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Posts by Lupus UK

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We’re excited to attend the annual British Society for Rheumatology conference in Glasgow from 28th – 30th April.

Come and find us at Stand 17 to meet some of the team and speak about all things #lupus!

Swipe for highlights from previous years! 🙌 

#BSR2026 #Rheumatology #BSR #MedicalConference

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This is an exciting new role which will focus on engaging with communities and recruiting and training volunteers to deliver peer support services for those living with #lupus.

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We are recruiting for a Community Services Coordinator based in Northern Ireland! 

❗5 days left to apply!

🔗Learn more about the role and apply on #NIJobs: https://bit.ly/4v5pTkC

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Sign up and receive a certificate on completion! Raise £100 and you'll also receive a free T-shirt! 💜

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Have you signed up to our Spring Into Action:35 challenge yet? 🌸

Join us in raising awareness and vital funds, and help support everyone affected by lupus 💜

✨Ready to get started?
Sign up today! https://bit.ly/422uLcX

#SpringIntoAction #LupusUK #FundraisingChallenge #MoveForGood #MakeADifference

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Upcoming Events for Young People and Families (Lupus UK Youth) | Lupus UK Upcoming Events for Young People & Families We currently host Virtual Young People Lupus Groups (YPLGs) and Virtual Parents and Carers Meetings once every two months. To keep updated about future meet-ups, sign up to our YPLG Mailing List here, and Parents/Carers Mailing List here. For more informat...

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For more information and details on signing up or staying informed about future support groups, visit the links below, email Support@LupusUK.org.uk or DM us. 💜

🔗 https://bit.ly/48j4law

🔗 https://bit.ly/48qoUlp

#LupusSupport #SupportGroup #LupusCommunity

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Come along to our Virtual Support Groups this April and May. Our groups offer a safe space for individuals to learn more about #lupus and connect with others who are going through similar experiences.

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Last month, our Health Information, Policy, & Research Manager Debbie attended SLEuro, a conference for researchers and healthcare professionals across Europe to come together and share the latest research, treatment, and support for people with #lupus.

Read more here: https://bit.ly/4dxxNNF

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🔗Learn more and apply: https://bit.ly/4v5pTkC
 
📅Applications close 20th April 2026.

 #NorthernIreland #NorthernIrelandRecruitment #NIJobs #HiringNI

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We are recruiting for a Community Services Coordinator based in Northern Ireland! 

This is an exciting new role which will focus on engaging with communities and recruiting and training volunteers to deliver peer support services for those living with #lupus.

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Lupus UK Head Office will be closed from 3rd - 6th April for the Easter bank holiday. Head Office, helpline & support services will resume 7th April 2026. 

Visit our website for information. For urgent support, contact 111 or 999.

Sending warm wishes this Easter bank holiday! 💜🌼

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There are less than 15 tickets remaining for our ‘Ask a Rheumatologist’ event with guest speakers Dr Arvind Kaul and Dr Samir Patel, who will be answering your questions about #lupus.

🔗 Reserve your free spot here: https://bit.ly/4bQoiXg

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Whether you go solo or team up with friends and family, you’ll be part of something powerful - raising awareness, building community, and creating real impact. 

Sign up today! 💜

#SpringIntoAction #LupusUK #FundraisingChallenge #MoveForGood #MakeADifference

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Our Spring Into Action:35 fundraising challenge begins tomorrow! 🌸

This spring, we’re inviting you to move with purpose and make a difference. 

Swipe to learn more about the challenge and sign up in 2 minutes by visiting: www.justgiving.com/campaign/spring-into-act...

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If you have any questions or require further information about the event, please contact infoday@lupusuk.org.uk.

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We warmly invite you to our ‘Ask a Rheumatologist’ event with guest speakers Dr Arvind Kaul and Dr Samir Patel, who will be answering your questions about #lupus.

📅Saturday 18th April, 10:00am - 12:30pm

📍St. George’s Hospital, London, SW17 0QT.

Reserve your free spot today: https://bit.ly/4bQoiXg

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Spring into Action this April & May! 🌸

Join our #SpringIntoAction:35 Challenge and help support the #lupus community!

