You bring something unique to the world that ALS cannot erase.
#RareDiseaseCommunity
Posts by ALS News Today
Your worth isn’t measured in tasks, energy, or output.
#ALS
Daily life adapts: https://bit.ly/403tku9
Small adjustments to routines, nutrition, movement, and support can make everyday living more manageable.
#ALS #LivingWithALS #DailyLife #CaregiverSupport #ChronicIllness #RareDisease #Bionews #ALSNewsToday
Sharing a hard reflection: https://bit.ly/47t5xrZ
Caring for someone with ALS can mean grieving losses that happen slowly over time while your loved one is still right beside you.
#ALSNewsToday #ALSCommunity #CaregiverSupport #ALSFamily #HoldingSpace #CaregiverLife #Bionews
Strength can exist without movement, effort, or action.
#ALScommunity
Add your viewpoint: https://bit.ly/4qVcs4T
#ALS #ALSNewsToday #Bionews #LifeWithALS
There is value in every way you show up
#ALSsupport
Reflect Through Memories: https://bit.ly/4mXtJIB
#ALSNewsToday #BittersweetMoments #LouGehrigsDisease #Bionews
Today holds space for you exactly as you are.
#ALSCommunity
How you show up today is shaped by things most people never see.
#RareDiseaseCommunity
Support is available: https://bit.ly/3MOay6Q
Emotional distress can become overwhelming, but help exists through professionals, support networks, and crisis resources when needed.
#ALS #MentalHealthSupport #CaregiverSupport #ALSSupport #RareDisease #PatientSupport #Bionews #ALSNewsToday
When Work Is Lost: https://bit.ly/3TfYXNs
#ALSNewsToday #CareerLoss #ALS #Bionews
You’re moving through something complex, and it’s okay if your emotions are, too.
#ALS
Design It Better: https://bit.ly/3ZmhpXQ
Small changes can bring relief. Tell us what you would add - Share in the forum!
#ALSNewsToday #Bionews #Mobility #AdaptiveLiving #AssistiveTech #DisabilityInclusion #ALS
Some moments carry a kind of meaning that only you can define.
#ALS
Accepting a feeding tube: https://bit.ly/3LoaU39
Nancy Muirhead shares how choosing a PEG feeding tube, lovingly nicknamed “Pegster,” is helping her reconnect with food and joy rather than struggle.
#ALS #Bionews #ALSNewsToday #ALSCommunity #LifeWithALS #PegTube #ALSSupport #AdaptiveLiving
The way you process today belongs entirely to you.
#LivingWithALS
Share your daily reality: https://bit.ly/47BRpN4
#ALS #ALSNewsToday #Bionews #LifeWithALS #AssistiveDevice
The everyday, challenging moments, such as repositioning in bed, bathing, and waiting for help with the restroom, can be some of the hardest parts of this disease. Your experiences during these times are recognized within this community.
#ALS
Find your online fit: https://bit.ly/3T6yRwx
#ALSNewsToday #OnlineSupport #ALSGroups #Bionews
Caregivers do a thousand invisible things every day. We see you and send a virtual hug your way 🫂
#ALSCaregiver
Let’s hear from you: https://bit.ly/3JZ9LOX
#ALS #ALSNewsToday #Bionews #LifeWithALS #AnnualHealthScreen
For parents with ALS: the love you show your kids, even if it comes across differently, still reaches them.
#ALS
Understanding disease progression: https://bit.ly/4aGd7jp
ALS affects everyone differently, but learning about common stages can help with planning, expectations, and support decisions over time.
#ALS #ALSStages #ALSAwareness #LivingWithALS #CaregiverSupport #RareDisease #Bionews #ALSNewsToday
Small Wins, Big Relief: https://bit.ly/4mXtGfT
#ALSNewsToday #AssistiveDevices #ALSWarrior #Bionews
Families living with ALS learn to manage fear, love, and responsibility all at once. It takes a community’s support, along with immense love and strength.
#ALS
Your body is carrying something far heavier than most people understand. This community acknowledges every hurdle you're going through.
#ChronicIllness
Tools can help: https://bit.ly/4qK08Dc
Assistive devices can support independence, comfort, and safety as needs change. Many families find that the right equipment makes daily life more manageable.
#ALS #AssistiveTechnology #CaregiverSupport #RareDisease #Bionews #ALSNewsToday
Finding your own rhythm: https://bit.ly/3KWD7gV
Dagmar Munn reflects on how actions, like balloon-blowing, humming, or mindful breathing, can help maintain a sense of control while living with ALS.
#ALS #ALSNewsToday #Bionews #AmyotrophicLateralSclerosis #ALSCommunity #LungHealth
Your effort counts, even when the outcome looks different than before.
#RareDisease