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๐—ง๐—ผ๐—ด๐—ฒ๐˜๐—ต๐—ฒ๐—ฟ, ๐—ช๐—ฒ ๐— ๐—ฎ๐—ฑ๐—ฒ ๐Ÿฎ๐Ÿฌ๐Ÿฎ๐Ÿฑ ๐—ฆ๐—ฝ๐—ฒ๐—ฐ๐—ถ๐—ฎ๐—น
Together, we brought the MPN Journal to life โ€” shaped by your experiences, feedback, and commitment.
Thank you for being part of this journey.
Onward to 2026. ๐Ÿ’™ #MPNJournal #MPNWorld #TogetherWeBuild #PatientVoices #2025Recap #hematology #LookingAhead

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We were at #ASH25 in Orlando! Yesterday we presented our abstract on MPN Journal, a patient-driven platform for better tracking, communication, and real-world data. Huge thanks to @rubenmesamd.bsky.social, winner of the Ernest Beutler Prize, for supporting our work. #MPNJournal #PatientEmpowerment

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The MPN Journal Challenge has wrapped โ€” with over 300 participants! ๐Ÿ’™

And the key takeaway:
๐Ÿ‘‰ Daily journaling helps you track how your symptoms, side effects and lifestyle patterns shift over time.

If you joined late, keep going. Your self-care journey continues beyond the challenge โœจ #mpnjournal

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๐Ÿ”ฅ ๐€๐ฅ๐ฆ๐จ๐ฌ๐ญ ๐“๐ข๐ฆ๐ž!
Just 5 days until the EVERYDAY BETTER MPN Challenge begins!
Weโ€™re still working hard behind the scenes โ€” canโ€™t wait to start this journey together. ๐Ÿ’ช
#MPNChallenge #EverydayBetter #MPNJournal #QualityOfLife #PatientSupport #PatientVoice #BloodDisorders #hematology

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EVERYDAY BETTER - The 30-Day MPN Challenge For 30 days, weโ€™ll help you improve your lifestyle step-by-step so your MPN symptoms and symptom burden can decrease.

๐ŸŒ ๐Ž๐ง๐ฅ๐ฒ ๐Ÿ“ ๐ƒ๐š๐ฒ๐ฌ ๐‹๐ž๐Ÿ๐ญ!
Join the 30-Day โ€œ๐„๐•๐„๐‘๐˜๐ƒ๐€๐˜ ๐๐„๐“๐“๐„๐‘โ€ MPN Challenge, starting Nov 1 โ€” 30 days of small, daily steps to reduce symptoms & improve quality of life. ๐Ÿ’ช

Kick-off webinar: Sat 7 PM CET
Create your MPN Journal account ๐Ÿ‘‰ mpnjournal.com/challenge

#MPNChallenge #EverydayBetter #MPNJournal

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EVERYDAY BETTER - The 30-Day MPN Challenge For 30 days, weโ€™ll help you improve your lifestyle step-by-step so your MPN symptoms and symptom burden can decrease.

Want to lower your MPN symptom burden? ๐ŸŒฟ
Join the ๐„๐•๐„๐‘๐˜๐ƒ๐€๐˜ ๐๐„๐“๐“๐„๐‘ 30-Day Challenge (starts Nov 1) โ€” created by patients, for patients.
Get daily, science-based tips to ease symptoms, boost energy & live well.
Free + anonymous via MPN Journal โ†’ mpnjournal.com/challenge #MPNChallenge #MPNJournal

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Hemato-oncologie | MPN-tracking app houdt patient journey bij

๐Ÿ“ฐ ๐—š๐—ฟ๐—ฒ๐—ฎ๐˜ ๐—ป๐—ฒ๐˜„๐˜€!
Weโ€™re proud to be mentioned in Hemato-Oncologieโ€™s recent article about the MPN Tracking App, designed to support patients in managing their journey.๐Ÿ‘‡ Read more below!
hemato-oncologie.nl/nieuws/mpn-t...
#MPN #PatientSupport #MPNJournal #Oncology#Hematology #DigitalHealth

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๐—ช๐—ต๐—ฎ๐˜โ€™๐˜€ ๐—ป๐—ฒ๐˜„ ๐—ถ๐—ป ๐˜๐—ต๐—ฒ ๐— ๐—ฃ๐—ก ๐—๐—ผ๐˜‚๐—ฟ๐—ป๐—ฎ๐—น? ๐Ÿ“ฐ
We share updates & insights based on your feedback โ€” all in our News tab. Got ideas? Letโ€™s build it together!
#MPNJournal #StayInformed #PatientEmpowerment #HealthData #ChronicDisease #Hematology

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Want to learn more about this patientโ€™s journey and insights?
๐Ÿ”— www.linkedin.com/posts/mpn-jo...

#MPN #MPNJournal #PatientVoice

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๐—™๐—œ๐—š๐—›๐—ง๐—œ๐—ก๐—š ๐—™๐—”๐—ง๐—œ๐—š๐—จ๐—˜ ๐—ช๐—œ๐—ง๐—› ๐— ๐—ฃ๐—ก ๐—๐—ข๐—จ๐—ฅ๐—ก๐—”๐—Ÿ โ€“ A patientโ€™s story ๐Ÿ’ก๐Ÿƒโ€โ™‚๏ธ Diagnosed with PV in 2020, I tracked symptoms daily & found a direct link between movement & fatigue. Exercise helped reduce symptoms. Personal experienceโ€”results may vary.
๐Ÿ‘‰ See next post for more!

#MPN #MPNJournal #HealthData #PatientVoice

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Great to see MPN Journal represented at #EHA2025 in Milan.
Iโ€™m not there in person, but Iโ€™m following along and proud of the progress our community is making!
#empowerpatients #ClinicalResearchSolutions #Hematology #MPNJournal

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Attending #EHA2025 in Milan! Meet us to discover MPN Journalโ€”a global, patient-driven platform for everyone living with myeloproliferative neoplasms. Empowering patients, advancing research. Letโ€™s connect!
#MPNJournal #Hematology #empowerpatients #ClinicalResearchSolutions

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๐Œ๐๐ ๐—ช๐—ผ๐—ฟ๐—น๐—ฑ-๐—ง๐—ฟ๐—ฎ๐—ป๐˜€๐—ณ๐—ผ๐—ฟ๐—บ๐—ถ๐—ป๐—ด ๐—ฅ๐—ฒ๐˜€๐—ฒ๐—ฎ๐—ฟ๐—ฐ๐—ต ๐—ฒ๐—ป ๐—˜๐—จ๐—ฅ๐—ข-๐—ก๐—˜๐—ง ๐Ÿฎ๐Ÿฌ๐Ÿฎ๐Ÿฑ
On May 15 in Zรผrich, John Hoogland showed how real-world data can reveal new patterns in MPN care. Thanks HOCH Health Ostschweiz for hosting!

๐Ÿ”— Info: www.h-och.ch/ueber-uns/ve...

#EURO_NET2025 #MPN #research #hematology #mpnjournal

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๐Ÿš€ MPN Journal is live on Bluesky!
Since our launch on May 1st, weโ€™ve supported the global MPN community with tools for profiles, symptom tracking, and knowledge sharing.
Excited to connect hereโ€”follow us for updates!
#MPN #HealthcareInnovation #MPNJournal

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