Walk, run, cycle, wheel, swim, or donate £35 throughout April and May - your way, at your pace. 👣

🔗sign up here: https://bit.ly/4lQ1U4U

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Upcoming Events for Young People and Families (Lupus UK Youth) | Lupus UK Upcoming Events for Young People & Families We currently host Virtual Young People Lupus Groups (YPLGs) and Virtual Parents and Carers Meetings once every two months. To keep updated about future meet-ups, sign up to our YPLG Mailing List here, and Parents/Carers Mailing List here. For more informat...

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You will have the opportunity to chat, ask questions, get support, and find out more about lupus in children and young people.

If you are interested in joining, please register by visiting https://lupusuk.org.uk/youth-events/

For more information, please contact support@lupusuk.org.uk

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Are you a parent or carer of a young person with #lupus who would like to meet others going through a similar experience?

Come along to our next Virtual Parents and Carers Group!

📅: Thursday, 26th March 
🕕: 7:00pm - 8:00pm
📍: Zoom 

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Can't see a study that suits you? Keep checking back for new opportunities, as we regularly update the page!

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Did you know, you can find different #research opportunities on our website?

🔗https://bit.ly/4sMaKD0

Taking part in research can help researchers understand day-to-day life with #lupus, which can lead to improved care and quality of life.

Questions? Contact research@lupusuk.org.uk

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Upcoming Events for Young People and Families (Lupus UK Youth) | Lupus UK Upcoming Events for Young People & Families We currently host Virtual Young People Lupus Groups (YPLGs) and Virtual Parents and Carers Meetings once every two months. To keep updated about future meet-ups, sign up to our YPLG Mailing List here, and Parents/Carers Mailing List here. For more informat...

If you are a parent or carer of a young person with lupus, come along to our next Parents and Carers meeting taking place on Thursday 26th March 2026.

For more information, visit

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Rheumatic diseases, or #musculoskeletal diseases are conditions that impact your joints tendons, ligaments, bones, and muscles. This can be challenging for young people who live with them as many of them live with pain, immobility and fatigue.

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Today is World Young Rheumatic Diseases Day (WORD Day), which raises awareness for the fact that children and young people live with rheumatic diseases like #lupus too.

#WORDday #WORDday2026

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What is Lupus? | Lupus UK What is Lupus? Lupus is a condition where your immune system, instead of only attacking germs, mistakenly attacks your own body, affecting the joints, skin, kidneys, and more. This is why it is called an “autoimmune” disease. Because it can mimic many other illnesses, it’s sometimes called “...

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For more information about our support services, please visit https://lupusuk.org.uk/need-to-talk/. 

To learn more about lupus, visit:

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Contact Us | Lupus UK Contact Us Get in touch Contact Us Please enable JavaScript in your browser to complete this form.Name *FirstLast Email Message Comment Email *Comment or Message Address Lupus UKSt James HouseEastern RoadRomfordEssex RM1 3NHEngland   Opening Hours Monday – 9am to 5pmTuesday – 9am to 5pmWednesda...

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You can contact us via:
- Email (support@lupusuk.org.uk)
- Website (https://lupusuk.org.uk/contact-us/
- Or by telephone (01708 731251 - please leave a message).

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We are committed at Lupus UK to increasing our work to raise this awareness and to educate the wider public. If you would like any help or support, please remember that we are here to help at whatever stage you are in your #lupus journey.

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Living with lupus is no joke!

Lupus is a chronic, sometimes life-threatening autoimmune disease – and it is moments like this that sadly show how far we have to go to educate and raise awareness of what #lupus is and the impact that it has on individual lives.

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You may have seen or heard about the hugely insensitive reference to lupus during last night’s Academy of Motion Picture Arts and Sciences #Oscars show.

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National Virtual Support Groups | Lupus UK Lupus UK National Virtual Support Groups We currently host national virtual support groups twice a month for people living with lupus or approaching a diagnosis. Our groups offer a safe space for individuals to connect with others who are going through a similar experience. Upcoming Support Groups:...

For more information and details on signing up or staying informed about future support groups, visit 
https://lupusuk.org.uk/national-support-groups/

Our groups offer a safe space for individuals to connect with others who are going through a similar experience. 💜

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