It's time to invest in biomedical research of complex chronic illness, harnessing patient expertise and community! Thanks @betsyladyzhets.bsky.social for this piece with @remissionbiome.bsky.social @meactnet.bsky.social +.
Gracias for including my voice & #MillionsMissing MX. #ME #LongCovid #POTS
@remissionbiome.bsky.social @tessfalor.bsky.social have been talking about these issues. Here’s a recent talk by Peter Rowe on the subject. I’m wishing you good treatment and support
youtu.be/WaM2mPzR64w?...
Here's the recording of the second Peter Rowe talk!
He covered many topics today, including thoracic outlet syndrome, Craniocervical Instability, cervical stenosis, and MCAS.
youtu.be/WaM2mPzR64w?...
Free webinar tomorrow by Dr Rowe, with Q&A.
#MECFS #LongCovid #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS
Recording of Part 1 here:
Happening tomorrow at 2pm EST!
Register here: us06web.zoom.us/webinar/regi...
(If you already registered for the 1st one, you don't have to register again.)
Part 2 - Peter Rowe, MD
Feb 16 at 2pm EST
Dr. Rowe will cover:
✨Bio-mechanical issues including thoracic outlet syndrome
✨Neuro-anatomic problems including cervical stenosis & CCI
✨Mast Cell Activation
Register here: us06web.zoom.us/webinar/regi...
Want to understand why and how many people are using nicotine patches for #LongCovid and #MECFS?
Start here!
Linktr.ee/thenicotinetest
Register to join us next week, if you didn't register for the first one:
us06web.zoom.us/webinar/regi...
(If you already registered for the first one you don't have to register again. It's the same link.)
Watch the recording of Dr. Peter Rowe's talk that he just did for the community:
youtu.be/hTNpWjbVhsY?...
It was fantastic! We can't wait to have him back next week and for a clinical roundtable in the future.
Reminder that part 1 of Dr. Rowe's talk is today at 2pm EST!
Sign up link 👇
us06web.zoom.us/webinar/regi...
#MECFS #LongCOVID #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS
RemissionBiome20 gets you 20% off...
and Healthy Gut donates 10% to help fund @remissionbiome.bsky.social studies. 😀
Thanks for "oversharing" - and Big Congratulations On Your Abnormal Test Results! 🎉
Colorful graphic of the moon that says “moonshot for Long Covid: Demand long Covid funding! 20 million Americans. Zero treatments. Call your reps November 14.”
Just called & emailed my reps asking for their support of a #LongCovidMoonshot 🚀🌝
Have you made your calls yet today?
Call guide here: longcovidmoonshot.com
During my 2009 @remissionbiome.bsky.social event, I was shocked to realize how sick I had really been. I had gotten so used to it that I didn't even know how bad it was until it went away. I started to think that EVERYONE was probably actually sick, but was just used to it.
The @remissionbiome.bsky.social #Renegade50 are spread around the US, Canada, Mexico, EU, and UK. For Biome2 we have people lined up in Australia, Finland, Iceland, & Bali + others in the running in India, Lithuania, Trinidad & Tobago, South Africa, Indonesia, Japan, Brazil, & many more.
The Microbiome's Impact on Health - my interview with Dr. Alessio Fasano
ancestralhealth.substack.com/p/the-microb...
Not protecting the most vulnerable is criminal. We know that cancer patients are at greater risk of contracting and complications from ID. How can we end this madness?
In a world where you can be anything: Be kind, be honest, be in service of others. We only live once & don't take anything with us. At the end of my journey, I want to have been loved & trusted. Today, I want laugh, find joy in the everyday things & never lose my humanity!!!
Throughout my illness, I have gone through financial devastation from medical bills and not being able to work. There were many times when I saw people having access to trx I couldn't even think of having. I clawed myself out some of the worst times by 1/
β-Caryophyllene, A Natural Dietary CB2 Receptor Selective Cannabinoid can be a Candidate to Target the Trinity of Infection, Immunity, and Inflammation in COVID-19 - PMC
www.ncbi.nlm.nih.gov/pmc/articles...
My very first conversation with @tessfalor.bsky.social about what has become @remissionbiome.bsky.social
- I told her right away “I’ll do it ”. Then my abx ready in January 2023 to get started.
Frontiers | Reaction of Human Monoclonal Antibodies to SARS-CoV-2 Proteins With Tissue Antigens: Implications for Autoimmune Diseases
www.frontiersin.org/articles/10....
Excellent 🧵 about CDC's new page on "chronic symptoms following infections"
www.cdc.gov/ncezid/what-...
