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Posts by FRONTIER Research Group

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⭐ Welcome to our new Co-Director Professor Ben Colagiuri ⭐

We sat down to talk to Ben about his new role and what he's looking forward to at Brain and Mind Centre

Read our 'In Conversation with Ben' here -> bit.ly/InConversati...

4 weeks ago 4 2 0 0
Woman's headshot while she wears a blazer in front of a blurred castle

Woman's headshot while she wears a blazer in front of a blurred castle

Start your year by revisiting one of our older episodes 🎙️
Dr. Muireann Irish shares how dementia changes memory, imagination, and joy.

Listen here: open.spotify.com/episode/0iuX...

3 months ago 9 4 0 0
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Have you or someone you know been diagnosed with young onset dementia (onset < age 65)?

We’re conducting a research study on Australian's experiences accessing care and support (e.g. the NDIS) after diagnosis.

Learn more or take part: redcap.sydney.edu.au/surveys/?s=Y...

@fionakumfor.bsky.social

1 month ago 6 7 0 0

@ppaphasiaawareness.bsky.social
@brainandmindcentre.bsky.social
@utas.edu.au
@sydney.edu.au

1 month ago 0 0 0 0
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Primary Progressive Aphasia Awareness Day Australia 2026

Free webinar: Friday 10 April, 12:00–1:30pm AEST (Zoom)
Hear from specialist clinicians on how early intervention supports people with PPA, including younger‑onset, to keep living well and doing what matters.

Register: bit.ly/PPAAwareness...

1 month ago 3 1 1 0
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Let us Grow: Life, Creativity and Connection Attend this free webinar for insights from people who have living experience with young onset dementia and how they challenge themselves to live their best life

YOD‑SIG is hosting its first 2026 webinar on 12 March, 12:30–1:30pm AEDT.

Let us Grow explores how creative and inclusive activities can support people with young onset dementia to live meaningful, connected lives.

Register: events.humanitix.com/let-us-grow-...

#YOD #dementia

1 month ago 0 0 0 0
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Finding Voice Through Loss: how a gift is empowering dementia care A widow’s gift to the Brain and Mind Centre is supporting vital communication therapy for people with Primary Progressive Aphasia, transforming personal loss into lasting impact for dementia care and ...

We’re pleased to share the personal story of Siân Jarrett. Her generous philanthropy has been instrumental in supporting the provision of speech therapy to so many through FRONTIER’s Speech Pathology Clinic, the PPA Communication Project.

go.sydney.edu.au/aenRtO

@brainandmindcentre.bsky.social

1 month ago 7 2 0 0
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Some behaviors related to FTD can lead to unexpected interactions with the criminal justice system. This month’s Quick Question asks whether you or your loved one have experienced this. Share your voice: ftdregistry.org/quick-questi...

#endFTD

2 months ago 1 1 0 0
FTDToolkit A novel online platform to monitor symptom progression in Frontotemporal Dementia and carers’ wellbeing

Professor Eneida Mioshi and her team at @uniofeastanglia.bsky.social (UK) are developing a free, online intervention designed to support family carers of people living with #frontotemporaldementia (FTD). To participate or learn more about the program, visit ftdtoolkit.org

#endFTD

2 months ago 2 2 0 0
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📣 The ABI Communication Lab is excited to invite you to our next Sydney Aphasia Social Group event! 💬

🗓 Tuesday, 24 February 2026
⏰ 11:00 AM – 1:00 PM
📍 Level 4, Susan Wakil Health Building, The University of Sydney

👉 Register here: events.humanitix.com/sydney-aphas...

2 months ago 1 1 0 0
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Snowy Valleys Council 2026 Australia Day Awards Announced The 2026 Snowy Valleys Council Australia Day Award recipients were announced at a special dinner ceremony held on Saturday 24 January, with invited finalist nominees joining Councillors and dignitarie...

Congratulations to Jane Dean on being named the 2026 Snowy Valleys Citizen Achievement Award! Jane, Stephen, and their family have made an extraordinary contribution to raising awareness and funds for #FTD research within the Tumut community. #endFTD

www.snowyvalleys.nsw.gov.au/News-Media/S...

2 months ago 2 1 0 0

It's an incredible achievement! Please pass on our congratulations to Henry!

2 months ago 1 0 0 0
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Modeling contributions of cognition and apathy to functional impairment in younger‐onset dementia INTRODUCTION Overlaps in symptom presentation limits the capacity to predict functional impairment and future care needs in younger-onset dementia syndromes. METHODS A general additive model (GAM)...

New paper by @samuelwarren.bsky.social and colleagues,

Modeling contributions of cognition and apathy to functional impairment in younger-onset dementia

doi.org/10.1002/dad2...

@alzdemjournals.bsky.social
@muireannirish.bsky.social
@brainandmindcentre.bsky.social
@sydney.edu.au

#endFTD

3 months ago 6 2 0 0
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Understanding the multifaceted nature of quality of life in dementia using a transdiagnostic network analysis approach Efforts to improve quality of life (QOL) in dementia depend on its accurate conceptualization and assessment. We employed a data-driven network approach to examine the structure of relationships be...

New paper by @lauradewitte.bsky.social & Candy Cheung

Understanding the multifaceted nature of quality of life in dementia using a transdiagnostic network analysis approach

doi.org/10.1080/1360...

