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Posts by Beth #MillionsMissing

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Opinion | 1,374 Days: My Life With Long Covid Chronic illness has a way of picking apart your mind and breaking your heart.

“1,374 Days: My Life With Long Covid”

This is a stunning and insightful article by an info designer who provides a harrowing account of their journey with long Covid & how it turned their life upside down.

Highlights in thread below, but worth reading in its entirety for the data-driven visuals 🧵

2 years ago 10 11 1 1
Heading states: Science article writing application form

Underneath, it reads: #MEAction is hiring for short-term work in scientific writing.  This seasonal position is just for the month of December and part of January.  We are looking for people with a background in scientific writing.  This application requires a CV and a writing sample.

Ready?

Heading states: Science article writing application form Underneath, it reads: #MEAction is hiring for short-term work in scientific writing. This seasonal position is just for the month of December and part of January. We are looking for people with a background in scientific writing. This application requires a CV and a writing sample. Ready?

Are you a science writer? Are you familiar with ME/CFS? Are you looking to make extra holiday funds?

#MEAction is looking to hire some folks for short-term work to spruce up existing articles and add new sources!

HMU: forms.gle/SmWo3ezaGkdp...

2 years ago 65 53 4 1
Screenshot of abstract

Screenshot of abstract

New from Latvia:

Exploring the Joint Potential of Inflammation, Immunity, and Receptor-Based Biomarkers for Evaluating ME/CFS Progression

Only abstract currently available:
www.frontiersin.org/articles/10....

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE

2 years ago 9 5 1 1
Donate - #MEAction Network

This Giving Tuesday, I hope you will consider #MEAction!

We fight every day for people with ME/CFS & Long COVID. With your help, we can continue our inside-outside advocacy. Join us as we protest, advocate, then roll up our sleeves to directly improve research & clinical care.
meaction.net/donate

2 years ago 18 14 1 0
Graphic highlighting the multi-systemic nature of post-exertional malaise, that it triggers symptoms in the sensory, autonomic, cognitive, pain, immune, neuromuscular, energy & metabolic systems, and that PEM is not fatigue or deconditioning.

Graphic highlighting the multi-systemic nature of post-exertional malaise, that it triggers symptoms in the sensory, autonomic, cognitive, pain, immune, neuromuscular, energy & metabolic systems, and that PEM is not fatigue or deconditioning.

Excellent new #mecfs paper by Mayo Clinic & #MEAction. Includes this brilliant graphic, which clearly shows that PEM is not just fatigue. Well done, Jaime! @exceedhergrasp1.bsky.social

www.mayoclinicproceedings.org/article/S002...

2 years ago 48 21 2 1

Congratulations Jaime!

2 years ago 1 0 0 0
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant...

Our paper has been published in Mayo Clinic Proceedings! This is a Concise Clinical Review, meaning it MUST be short, with a limited number of pages and citations. Drs. Grach, Ganesh, and Chon and I worked very hard to pare it down to the essentials. www.mayoclinicproceedings.org/article/S002...

2 years ago 130 52 15 7