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Posts by Gitte 🧿✨

I don't have arthritis I have early onset rigor mortis. 

[skeleton dancing and a crow or raven]

DearFibromyalgia/Beth

I don't have arthritis I have early onset rigor mortis. [skeleton dancing and a crow or raven] DearFibromyalgia/Beth

10 months ago 4179 570 98 44
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✨ MAGNETIC ENERGY ALERT ✨ Margaret Atwood called. She wants you to spread the gospel from your bumper.
$12 gets you a mobile piece of resistance art.🌷Free shipping because we believe in liberation, not hidden fees #CarMagnet #BumperStickers #RollingResistance #ProtestOnTheGo huldrashollow.etsy.com

9 months ago 6 10 0 0
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Interesting catch by a user on X about today's shooting in Idaho

9 months ago 7 2 0 0

When u can't get #cancer tx or even #antiobiotics or a #vaccine cuz u can't afford it or it's unavailable or deemed unnecessary by those in power, when yr child can't afford college, when education itself crumbles, when u lose yr job to AI & safe food & water are no longer a given, remember this. 👇

9 months ago 3 1 0 0
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📣 Going to #MASCC25? Catch my Rapid E-Poster
🗓 June 26 | 🕒 15:35–15:40
📍 Grand Ballroom I & II – Stage 2
Beyond the #Pain: Understanding #Cancer Treatment-Related Oral #Mucositis Through #Patient Experiences

👕 We’ve got t-shirts! @cancersuckless.bsky.social @cancercaremascc.bsky.social

9 months ago 6 1 0 0

"‘Supportive care’ refers 2 managing toxicities of #cancer tx but embraces all symptom management thru tx & survivorship. Unfortunately, supportve care delivery remains low. One study found up to 81% of cancer survivors had unmet supportive care needs & were dissatisfied w/current services." #CanSky

9 months ago 7 4 2 0
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Progression-free survival is NOT an ideal endpoint (advocates could have told you this!)
Interesting to see the intentions behind it as an endpoint tho
#ASCO25
~ Chris Booth

10 months ago 11 5 0 0
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Common Myths vs Facts about Invasive Lobular Carcinoma (ILC) - The Lobular Breast Cancer Alliance LBCA has developed a new patient resource to help clear up common and pervasive myths about invasive lobular carcinoma (ILC) and its treatment. Many misconceptions […]

LBCA has developed a new patient resource: Myths and Facts about Invasive Lobular Carcinoma to help clear up common and pervasive myths about invasive lobular carcinoma (ILC). Read it here: lobularbreastcancer.org/myths-vs-fac...

10 months ago 6 3 0 0
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👕 Headed to ASCO? Come find me if you want a #MakeCancerLessShitty t-shirt! They’re soft, expressive, and mildly therapeutic. Like a hug… but with attitude. Limited supply—like everyone’s emotional bandwidth 💩 #ASCO2025 #SuppOnc #SurvOnc #CancerHumor #OncoSwag @cancersuckless.bsky.social

10 months ago 14 6 0 0
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Very much looking forward to the conversations around how we can improve the quality of, and access to, supportive care, based on key findings from the patient and advocacy community.
Also looking forward to hanging out with those at #MASCC25

11 months ago 5 2 0 0
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JOIN US for a Lobular Breast Cancer Chat with Dr. Yeh, advocate Gitte Joergensen @gitteilc.bsky.social & Dr. Ulaner to discuss new metastatic ILC imaging research, the SNMMI Mars Shot program @snmmi-marsshot.bsky.social & more! Register here: forms.gle/WzWvmQn9dWhe...

