𝗔 𝗯𝗲𝘁𝘁𝗲𝗿 𝘄𝗮𝘆 𝘁𝗼 𝗻𝗮𝘃𝗶𝗴𝗮𝘁𝗲 🚀

Today we’re introducing a new feature.

Chat → input
Dashboard → insight
Settings → control

Now all connected.

One flow. Finally simple ✨
More coming soon 👀

#MPN #MPNPatients #Hematology #Oncology #PolycythemiaVera #MyeloproliferativeNeoplasms

🚀 𝗡𝗲𝘄: 𝗔𝗽𝗽𝗼𝗶𝗻𝘁𝗺𝗲𝗻𝘁 𝗠𝗮𝗻𝗮𝗴𝗲𝗺𝗲𝗻𝘁
MPN Journal now lets patients manage appointments from the dashboard.

✔️ Create
✏️ Edit
🗑️ Delete

Helping patients stay organized and better prepared for conversations with healthcare professionals.

More features coming soon 🚀
#MPN #Hematology #Oncology #PatientCare

👀 𝗛𝗮𝘃𝗲 𝘆𝗼𝘂 𝗻𝗼𝘁𝗶𝗰𝗲𝗱 𝘆𝗲𝘁?
Notes can now be created directly from your dashboard — now with multiple note types.

📝 Written
🎙️ Record consultations & listen back later
📎 Files & images

Edit anytime. Filter by period.
Better preparation for doctor appointments. 💙
#MPNsm #digitalhealth #hematology

📊 𝗦𝘆𝗺𝗽𝘁𝗼𝗺 𝗕𝘂𝗿𝗱𝗲𝗻
A 0–100 score that shows:
• How heavy your physical symptoms are
• How lifestyle impacts them
• What truly makes a difference over time

We’re seeing very positive feedback on the impact of this graph — making the connection clear and actionable.
#healthtech #hematology #MPNsm

We were at #ASH25 in Orlando! Yesterday we presented our abstract on MPN Journal, a patient-driven platform for better tracking, communication, and real-world data. Huge thanks to @rubenmesamd.bsky.social, winner of the Ernest Beutler Prize, for supporting our work. #MPNJournal #PatientEmpowerment

⏳ 𝐒𝐞𝐯𝐞𝐧 𝐃𝐚𝐲𝐬 𝐋𝐞𝐟𝐭!
Only 7 days left in the MPN Journal 30-Day Challenge. Haven’t started yet? Begin today!

Already have an account? app.easybot.io/channelView?...

New here? mpnjournal.com/challenge

Take the first step toward feeling better every day. ✨
#EverydayBetter #MPNChallenge #Hematology

EVERYDAY BETTER - The 30-Day MPN Challenge For 30 days, we’ll help you improve your lifestyle step-by-step so your MPN symptoms and symptom burden can decrease.

🌿 𝐘𝐨𝐮 𝐜𝐚𝐧 𝐬𝐭𝐢𝐥𝐥 𝐣𝐨𝐢𝐧 𝐭𝐡𝐞 𝟑𝟎-𝐃𝐚𝐲 “𝐄𝐯𝐞𝐫𝐲𝐝𝐚𝐲 𝐁𝐞𝐭𝐭𝐞𝐫” 𝐌𝐏𝐍 𝐂𝐡𝐚𝐥𝐥𝐞𝐧𝐠𝐞! 🌿
Join at your own pace — small steps for lasting lifestyle change & reduced symptom burden.
Inspired by Hamster in your Brain (Drs. Kreier & Biezefeld).
#EverydayBetter #MPNChallenge #MPN #EverydayBetter #MPNWorld #Hematology

EVERYDAY BETTER - The 30-Day MPN Challenge For 30 days, we’ll help you improve your lifestyle step-by-step so your MPN symptoms and symptom burden can decrease.

🚨 Last call!
The 30-Day “Everyday Better” MPN Challenge starts tomorrow! 🌿
Sign up today via the MPN Journal (also shared by email).
Kick-off webinar tomorrow 19:00 CET with Dr. Felix Kreier from Haus of Hamsters, MPN World (@gmpnsf.bsky.social) & ambassadors.
👉 mpnjournal.com/challenge

🔥 𝐀𝐥𝐦𝐨𝐬𝐭 𝐓𝐢𝐦𝐞!
Just 5 days until the EVERYDAY BETTER MPN Challenge begins!
We’re still working hard behind the scenes — can’t wait to start this journey together. 💪
#MPNChallenge #EverydayBetter #MPNJournal #QualityOfLife #PatientSupport #PatientVoice #BloodDisorders #hematology

EVERYDAY BETTER - The 30-Day MPN Challenge For 30 days, we’ll help you improve your lifestyle step-by-step so your MPN symptoms and symptom burden can decrease.

