๐ง๐ผ๐ด๐ฒ๐๐ต๐ฒ๐ฟ, ๐ช๐ฒ ๐ ๐ฎ๐ฑ๐ฒ ๐ฎ๐ฌ๐ฎ๐ฑ ๐ฆ๐ฝ๐ฒ๐ฐ๐ถ๐ฎ๐น
Together, we brought the MPN Journal to life โ shaped by your experiences, feedback, and commitment.
Thank you for being part of this journey.
Onward to 2026. ๐ #MPNJournal #MPNWorld #TogetherWeBuild #PatientVoices #2025Recap #hematology #LookingAhead
We were at #ASH25 in Orlando! Yesterday we presented our abstract on MPN Journal, a patient-driven platform for better tracking, communication, and real-world data. Huge thanks to @rubenmesamd.bsky.social, winner of the Ernest Beutler Prize, for supporting our work. #MPNJournal #PatientEmpowerment
The MPN Journal Challenge has wrapped โ with over 300 participants! ๐
And the key takeaway:
๐ Daily journaling helps you track how your symptoms, side effects and lifestyle patterns shift over time.
If you joined late, keep going. Your self-care journey continues beyond the challenge โจ #mpnjournal
๐ฅ ๐๐ฅ๐ฆ๐จ๐ฌ๐ญ ๐๐ข๐ฆ๐!
Just 5 days until the EVERYDAY BETTER MPN Challenge begins!
Weโre still working hard behind the scenes โ canโt wait to start this journey together. ๐ช
#MPNChallenge #EverydayBetter #MPNJournal #QualityOfLife #PatientSupport #PatientVoice #BloodDisorders #hematology
๐ ๐๐ง๐ฅ๐ฒ ๐ ๐๐๐ฒ๐ฌ ๐๐๐๐ญ!
Join the 30-Day โ๐๐๐๐๐๐๐๐ ๐๐๐๐๐๐โ MPN Challenge, starting Nov 1 โ 30 days of small, daily steps to reduce symptoms & improve quality of life. ๐ช
Kick-off webinar: Sat 7 PM CET
Create your MPN Journal account ๐ mpnjournal.com/challenge
#MPNChallenge #EverydayBetter #MPNJournal
Want to lower your MPN symptom burden? ๐ฟ
Join the ๐๐๐๐๐๐๐๐ ๐๐๐๐๐๐ 30-Day Challenge (starts Nov 1) โ created by patients, for patients.
Get daily, science-based tips to ease symptoms, boost energy & live well.
Free + anonymous via MPN Journal โ mpnjournal.com/challenge #MPNChallenge #MPNJournal
๐ฐ ๐๐ฟ๐ฒ๐ฎ๐ ๐ป๐ฒ๐๐!
Weโre proud to be mentioned in Hemato-Oncologieโs recent article about the MPN Tracking App, designed to support patients in managing their journey.๐ Read more below!
hemato-oncologie.nl/nieuws/mpn-t...
#MPN #PatientSupport #MPNJournal #Oncology#Hematology #DigitalHealth
๐ช๐ต๐ฎ๐โ๐ ๐ป๐ฒ๐ ๐ถ๐ป ๐๐ต๐ฒ ๐ ๐ฃ๐ก ๐๐ผ๐๐ฟ๐ป๐ฎ๐น? ๐ฐ
We share updates & insights based on your feedback โ all in our News tab. Got ideas? Letโs build it together!
#MPNJournal #StayInformed #PatientEmpowerment #HealthData #ChronicDisease #Hematology
Want to learn more about this patientโs journey and insights?
๐ www.linkedin.com/posts/mpn-jo...
#MPN #MPNJournal #PatientVoice
๐๐๐๐๐ง๐๐ก๐ ๐๐๐ง๐๐๐จ๐ ๐ช๐๐ง๐ ๐ ๐ฃ๐ก ๐๐ข๐จ๐ฅ๐ก๐๐ โ A patientโs story ๐ก๐โโ๏ธ Diagnosed with PV in 2020, I tracked symptoms daily & found a direct link between movement & fatigue. Exercise helped reduce symptoms. Personal experienceโresults may vary.
๐ See next post for more!
#MPN #MPNJournal #HealthData #PatientVoice
Great to see MPN Journal represented at #EHA2025 in Milan.
Iโm not there in person, but Iโm following along and proud of the progress our community is making!
#empowerpatients #ClinicalResearchSolutions #Hematology #MPNJournal
Attending #EHA2025 in Milan! Meet us to discover MPN Journalโa global, patient-driven platform for everyone living with myeloproliferative neoplasms. Empowering patients, advancing research. Letโs connect!
#MPNJournal #Hematology #empowerpatients #ClinicalResearchSolutions
๐๐๐ ๐ช๐ผ๐ฟ๐น๐ฑ-๐ง๐ฟ๐ฎ๐ป๐๐ณ๐ผ๐ฟ๐บ๐ถ๐ป๐ด ๐ฅ๐ฒ๐๐ฒ๐ฎ๐ฟ๐ฐ๐ต ๐ฒ๐ป ๐๐จ๐ฅ๐ข-๐ก๐๐ง ๐ฎ๐ฌ๐ฎ๐ฑ
On May 15 in Zรผrich, John Hoogland showed how real-world data can reveal new patterns in MPN care. Thanks HOCH Health Ostschweiz for hosting!
๐ Info: www.h-och.ch/ueber-uns/ve...
#EURO_NET2025 #MPN #research #hematology #mpnjournal
๐ MPN Journal is live on Bluesky!
Since our launch on May 1st, weโve supported the global MPN community with tools for profiles, symptom tracking, and knowledge sharing.
Excited to connect hereโfollow us for updates!
#MPN #HealthcareInnovation #MPNJournal