CAPRIN1 variants are rare — with only 24 reported cases. In order to get vital funding for research we're trying to get as many people possible tested to reflect true prevalence.
🌍 Do you have a confirmed variant? Get in touch: caprin1foundation.org/participate-...
#RareDisease #SupportRare
#HAE #HappyHalloween #HAEAwareness #ChronicIllnessCommunity #InvisibleIllness #RareDiseaseDay #HereditaryAngioedema #SupportRare #RareDiseaseAwareness #ChronicLife #SpoonieHalloween #BioNews #AngioedemaNews
Meet Luka, a sweet boy with NKH. His mom says, “We focus on quality over quantity. Every day with him is a gift.” NKH is rare, life-limiting, and brutal - no family chooses this. That’s why we fight for a cure, because Luka deserves a future. 💙 #CureNKH #RareDiseaseAwareness #SupportRare
He loves it! And says it is no longer sore getting the needle in."
By offering practical support, we’re ensuring no one faces this journey alone.
This #SmallCharityWeek, help us spread awareness and grow our impact.
#SmallCharityBigImpact #PIDAwareness #SupportRare 4/4
🧬 We Give a Damn About Rare Disease 💙
Because 1 in 10 people living with a rare disease isn’t rare at all.
We're here to listen, learn, and take action—because rare shouldn't mean invisible.
💪🏽 Awareness.
🧠 Education.
❤️ Real human support.
#RareDiseaseAwareness #SupportRare #PeopleCareai
All three images have a different colored gradient background: light blue to dark blue, light green to dark blue, & one pink to dark blue, representing the three colors from the RARE Disease Day hands logo. Each contains a large blue AMCSI ribbon on the left side, and on the right, it says AMC It’s Not Only Our Story… There’s power in joined voices *Awareness *Advocacy * Research * Hope with the RARE Diseseas Day hands logo emblem & the title RARE DISEASE DAY® & the date of FEBRUARY 28, 2025 written under it. At the bottom on the left are the Facebook, Instagram, BlueSky, TikTok, YouTube, & X logos with @AMCSUPPORT & the hashtag #RareDiseaseDay in yellow.
All three images have a different colored gradient background: light blue to dark blue, light green to dark blue, & one pink to dark blue, representing the three colors from the RARE Disease Day hands logo. Each contains a large blue AMCSI ribbon on the left side, and on the right, it says AMC It’s Not Only Our Story… There’s power in joined voices *Awareness *Advocacy * Research * Hope with the RARE Diseseas Day hands logo emblem & the title RARE DISEASE DAY® & the date of FEBRUARY 28, 2025 written under it. At the bottom on the left are the Facebook, Instagram, BlueSky, TikTok, YouTube, & X logos with @AMCSUPPORT & the hashtag #RareDiseaseDay in yellow.
All three images have a different colored gradient background: light blue to dark blue, light green to dark blue, & one pink to dark blue, representing the three colors from the RARE Disease Day hands logo. Each contains a large blue AMCSI ribbon on the left side, and on the right, it says AMC It’s Not Only Our Story… There’s power in joined voices *Awareness *Advocacy * Research * Hope with the RARE Diseseas Day hands logo emblem & the title RARE DISEASE DAY® & the date of FEBRUARY 28, 2025 written under it. At the bottom on the left are the Facebook, Instagram, BlueSky, TikTok, YouTube, & X logos with @AMCSUPPORT & the hashtag #RareDiseaseDay in yellow.
Rare Diseases Day 🦓
Today, we celebrate our RARE friends & push for awareness, research, and support to create real change! 🌟⚕️
🔗 Learn more: amcsupport.org
🔗 Learn more: www.rarediseaseday.org
#RareDiseaseDay #RareIsStrong #SupportRare #AMCSI #Arthrogryposis #RAREfriends #Hope #Advocacy
💡 Light Up for Rare – Rare Disease Day 2025 💜💙💚
This Rare Disease Day, we are coming together to Light Up for Rare and shine a spotlight on the 300 million people worldwide living with a rare disease.
#LightUpForRare #RareDiseaseDay #SupportRare #RareButNotAlone #ThankYouNHS
February is Rare Disease Awareness Month! 🌍
During this month, let’s stand together to raise awareness, show support, and advocate for better healthcare for those affected by rare diseases. Every voice matters!
#RareDiseaseDay #LightUpForRare #SupportRare #HealthcareForAll