Want to lower your MPN symptom burden? 🌿
Join the 𝐄𝐕𝐄𝐑𝐘𝐃𝐀𝐘 𝐁𝐄𝐓𝐓𝐄𝐑 30-Day Challenge (starts Nov 1) — created by patients, for patients.
Get daily, science-based tips to ease symptoms, boost energy & live well.
Free + anonymous via MPN Journal → mpnjournal.com/challenge #MPNChallenge #MPNJournal

🚀 𝗣𝗿𝗼𝗱𝘂𝗰𝘁 𝗨𝗽𝗱𝗮𝘁𝗲: The MPN Journal is now smarter & easier than ever! Smarter charts, full medication control, weight tracking + big upgrades to lab results (SI & conventional units, smarter graphs, auto-conversion). 📊 #MPN #HealthTech

📰 𝗚𝗿𝗲𝗮𝘁 𝗻𝗲𝘄𝘀!
We’re proud to be mentioned in Hemato-Oncologie’s recent article about the MPN Tracking App, designed to support patients in managing their journey.👇 Read more below!
hemato-oncologie.nl/nieuws/mpn-t...
#MPN #PatientSupport #MPNJournal #Oncology#Hematology #DigitalHealth

Fear of Progression (FoP) in MPN Patients: Score Distribution (1-10)

💭 In the MPN Journal app, 50% of patients report fear of disease progression. Half of them rate it 8 or higher. It's time for more awareness and psychosocial support. #MPN #FearOfProgression #QualityOfLife #hematology

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𝗪𝗵𝗮𝘁’𝘀 𝗻𝗲𝘄 𝗶𝗻 𝘁𝗵𝗲 𝗠𝗣𝗡 𝗝𝗼𝘂𝗿𝗻𝗮𝗹? 📰
We share updates & insights based on your feedback — all in our News tab. Got ideas? Let’s build it together!
#MPNJournal #StayInformed #PatientEmpowerment #HealthData #ChronicDisease #Hematology

𝗙𝗜𝗚𝗛𝗧𝗜𝗡𝗚 𝗙𝗔𝗧𝗜𝗚𝗨𝗘 𝗪𝗜𝗧𝗛 𝗠𝗣𝗡 𝗝𝗢𝗨𝗥𝗡𝗔𝗟 – A patient’s story 💡🏃‍♂️ Diagnosed with PV in 2020, I tracked symptoms daily & found a direct link between movement & fatigue. Exercise helped reduce symptoms. Personal experience—results may vary.
👉 See next post for more!

#MPN #MPNJournal #HealthData #PatientVoice

Great to see MPN Journal represented at #EHA2025 in Milan.
I’m not there in person, but I’m following along and proud of the progress our community is making!
#empowerpatients #ClinicalResearchSolutions #Hematology #MPNJournal

Attending #EHA2025 in Milan! Meet us to discover MPN Journal—a global, patient-driven platform for everyone living with myeloproliferative neoplasms. Empowering patients, advancing research. Let’s connect!
#MPNJournal #Hematology #empowerpatients #ClinicalResearchSolutions

𝐌𝐏𝐍 𝐉𝐨𝐮𝐫𝐧𝐚𝐥 𝐛𝐫𝐞𝐚𝐤𝐬 𝐥𝐚𝐧𝐠𝐮𝐚𝐠𝐞 𝐛𝐚𝐫𝐫𝐢𝐞𝐫𝐬! 🌍
Six new languages added: Danish, Finnish, Italian, Norwegian, Spanish & Swedish ✨
Medical info should be accessible to all. Now we can help more patients & researchers in their native language!
#Hematology #MPN #BloodDisorders #Healthcare #GlobalHealth

𝐌𝐏𝐍 𝗪𝗼𝗿𝗹𝗱-𝗧𝗿𝗮𝗻𝘀𝗳𝗼𝗿𝗺𝗶𝗻𝗴 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗲𝗻 𝗘𝗨𝗥𝗢-𝗡𝗘𝗧 𝟮𝟬𝟮𝟱
On May 15 in Zürich, John Hoogland showed how real-world data can reveal new patterns in MPN care. Thanks HOCH Health Ostschweiz for hosting!

🔗 Info: www.h-och.ch/ueber-uns/ve...

#EURO_NET2025 #MPN #research #hematology #mpnjournal

🚀 MPN Journal is live on Bluesky!
Since our launch on May 1st, we’ve supported the global MPN community with tools for profiles, symptom tracking, and knowledge sharing.
Excited to connect here—follow us for updates!
#MPN #HealthcareInnovation #MPNJournal