Black and white cat behind the bars of a pet carrier box, looking sorry for himself
This old man vomited A LOT and then didn't eat or drink anything for 4 days last week. Even the stress of having a sick pet was enough to wipe me out #MEcfs ππΏ
Black and white cat behind the bars of a pet carrier box, looking sorry for himself
This old man vomited A LOT and then didn't eat or drink anything for 4 days last week. Even the stress of having a sick pet was enough to wipe me out #MEcfs ππΏ
For the #ME orgs
especially, most recently
@meassociation.org.uk
#pwME #MEAwareness #MEcfs
I love wagtails!
I'm so sorry (and furious) that no one has told you to stop pushing through.
Stop. Rest. Pace.
@mrjamesob.bsky.social the cladding scandal is ongoing. We're still here, stuck in flammable homes with no idea of when they will be remediated. We were told 2020, then 2025. Now no update. Can't sell. Can't move on with our lives.
Dizzy day 2
Black on white background poster with QR code in the bottom right corner reading: WHAT IF YOU LOST HALF THE HOURS IN YOUR DAY? YOUR WEEK? YOUR YEAR? ME/CFS causes a 50% reduction in pre-illness activity (at least). Every COVID infection increases your risk. It can happen to anyone. Practice self care & protect your community Wear a mask
WHAT IF YOU LOST HALF THE HOURS IN YOUR DAY?
YOUR WEEK? YOUR YEAR?
#ME/CFS causes a 50% reduction in pre-illness activity (at least). Every COVID infection increases your risk. It can happen to anyone.
Practice self care & protect your community.
Wear a mask
This & more ko-fi.com/saltydyke/shop
Woken at 5am with migraine π«
π₯³π«π
@sharonhodgsonmp.bsky.social @tessamunt.bsky.social This is exactly why pwME like Savannah are treated so terribly
@ashleydaltonmp.bsky.social
Thank you for everything you are doing for Savannah. How are you coping? Hope you are allowing yourself some rest π
ππ«
My budget is 9, I'm moderate... π€·ββοΈ
A four panel comic with a teal background. image is of struggling white skinned hands clasped by a cable tie and resulting injuries. ME is like a cable tie. The harder you fight it the tighter its grip
A metaphor for PEM.
New short comic about ME.
#Comics #MEcfs #Disability
#DisabledArtists #pwME
#MyalgicEncephalomyelitis #GraphicMedicine
At what point into a 2 week migraine do you just accept that this is how it is now?
Is this my new baseline?
#Migraine #MEcfs
The name is demeaning and dangerous but we still need to use it so that those people still dx cfs (especially UK) can find us
Migraine means I can hear and smell everything (sometimes things that aren't real) .
M.E means I dont have the energy to change the litter tray or clean the dripping shower head ππ€―
#pwme and #pwlc - tried hyperbaric oxygen /oxygen therapy at a specialist centre? Please could you fill in this questionnaire. Positive and negative experiences are all important to share. As always the survey can be saved and continued at another time. Thanks @physiosforme.bsky.social
@tessamunt.bsky.social thank you for raising awareness of Savannahβs situation, and severe M.E π
I am scared that the damage done by the Vyepti infusion is permanent.
My M.E and fibro are worse because of the insomnia.
The chronic migraine is still as bad but now with the addition of hypnic migraine.
#MEcfs #Migraine
My bowels stopped working when I was mild...
@tessamunt.bsky.social what can we do?
NEW π¨ A South London hospital is still putting severe ME patient Savannah's life at risk and a clinician who psychologises ME might be why.
www.thecanary.co/uk/analysis/...
Someone has put templates and addresses together to
- Email the hospital leadership.
- Email the CQC (regulator).
- Email local MPs (and your own MP).
Please do so if you can!
#mecfs #greatestMEdicalScandal
Or the cats vomit π€’ πΌ
I am trying to do what's right for my body and my health, but I cannot control the weather π«