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Posts by melindasays_25thSec4NOW

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Study links long COVID in kids to worse grades, attention, and social life

www.cidrap.umn.edu/covid-19/stu...

2 days ago 11 7 0 1

I'm not joking when I say mRNA technology is more important than "AI" and it's a tragedy we're throwing billions into one while our government is aggressively defunding the other.

2 days ago 14924 5518 114 106

@alsobrooks.senate.gov @vanhollen.senate.gov please sign on and #FundLongCOVID research!

3 days ago 0 0 0 0
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Sign On, Senators: #FundLongCOVID in FY27

21 million Americans with Long COVID are depending on YOU. Ask your Senator to sign the FY27 Dear Colleague letter by Friday and #FundLongCOVID research and care. 👉🏻👉🏽👉🏿 [Campaign URL] share.nwmd.social/s/NAZH6KG9

3 days ago 0 0 1 0
ME/CFS Advocacy Week 2026 Day 4: Sign letters to State Medical Boards and Chief Medical Officers, share widely, optional Zoom at 3 pm ET. Text-based graphic with cream background and red and blue writing. Text: Day 4 Sign your name to letters to State Medical Boards and Chief Medical officers.* Share with your networks! Optional Zoom call at 3 om ET. *Medical providers add your name to our  clinician letter!

ME/CFS Advocacy Week 2026 Day 4: Sign letters to State Medical Boards and Chief Medical Officers, share widely, optional Zoom at 3 pm ET. Text-based graphic with cream background and red and blue writing. Text: Day 4 Sign your name to letters to State Medical Boards and Chief Medical officers.* Share with your networks! Optional Zoom call at 3 om ET. *Medical providers add your name to our clinician letter!

Today for #MECFSAdvocacyWeek: add your name to letters to State Medical Boards & Chief Medical Officers.

Community sign-on: tinyurl.com/StateMedicalBoardForm

Clinicians: tinyurl.com/ClinicianSignOnForm

Share our posts: tinyurl.com/MECFSThursdaySocials

Optional Zoom at 3 pm ET.

Solve M.E.
#pwME

3 weeks ago 17 11 1 3
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Community Letter Sign-on Form Thank you for adding your voice to this effort. By signing on, you are joining patients, caregivers, clinicians, and allies across the country in asking State Medical Boards and State Health Leadership to recognize ME/CFS competency as a patient safety and standard-of-care issue — and to recommend that ME/CFS questions be included in national licensure exams. This form gives you the option to sign on to each of these letters: The State Medical Board Letter asks your State Medical Board to meet with clinicians and lived experience experts to discuss ME/CFS education gaps, and to recommend...

#MECFS is not consistently recognized, diagnosed, or safely managed across healthcare settings.

We're asking State Medical Boards to meet with our community & support our efforts to get ME/CFS questions on national licensing exams.

Sign: https://ow.ly/vLAK50YzkCb

Solve M.E. #MEAction Network

3 weeks ago 20 13 1 2
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NEWS: Bette Midler just released a remake of Woody Guthrie’s classic protest song “All You Fascists Bound to Lose,” updated to fit the current moment and urge action ahead of the midterms.

You have to listen to this.

3 weeks ago 6887 2911 203 309

@vanhollen.senate.gov
@alsobrooks.senate.gov
9M Americans have ME/CFS and there are still no FDA-approved treatments. Please support our asks! #MEAwareness

3 weeks ago 1 0 0 0

@vanhollen.senate.gov @alsobrooks.senate.gov
Three asks: $15.4M for the CDC ME/CFS Program, $50M for the NIH Research Roadmap, and ME/CFS in the PRMRP. Please support all three in the FY27 appropriations bills. Your constituents are counting on you. #MEAwareness

3 weeks ago 1 0 1 0
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@vanhollen.senate.gov @alsobrooks.senate.gov
ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness

3 weeks ago 4 1 1 0

@repjohnnyo.bsky.social
9M Americans have ME/CFS and there are still no FDA-approved treatments. Please support our asks! #MEAwareness

3 weeks ago 2 0 0 0

@repjohnnyo.bsky.social
Three asks: $15.4M for the CDC ME/CFS Program, $50M for the NIH Research Roadmap, and ME/CFS in the PRMRP. Please support all three in the FY27 appropriations bills. Your constituents are counting on you. #MEAwareness

3 weeks ago 2 0 1 0

@repjohnnyo.bsky.social
ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness

3 weeks ago 3 2 1 0
Text-based graphic: "Me/CFS Advocacy Week 2025 Federal Advocacy Day ME/CFS has no FDA-approved treatments. Ask your  Senators and Representatives to sign onto Dear Colleague letters in support of our community appropriations requests- we need medical research funding."

