Last week, Elly met Dr Van Hove, one of our NKH research partners, while he was in London for the IND Conference. It was an inspiring catch-up - full of exciting ideas, research updates, and hope for what’s ahead in NKH research. Momentum is building and the future feels hopeful! #CureNKH

Huge thanks to everyone who took part in the NKH 100 Mile Challenge! 💙 Together, we raised £4,234.29 to support kids with NKH and NKH research. Every mile brings us closer to a cure! Want to join in 2026? Sign up to our newsletter! #CureNKH #NonketoticHyperglycinemia

Meet Luka, a sweet boy with NKH. His mom says, “We focus on quality over quantity. Every day with him is a gift.” NKH is rare, life-limiting, and brutal - no family chooses this. That’s why we fight for a cure, because Luka deserves a future. 💙 #CureNKH #RareDiseaseAwareness #SupportRare

Meet Alice. Alice has NKH, and just turned 14 - a miracle after the rollercoaster of living in hospital and palliative care in her first year. Her journey with NKH has been brutal, but she's here. We fight for better futures for kids like Alice. 💛 mikaerefoundation.org #CureNKH #RareButReal

No parent should hear “there’s no treatment.” Help us change that. Just £3/month can help fund NKH research and give children with NKH a real chance at a future. Join us: mikaerefoundation.org/the-hive 💛 #CureNKH #RareButWorthIt #TeamMikaere