Link in bio to learn more about angioedema.
#Angioedema #RareDisease #InvisibleIllness #ChronicIllness #RareDiseaseAwareness #PatientVoices #DisabilityAwareness #HealthEducation #ChronicIllnessAwareness #SupportRare
Gain valuable insights from long-term #GISTsurvivors as they reflect on their journeys and share practical advice to help others navigate life with GIST. Save your spot: bit.ly/LT-Survivors #GISTCommunity #PatientVoices #LongTermSurvivors
Hear from those who’ve been there, long-term #GISTsurvivors will share the lessons, strength, and perspective they wish they had from the start. Register: bit.ly/LT-Survivors #GISTCommunity #PatientVoices #LongTermSurvivors
Brigimadlin is making a meaningful impact by bringing hope, support, and progress to those who need it most. Sign the petition: www.brigimadlinpetition.org
#SaveBrigimadlin #PatientVoices #Liposarcoma @boehringerglobal.bsky.social
Ezequiel has a message for you 👇
🎬 Watch the full mini documentary and be part of the conversation: youtu.be/_0mRituivcc?...
#PrimaryImmunodeficiencies #RareDiseases #PatientVoices #Awareness
#CancerAdvocacy #PatientVoices #HTA #tarlatamab #PatientExperience #CancerSupport #Imdelltra #SmallCellLungCancer #SCLC #PatientAdvocacy #CaregiverSupport #CancerAwareness #PublicFunding #AccessToCare #LungCancerCanada
If your cancer journey keeps zig‑zagging, you are not going backwards; you are adapting. Second opinions, new treatments and pauses for recovery are all part of real‑life cancer care. #CancerJourney #PatientVoices #TCSC
Why We Need to Listen to Lived Experience @olidnejad #MentalHealth #LivedExperience #Psychiatry #PatientVoices #MentalHealthAwareness
Why We Need to Listen to Lived Experience @olidnejad #MentalHealth #LivedExperience #Psychiatry #PatientVoices #MentalHealthAwareness
We have an Important Announcement! 📣
One year of elevating patient voices — and we are just getting started.
The E3 Advocacy Anniversary Edition is coming soon.
Stay tuned! Follow Heal Canada and be the first to explore the stories driving change.
https://www.healcanada.org
#PatientVoices
When patients, caregivers, and physicians speak, we listen. Their voices remind us why this matters — and why action can’t wait. Sign & share the petition today: brigimadlinpetition.org #SaveBrigimadlin #PatientVoices #liposarcoma
@boehringerglobal.bsky.social
Right now, KidneyCAN & Hope for Stomach Cancer are on Capitol Hill & on the phones advocating for funding that drives kidney and gastric cancer research and early detection.
We're proud to partner with them! This is what advocacy looks like!
#KidneyCAN #HopeForStomachCancer #PatientVoices
How Psilocybin Therapy Changed the Way I Process Emotions
Meet Daryna Skybina, MPS who participated in a clinical trial studying psilocybin-assisted therapy for people with advanced cancer.
#PsychedelicTherapy #PsychedelicResearch #LivedExperience #CancerResearch #PatientVoices #Psychedelics
Watch here: https://bionews.com/rare-disease-day/
Heather Novak shares how living with hypoparathyroidism has reshaped her relationships — and why communication, flexibility, and self-respect matter most. 💜
#Hypoparathyroidism #RareDiseaseCommunity #PatientVoices #ChronicIllness
Many survivors describe a shift in perspective after cancer. Their stories remind us that survivorship includes emotional growth as well as medical recovery.
#CancerSurvivorship #PatientVoices #TCSC
Yesterday was World Obesity Day. We asked some Smart Patients what they wished their doctors understood about living with obesity. Our latest blog surfaces five things patients want healthcare providers to know.
Read more: https://ow.ly/eq0W50Yp6H6
#WorldObesityDay #PatientVoices #SmartPatients
Are We Allowed to Criticise Mental Health Professionals? By Bella Jackson
madintheuk.com/2026/02/are-...
#MentalHealth #Psychiatry #MentalHealthNursing #MentalHealthReform #PatientVoices #LivedExperience #Healthcare #NHS #Therapy
What 776 ECT Recipients Want You to Know
By Sarah Price Hancock
madintheuk.com/2026/02/what...
#ECT #MentalHealth #PatientVoices #InformedConsent #MedicalEthics #HumanRights #PsychSurvivors
#brigimadlin held real hope for patients with dedifferentiated liposarcoma. Sign & share the petition to help the research begin again. www.brigimadlinpetition.org #SaveBrigimadlin #PatientVoices #liposarcoma @boehringerglobal.bsky.social
Are We Allowed to Criticise Mental Health Professionals? By Bella Jackson
madintheuk.com/2026/02/are-...
#MentalHealth #Psychiatry #MentalHealthNursing #MentalHealthReform #PatientVoices #LivedExperience #Healthcare #NHS #Therapy
What 776 ECT Recipients Want You to Know
By Sarah Price Hancock
madintheuk.com/2026/02/what...
#ECT #MentalHealth #PatientVoices #InformedConsent #MedicalEthics #HumanRights #PsychSurvivors
Discover her calming strategy: https://bit.ly/4rkkNOS
When symptoms spike, Cindy focuses on calming her body and breathing through the moment.
#MyastheniaGravis #MGSymptoms #ChronicIllnessSupport #PatientVoices #MyastheniaGravisNews #Bionews
Infographic about upcoming webinar for Patient Voices in CMS drug price negotiations on February 24th 2026 at 1 P M eastern. Poster includes link to register.
Are medication costs affecting you or someone you care for? Join us tomorrow for this webinar: zurl.co/A0s04
➡️ Hear directly from CMS
➡️ Ask questions about the process
➡️ Share your experience in a safe space
#PatientVoices #MedicationAccess #DrugPrices #Caregivers #ChronicIllness #HealthEquity
Are We Allowed to Criticise Mental Health Professionals? By Bella Jackson
madintheuk.com/2026/02/are-...
#MentalHealth #Psychiatry #MentalHealthNursing #MentalHealthReform #PatientVoices #LivedExperience #Healthcare #NHS #Therapy
What 776 ECT Recipients Want You to Know
By Sarah Price Hancock
madintheuk.com/2026/02/what...
#ECT #MentalHealth #PatientVoices #InformedConsent #MedicalEthics #HumanRights #PsychSurvivors
Are We Allowed to Criticise Mental Health Professionals? By Bella Jackson
madintheuk.com/2026/02/are-...
#MentalHealth #Psychiatry #MentalHealthNursing #MentalHealthReform #PatientVoices #LivedExperience #Healthcare #NHS #Therapy
What 776 ECT Recipients Want You to Know
By Sarah Price Hancock
madintheuk.com/2026/02/what...
#ECT #MentalHealth #PatientVoices #InformedConsent #MedicalEthics #HumanRights #PsychSurvivors
These survivor stories remind us that education, support and research fuel progress in the fight against lung cancer. Keep the conversation going. #LungHealth #PatientVoices #TCSC
Personal cancer journeys remind us of both trials and triumphs. This inspiring patient story reflects on setbacks, resilience, and the blessings that come with support during treatment #PatientVoices #CancerJourney #TCSC www.curetoday.com/view/thankin...
