Newest publication from CHNC's #HIE Focus Group! bit.ly/46gswWd
#CHNC #CHNCFocusGroups #HIE #HopeforHIE #Neonatology
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I was asked if I wanted to attend mouse surgery next week. I think this may take my non-scientist HIE street cred over the top.
🐁🧠
#NeoSky #NeuroSky #NICU #HopeforHIE #HIE #BasicScience #PatientAdvocacy
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Growing Hope! Welcome to our new staff members:
Mary Boyle - Program Manager
Jacquelline Garborg - Communication Coordinator
Read more about their roles and expertise:
hopeforhie.org/hope-for-hie...
#NeoSky #NeuroSky #PatientAdvocacy #HopeforHIE
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We have a lot of swifties in our community, so to celebrate the latest album, we've curated a 🎵Life of a HIE Parent Playlist (Taylor’s Version 😉).
Listen over on our YouTube channel:
www.youtube.com/playlist?lis...
#NeoSky #NeuroSky #NICU #HopeforHIE #HIE #PICU #PatientAdvocacy
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Excited to announce our formalized partnership as Neuren advances its NNZ-2591 for neonatal HIE.
Read more: www.neurenpharma.com/pdf/cbb30d08...
#HopeforHIE #Neonatology #ChildNeurology #NeoSky #NeuroSky
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We are excited to announce our new Medical Advisory Board leadership effective June 1, 2025 serving two year terms each:
Dr. Alexa Craig, Chair
Dr. @briankalishmd.bsky.social,Vice Chair
#HopeforHIE #NICU #NeoSky #NeuroSky
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COOL PRIME in the news! Love to see CHLA as a cooling center!
#NeoSky #NeuroSky #NICU #HopeforHIE
www.newswise.com/articles/stu...
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Keep climbing and celebrate every inchstone!
🧠☀️🩵
#HopeforHIE #NeoSky #NeuroSky #NICU #NewbornBrains #BabiesNeedScience
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Congratulations to HFH Board Member and incredible HIE researcher, Dr. Danielle Barber for this outstanding funding by the @hypothesisfund.bsky.social to advance critically needed research for #HIE! We're biased, but she's truly the best.
#NeoSky #NeuroSky #HopeforHIE
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AH! So excited to see this!!!!! Dr. Barber is THE BEST!!!! Thank you @hypothesisfund.bsky.social for elevating and expanding her critically important research! #HopeforHIE #NeoSky #NeuroSky
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Betsy Pilon, #HopeforHIE executive director, and family started their #HustleforHope run club to prep for the Detroit area event May 4th!
Find one near you, or register for the virtual event at Tinyurl.com/hustleforhope
#NeuroSky #HopeinAction #HIE #NeoSky #HIEawareness #CerebralPalsy #NICU
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April is #HIEAwarenessMonth and this year, more than ever, we are moving #HopeinAction -- join us!
HIEawarenessmonth.com
#NeoSKy #NeuroSky #NICU #HopeforHIE #HIE #Neonatology #ChildNeurology
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#HIEAwarenessMonth IS COMING! APRIL IS RIGHT AROUND THE CORNER! We are excited to announce our annual global theme for 2025: #HopeinAction!
Head to HIEawarenessmonth.com for more information on events, ways to get involved, swag, and more!
#NeoSky #NeuroSky #NICU #PICU #HopeforHIE #EBNEO
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Every Monday at 3 pm this amazing group meets to move forward the @hopeforhie.org registry and we got to see each other off of Zoom today! @cprn-org.bsky.social @espeeples.bsky.social
#NeoSky #NeuroSky #HopeforHIE
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Off we go! 🧠✈️☀️🎉
#HaveHOPEwilltravel #NewbornBrains #HopeforHIE #NeoSky #NeuroSky #NICU #HIE
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February support groups:
Registration available at Hopeforhie.org/events
#NeoSky #NeuroSky #HopeforHIE #NICU
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We are thrilled to introduce everyone to Jen Schaefer, CAPSW, our new social worker, and celebrate the expanded role @amoise313.bsky.social has taken on with us!
Learn more:
www.hopeforhie.org/hope-for-hie...
#NeoSky #NeuroSky #NICU #HopeforHIE #PatientAdvocacy
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Our community is focused on our impacted HIE families in California.
Annie Gunning, our child life specialist, put together resources to help children & families cope and is available for 1:1 support & coping plan consults.
www.hopeforhie.org/facing-natur...
#NeoSky #NeuroSky #HopeforHIE
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Being able to run support groups for families new into their HIE journey fills my cup so much. Being able to give back to families and just seeing other families still early on give support to each other is incredible in its own way. #hopeforhie #peersupport #socialwork #neurology #supportgroups
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It's been an INCREDIBLE YEAR -- check out our 2024 Wrapped on YouTube (BS only offers :60 videos):
www.youtube.com/watch?v=OcKd...
#NeoSky #NeuroSky #PatientAdvocacy #HopeforHIE #NICU
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One of our sweet families shared this photo yesterday in their matching Hope gear.
#NeoSky #NeuroSky #NICU #HopeforHIE #HopeintheJourney
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Now live up on the @sanfrancisco49ers.bsky.social website!
www.49ers.com/news/causes-...
#MyCauseMyCleats #NeoSky #NeuroSky #HopeforHIE
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We have the most amazing community. Help us help more families!
Hopeforhie.org/donate
#NeoSky #NeuroSky #NICU #HopeforHIE #MedSky #PatientAdvocacy
(Let’s see how videos post to BlueSky!) 🤞
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Join us today, #GivingTuesday, as we empower HIE families in their journey!
Hopeforhie.org/donate
#NeoSky #NeuroSky #HopeforHIE #PatientAdvocacy #NICU
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#GivingTuesday -- there are a myriad of causes, and we hope you'll consider supporting ours at Hopeforhie.org/donate
#NeoSKy #NeuroSky #PatientAdvocacy #HopeforHIE
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Missed the #NeonatalSIG at @childneurosoc.bsky.social?
We're continuing the conversation at the Newborn Brain Society conference in February.
Learn more and register below!
newbornbrainsociety.org/conferences
#NeoSky #NeuroSky #NewbornBrains #HopeforHIE
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Can’t wait to share the story behind these @hopeforhie.org sneaks making their #NFL debut this week!
#NeoSky #NeuroSky #PatientAdvocacy #HopeforHIE
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Today and always, we are grateful for YOU, our amazing community.
#HypoxicIschemicEncephalopathy #HopeforHIE #HIE #HIEresearch #NeonatalNeurology #NICU #NewbornBrains #ChildNeurology #HIEadvocacy #Neonatology #Neurology #HypoxicIschaemicEncephalopathy #HIEsupport #PatientAdvocacy #NeoSky #NeuroSky
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The #AAP spotlighted #CVI today — #HIE is the top cause.
Screening, diagnosis and management is scant. Here’s to change ahead! #QI
publications.aap.org/aapnews/news...
#NeoSky #NeuroSky #HopeforHIE #OphthalmologySky ?
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NEONATAL TRANSPORT FOR HIE: Not a new concept but...
1) Appeared in my local news like it's new:
www.freep.com/story/news/h...
2) Dr. Jonathan Davis in Australia is doing cooling transport research with major geographical challenges:
lnkd.in/giKjy8cN
#NeoSky #NeuroSky #NICU #HopeforHIE
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