11 months ago 3 1 0 0
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Excited that our team will be presenting at #MASCC25

Let’s make supportive care smarter, stronger, and more human 🧬 💪 💚

@coffeemommy.bsky.social @jj5145.bsky.social @cancersuckless.bsky.social @cancercaremascc.bsky.social #OralMucositis #MakeCancerLessShitty #PatientVoice #SuppOnc #SurvOnc

11 months ago 8 3 0 2

Hey @flysas.com, I’ve now been on hold for 1 hour and 20 minutes (and this is not the first time). All I want is to use my voucher to book a flight—shouldn’t be this hard, right? Please message me so we can sort this out. #DoBetter #SAS #CustomerService ✈️ 🤷‍♀️

1 year ago 4 2 0 0

cheese is woke now

1 year ago 23475 1930 1051 229
A woman could have an axe sticking out of her forehead and a dozen knives sticking out of her back and the first question the doctor will always ask is "what was the date of your last menstrual  period"

A woman could have an axe sticking out of her forehead and a dozen knives sticking out of her back and the first question the doctor will always ask is "what was the date of your last menstrual period"

1 year ago 609 89 25 14
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Yesterday, I fondly remembered my dear friend Leonard Nimoy, who would have turned 94. His legacy lives on in our hearts. Just days ago, Bill Shatner celebrated his 94th birthday — wishing him continued health and happiness. Live long and prosper, my friends.

1 year ago 74459 7379 1401 308
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@cancersuckless.bsky.social

1 year ago 5 1 0 0
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LIVE: Trump-folk er igen på vej til Grønland Midt i de grønlandske regeringsforhandlinger har en ny amerikansk delegation med prominente folk meldt deres ankomst.

www.dr.dk/nyheder/poli...

1 year ago 0 0 0 0

We expected 2,000 people out in GOP-held Greeley, Colorado.

11,000 people showed up.

Something special is happening, folks. Now is the time to organize in every dimension possible and get to work.

1 year ago 128301 25885 3700 1735
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Welcome to autocracy. The Republic we have known for the last 240 years is gone. This is going to keep getting worse. Much worse. The courts mean nothing, the law means nothing, Congress is irrelevant. He is a malignant psychopath.

1 year ago 31964 9513 2952 1016
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It gets worse. Schumer isn’t just going on a book tour—he’s charging for tickets.

Absolute insanity. While Americans are scared and in crisis mode, he’s basically saying, let them eat cake.

@schumer.senate.gov Step Down.

1 year ago 14785 4599 2401 1032

Many hours have passed and I’ve thought about what happened in the Senate some more.

And you know what? I’m still mad as hell.

I may just repost their names every day until everyone knows them by heart.

1 year ago 47071 6428 1974 351
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a cat is standing on top of a woman 's head in bed . Alt: a cat is standing on top of a woman 's head in bed .
1 year ago 2 1 0 0

I think some in the Senate have convinced themselves that the backlash to folding will be limited to “the left” and therefore ignorable.

Those people are deeply and profoundly misreading the moment and the stakes.

Virtually every swing district House Dem walked the plank to vote NO for a reason.

1 year ago 131686 24377 4955 1458
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🚨 A Trip to the Dentist: Cancer Survivor Edition 🚨
@cancersuckless.bsky.social @thankscancer.bsky.social
#MakeCancerLessShitty #DentalPhobiaChronicles #SurvivorLife #NitrousAndNostalgia #SendHelp #SuppOnc #SurvOnc #Cancersky

1 year ago 6 2 0 0
an owl in a crown saying matriarchy now

an owl in a crown saying matriarchy now

i made a thing. happy international womens day.
let women lead.

1 year ago 69 15 3 2
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SpaceX is a piece of shit, just like Elon Musk.

1 year ago 3113 818 243 70
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Trudeau: I want to speak first directly to the American people… your government has chosen to do this to you. Your government has chosen to put American jobs at risk. They have chosen to raise costs for American consumers on everyday essential items…

1 year ago 75726 20451 2030 1364
Advocate Chat: First Recipient of Deborah Mueller Foundation Lobular Breast Cancer Research Grant
Advocate Chat: First Recipient of Deborah Mueller Foundation Lobular Breast Cancer Research Grant YouTube video by Lobular Breast Cancer Alliance 2023

youtu.be/qI50HWXJ16Y @lobularbca.bsky.social #lobular #bcsm

1 year ago 2 0 0 0