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Posts by ALS News Today

You bring something unique to the world that ALS cannot erase.

#RareDiseaseCommunity

18 minutes ago 0 0 0 0

Your worth isn’t measured in tasks, energy, or output.

#ALS

3 hours ago 0 0 0 0
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Daily life adapts: https://bit.ly/403tku9

Small adjustments to routines, nutrition, movement, and support can make everyday living more manageable.

#ALS #LivingWithALS #DailyLife #CaregiverSupport #ChronicIllness #RareDisease #Bionews #ALSNewsToday

4 hours ago 0 0 0 0
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Sharing a hard reflection: https://bit.ly/47t5xrZ

Caring for someone with ALS can mean grieving losses that happen slowly over time while your loved one is still right beside you.

#ALSNewsToday #ALSCommunity #CaregiverSupport #ALSFamily #HoldingSpace #CaregiverLife #Bionews

22 hours ago 0 0 0 0

Strength can exist without movement, effort, or action.

#ALScommunity

1 day ago 0 0 0 0
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Add your viewpoint: https://bit.ly/4qVcs4T

#ALS #ALSNewsToday #Bionews #LifeWithALS

1 day ago 0 0 0 0

There is value in every way you show up

#ALSsupport

1 day ago 0 0 0 0
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Reflect Through Memories: https://bit.ly/4mXtJIB

#ALSNewsToday #BittersweetMoments #LouGehrigsDisease #Bionews

1 day ago 0 0 0 0

Today holds space for you exactly as you are.

#ALSCommunity

2 days ago 0 0 0 0

How you show up today is shaped by things most people never see.

#RareDiseaseCommunity

2 days ago 0 0 0 0
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Support is available: https://bit.ly/3MOay6Q

Emotional distress can become overwhelming, but help exists through professionals, support networks, and crisis resources when needed.

#ALS #MentalHealthSupport #CaregiverSupport #ALSSupport #RareDisease #PatientSupport #Bionews #ALSNewsToday

2 days ago 0 0 0 0
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When Work Is Lost: https://bit.ly/3TfYXNs

#ALSNewsToday #CareerLoss #ALS #Bionews

2 days ago 0 0 0 0

You’re moving through something complex, and it’s okay if your emotions are, too.

#ALS

3 days ago 1 0 0 0
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Design It Better: https://bit.ly/3ZmhpXQ

Small changes can bring relief. Tell us what you would add - Share in the forum!

#ALSNewsToday #Bionews #Mobility #AdaptiveLiving #AssistiveTech #DisabilityInclusion #ALS

3 days ago 1 0 0 0

Some moments carry a kind of meaning that only you can define.

#ALS

3 days ago 0 0 0 0
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Accepting a feeding tube: https://bit.ly/3LoaU39

Nancy Muirhead shares how choosing a PEG feeding tube, lovingly nicknamed “Pegster,” is helping her reconnect with food and joy rather than struggle.

#ALS #Bionews #ALSNewsToday #ALSCommunity #LifeWithALS #PegTube #ALSSupport #AdaptiveLiving

3 days ago 0 0 0 0

The way you process today belongs entirely to you.

#LivingWithALS

4 days ago 0 0 0 0
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Share your daily reality: https://bit.ly/47BRpN4

#ALS #ALSNewsToday #Bionews #LifeWithALS #AssistiveDevice

4 days ago 0 0 0 0
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The everyday, challenging moments, such as repositioning in bed, bathing, and waiting for help with the restroom, can be some of the hardest parts of this disease. Your experiences during these times are recognized within this community.

#ALS

4 days ago 0 0 0 0
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Find your online fit: https://bit.ly/3T6yRwx

#ALSNewsToday #OnlineSupport #ALSGroups #Bionews

4 days ago 0 0 0 0

Caregivers do a thousand invisible things every day. We see you and send a virtual hug your way 🫂

#ALSCaregiver

5 days ago 1 1 0 0
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Let’s hear from you: https://bit.ly/3JZ9LOX

#ALS #ALSNewsToday #Bionews #LifeWithALS #AnnualHealthScreen

5 days ago 0 0 0 0

For parents with ALS: the love you show your kids, even if it comes across differently, still reaches them.

#ALS

5 days ago 0 0 0 0
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Understanding disease progression: https://bit.ly/4aGd7jp

ALS affects everyone differently, but learning about common stages can help with planning, expectations, and support decisions over time.

#ALS #ALSStages #ALSAwareness #LivingWithALS #CaregiverSupport #RareDisease #Bionews #ALSNewsToday

5 days ago 0 0 0 0
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Small Wins, Big Relief: https://bit.ly/4mXtGfT

#ALSNewsToday #AssistiveDevices #ALSWarrior #Bionews

5 days ago 0 0 0 0

Families living with ALS learn to manage fear, love, and responsibility all at once. It takes a community’s support, along with immense love and strength.

#ALS

6 days ago 0 0 0 0
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Your body is carrying something far heavier than most people understand. This community acknowledges every hurdle you're going through.

#ChronicIllness

6 days ago 0 0 0 0
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Tools can help: https://bit.ly/4qK08Dc

Assistive devices can support independence, comfort, and safety as needs change. Many families find that the right equipment makes daily life more manageable.

#ALS #AssistiveTechnology #CaregiverSupport #RareDisease #Bionews #ALSNewsToday

6 days ago 0 0 0 0
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Finding your own rhythm: https://bit.ly/3KWD7gV

Dagmar Munn reflects on how actions, like balloon-blowing, humming, or mindful breathing, can help maintain a sense of control while living with ALS.

#ALS #ALSNewsToday #Bionews #AmyotrophicLateralSclerosis #ALSCommunity #LungHealth

6 days ago 1 0 0 0

Your effort counts, even when the outcome looks different than before.

#RareDisease

1 week ago 0 0 0 0