@muireannirish.bsky.social
@tandfresearch.bsky.social
@brainandmindcentre.bsky.social
@sydney.edu.au

3 months ago 5 1 0 0

Well done!

3 months ago 1 0 0 0
Image displaying a laboratory scene with two individuals working, coinciding with an announcement 'GemVax & Kael Announces Results from Phase 2 PSP Study'

Image displaying a laboratory scene with two individuals working, coinciding with an announcement 'GemVax & Kael Announces Results from Phase 2 PSP Study'

GemVax & KAEL report positive safety and tolerability data for its Phase 2 trial for GV1001 in people with #PSP. The trial also showed some potential efficacy for the drug to slow disease progression.

➡️ Click here to learn more: https://bit.ly/44qUxcM

4 months ago 4 1 0 0
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Our 2025 group photo. Big smiles, big plans for the year ahead.

#frontotemporaldementia #primaryprogressiveaphasia #ftd #ftld #ppa #endFTD

@brainandmindcentre.bsky.social
@sydney.edu.au

4 months ago 2 0 0 0
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The #UniversityofSydney SPEECH Clinic is now taking on clients interested in the 10-week convers-ABI-lity program!

The SPEECH Clinic will be taking on new adult clients and will be offering assessment and treatment sessions.

If interested, please reach out to petra.avramovic@sydney.edu.au

4 months ago 1 1 0 0
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The Nature Partner Journals Dementia are looking for essays from clinicians and researchers who have experience with all forms of Dementia. The essays will be collated together to create "The Human Connection". Learn more here: ow.ly/9yrK50XAyH1 #researchers #journal #essays #personalexperiences

4 months ago 3 2 0 0
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Irene and Lottie find the right support at a challenging time Irene and Lottie find essential support and resources through Carer Conversations to navigate the challenges of caring for a loved one with Frontotemporal Dementia.

We’re deeply grateful to #DementiaSupportAustralia and #AFTDA for creating Carer Conversations, a lifeline for people across Australia who are supporting someone living with #frontotemporaldementia.

www.dementia.com.au/resource-hub...

#endFTD

4 months ago 2 0 0 0

This is a great initiative!

4 months ago 2 0 1 0

What a great initiative!

4 months ago 0 0 0 0
Promotional image for a webinar titled "FTD Research 2025: Paving the Path Towards Effective Treatments" scheduled for December 10, 2025, featuring Penny Dacks, AFTD Chief Scientific Officer and FTD Disorders Registry President, and Chiadi Onyike, AFTD's Medical Advisory Council Chair and Johns Hopkins University's Frontotemporal Dementia and Young-Onset Dementias Clinic Director. Sponsored by Passage Bio.

Promotional image for a webinar titled "FTD Research 2025: Paving the Path Towards Effective Treatments" scheduled for December 10, 2025, featuring Penny Dacks, AFTD Chief Scientific Officer and FTD Disorders Registry President, and Chiadi Onyike, AFTD's Medical Advisory Council Chair and Johns Hopkins University's Frontotemporal Dementia and Young-Onset Dementias Clinic Director. Sponsored by Passage Bio.

Join us for an inside look at the progress shaping FTD research. On 12/10 at 3 pm, AFTD experts Dr. Penny D. and Dr. Chiadi O. will discuss advancements from 2025 & the momentum driving us toward effective treatments in the years ahead. Sponsored by Passage Bio

Register now: https://bit.ly/4rfNmOq

5 months ago 2 2 0 0

Thank you for the great work that you do.

5 months ago 0 0 0 0
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Another successful FRONTIER Charity Golf Day in Tumut! We’re deeply grateful to the Tumut community and the Dean family for their incredible support. Your support makes it possible for us to advance our understanding and treatment of #FTD.

#endFTD #PPA

@brainandmindcentre.bsky.social

5 months ago 3 0 0 0
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Congratulations, Rebecca!

5 months ago 1 0 1 0

This is an excellent article. Thanks for sharing.

5 months ago 1 0 0 0
Promotional banner for Alector Clinical Trial Results Townhall on Thursday, November 6, 2025, at 3:00 p.m. ET, featuring Carmela Tartaglia and Penny Dacks from The Association for Frontotemporal Degeneration. Includes headshots and titles of the speakers.

Promotional banner for Alector Clinical Trial Results Townhall on Thursday, November 6, 2025, at 3:00 p.m. ET, featuring Carmela Tartaglia and Penny Dacks from The Association for Frontotemporal Degeneration. Includes headshots and titles of the speakers.

Results from Alector Therapeutics’ Phase 3 trial for Latozinemab (AL001), designed for people with FTD caused by GRN variants, have raised important questions for many. Join us on Nov. 6 for a live discussion about what these results mean and what’s next for FTD research: https://bit.ly/3Lw3Sco

5 months ago 3 2 0 0
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ISFTD Webinar on AI in FTD: From Neuropathology to MRI to Clinic - ISFTD

Join ISFTD's Webinar on AI in FTD: From Neuropathology to MRI to Clinic

Wednesday, 29th October, 2025 at 11:00 AM EST.

www.isftd.org/events/webin...

#endFTD
#ISFTD

5 months ago 2 0 0 0