehealth coverage is set to expire Dec 31 unless Congress acts now. Access to safe medical appointments is on the line! Send your personalized letter to Congress by Dec 20 3pm EST: actionnetwork.org/letters/save...
1 year ago
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New interview: Antivirals Now @lcap.bsky.social
LCAP activists Corsi Rosenthal and Clean Air, along with journalist and LCAP founder @joshuapribanic.bsky.social, discuss the recent direct action to disrupt the NIH's first meeting for the RECOVER Initiative.
on.soundcloud.com/yCpmWsYuTfxX...
1 year ago
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Antivirals Now / Long Covid Action Project: interview with NIH protest activists and discussion of FBI Cointel Pro tactics used to hinder progress.
Listen on Spotify :
open.spotify.com/episode/0yA6...
1 year ago
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1 year ago
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🎙️ Just dropped! The latest podcast episode from @lastbornpodcast.bsky.social interviews two Long Covid activists who organized a direct action at NIH w/ LCAP 🔥🥷
This is a must-listen! Grab your headphones 🎧 Tap the link for Last Born in the Wilderness! 🔗 on.soundcloud.com/T7TZDm2jzTG9...
1 year ago
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1 year ago
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Advertisement
I just joined a few days ago. Looking for good LC follows on Blue Sky. Who do y'all recommend?
@joshuapribanic.bsky.social @properchels34.bsky.social @pikewielder.bsky.social @lcap.bsky.social @saltykid41.bsky.social @rubyslippahs.bsky.social @covidcastaways.bsky.social @jammer.bsky.social
1 year ago
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Please sign and share to help us HEAL from Long Covid.
actionnetwork.org/letters/tell...
2 years ago
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Declare Long COVID a National Emergency
In November 2023, David Cutler, health economist and professor of economics at Harvard University, verified to Public Herald’s investigative journalist @JoshuaPribanic
(also founder of LCAP) that an ask of $28 billion for Long Covid is reasonable, “an amount equal to HIV funding, i.e. $28 billion,
2 years ago
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Long COVID protest in Washington DC, US Photo: @JoshuaPribanic
Long COVID protest in London, UK Photo: @FoggBrain
Long COVID protest in Melbourne, Australia Photo: @MiquetteAbercr2
Long COVID protest in Madrid, Spain Photo: @sebajones
Today is #LongCOVIDAwarenessDay. There have been protests held in the US, UK, Australia, France, & around the world.
Long COVID is a public health crisis that is killing people, preventing people from working, & excluding people from society.
Governments need to stop their denial & start acting!
2 years ago
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NIH Principal Investigator Dr. Paul Utz, Stanford University School of Medicine, discloses at 10:40 in RECOVER presentation that Long Covid rates for first SARS2 infection are 10% based on 1000 people enrolled & monitored @NIH - rare data unique to US
From @JoshuaPribanic on X:
OP: threadreaderapp.com/thread/18424...
Link to YT vid: youtu.be/1rlb_jsYbAY
1 year ago
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