Hand to heart.

@aapneonatal.bsky.social @ameracadpeds.bsky.social

Not sure about anyone else, but at
@hopeforhie.org we don't do (and I quote) "wink wink, nudge nudge" partnerships in therapeutic advancement. If it doesn't work for, or include, our families, we don't endorse it. Full stop.
Not enough coffee for that this morning.

SELECT ITEMS FROM HOPE FOR HIE'S CAFEPRESS STORE ARE 50% OFF TODAY! Grab some swag!
www.cafepress.com/profile/Hope...

@hopeforhie.org

the word level is on a black background with a light coming out of it ALT: the word level is on a black background with a light coming out of it

I was asked if I wanted to attend mouse surgery next week. I think this may take my non-scientist HIE street cred over the top.
🐁🧠
#NeoSky #NeuroSky #NICU #HopeforHIE #HIE #BasicScience #PatientAdvocacy

A new study shows that COVID19 during pregnancy was associated with a significant increase in the odds of neurodevelopmental conditions in offspring.

This supports literature suggesting that infections during pregnancy can increase the odds of ASD in offspring.

It also supports vaccination.

First ever @hopeforhie.org leadership summit ✅

HIE registries are so incredibly important for figuring out the best diagnostic and treatment modalities for these kids. @hopeforhie.org @betsypilon.bsky.social

With some of my favorite 🧠 peeps. #CNSAM

We have a lot of swifties in our community, so to celebrate the latest album, we've curated a 🎵Life of a HIE Parent Playlist (Taylor’s Version 😉).

Listen over on our YouTube channel:
www.youtube.com/playlist?lis...

#NeoSky #NeuroSky #NICU #HopeforHIE #HIE #PICU #PatientAdvocacy

Soaking up every moment of bonus summer. The water is holding at 74/75.

Programs for Students With Hearing and Vision Loss Harmed by Trump’s Anti-Diversity Push Citing concerns about DEI, the U.S. Department of Education has halted funding for programs that support students with combined hearing and vision loss in eight states. “How low can you go?” one advoc...

Citing concerns about DEI, the Department of Education has halted funding for programs that support students with combined hearing and vision loss in eight states.

“How low can you go?” one advocate asked. “How can you do this to children?”

By @jodiscohen.bsky.social @jsmithrichards.bsky.social

"I'm sick of living like this" is always met with flagrant responses of "THEN MOVE" instead of "let's change this together". Like, if you aren't sick of living like this, how morally broken are you???

Excited to announce our formalized partnership as Neuren advances its NNZ-2591 for neonatal HIE.

Read more: www.neurenpharma.com/pdf/cbb30d08...

#HopeforHIE #Neonatology #ChildNeurology #NeoSky #NeuroSky

Am I up at 4 am because there’s a four legged critter (likely a mouse) in our cabin? Yes. 😆 🐁

Running government science agencies on vibes rather than evidence kills people.

When the little one gets the whole wakeboarding thing like a champ. Perfect end to a manic Monday.

10 years ago was really the start of my advocacy journey and finding a taste of success. The article below was published in July 2015 on the #NICHD website, elevating HIE awareness to a bigger audience.

Read it below:
go.usa.gov/3fp3M

Abandoned truck and trailer at our neighborhood boat ramp. 😆

Eternally grateful to not understand these people.

I don't know about you...but I'm disturbed by the amount of hell NOT being raised by leadership about masked individuals jumping out of unmarked vans, refusing to identify themselves...and just shoving people into a Goddamn vehicle and whisking them away.

Discovery of the VapoRub inventor whilst in Greensboro, NC.

I “fucking voted for them” this time and last time and next time. Touch grass.

Then why aren’t Democrats doing the human things?

Yeah. I love my dog. But my disabled child needing Medicaid services is in a completely different realm of priority. Eva. People are dying.

I love dogs and think it’s a great idea. But this seems like it should be at the bottom of priorities right now.

Hope in AVL! ☀️🩵

Happy Father’s Day to this absolutely stellar human.