Text-based graphic: "Me/CFS Advocacy Week 2025 Federal Advocacy Day ME/CFS has no FDA-approved treatments. Ask your Senators and Representatives to sign onto Dear Colleague letters in support of our community appropriations requests- we need medical research funding."

ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that.

Today advocates are asking Congress to change that - join us! It takes 5 minutes:
https://ow.ly/2hKo50YySls

#MECFS #MEAwarenessHour

Solve M.E. #MEAction Network

3 weeks ago 42 23 0 2
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Tell Congress to Fund ME/CFS Research in FY27 9 million Americans live with ME/CFS — a serious, disabling disease with no FDA-approved treatments. I just contacted my representatives to urge them to increase CDC funding, keep ME/CFS as an eligibl...

ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that.

Today advocates are asking Congress to change that - join us! It takes 5 minutes:
solvecfs.quorum.us/campaign/157943/

#MECFS #MEAwarenessHour

3 weeks ago 28 15 0 5
Graphic stating ME/CFS has no FDA-approved treatments, urging support for medical research funding through advocacy letters.

Graphic stating ME/CFS has no FDA-approved treatments, urging support for medical research funding through advocacy letters.

Today for #MECFSAdvocacyWeek: make your voice heard at the federal level.

Contact your reps: solvecfs.quorum.us/campaign/157943
Share our posts: tinyurl.com/MECFSFederalAdvocacyDay

#MECFS #pwME #MEAwarenessHour

3 weeks ago 25 16 0 0
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SUFS NoKings3 Accessible Rally — STAND UP FOR SCIENCE NO KINGS 3 ACCESSIBLE RALLY organized by Stand Up for Science - An online and inclusive rally for everyone, everywhere, on March 28th, 12:30 - 2PM CT followed by live stream of the national flagship ...

NO KINGS 3 VIRTUAL RALLY organized by Stand Up for Science! Saturday, March 28th, from 12:30-2pm CT, it's an accessible and inclusive rally for everyone, everywhere. #NoKings3 #NoKings #Democracy #VirtualRally #ChronicIllness #MECFS www.standupforscience.net/sufs-nk3

3 weeks ago 3 0 0 0
White text on a green-blue background. The text is describing Melinda's crash and loss of baseline after finishing the clinical med trial she was in.

White text on a green-blue background. The text is describing Melinda's crash and loss of baseline after finishing the clinical med trial she was in.

White text on a green-blue background. The text is describing Melinda's crash and loss of baseline after finishing the clinical med trial she was in.

White text on a green-blue background. The text is describing Melinda's crash and loss of baseline after finishing the clinical med trial she was in.

👋🏻 #severeME sux

#MECFS #LongCovid #ChronicIllness

4 weeks ago 3 1 0 0
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Reported from San Antonio area news -- There's a #Measles outbreak at the #Dilley detention center where #LiamRamos was being held. #LiamConejoRamos is back home but there are still 400 other children (1200 total detainees) still at the facility.
#MedSky #IDSky
www.sacurrent.com/news/san-ant...

2 months ago 117 71 8 9

Following the violent assault of a disabled woman by ICE last week, and the many reports of abuses of people with disabilities in their concentration camps, it’s worth rereading this primer on Disability Criminalisation from the Center for Racial and Disability Justice

2 months ago 12 12 0 0

This entire thread is important. Exactly the movement analysis and reporting that our media will never do. Watch ICE, denounce fascism all you like - we’ll never build power if we don’t learn how. The Minnesotans aren’t simply “nice.” They are deeply organized.

2 months ago 7 5 0 0
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I know it's hard to track all the threats to democracy out there right now, but this is at the top of the list.

2 months ago 16980 7032 1518 754
STATEMENT REGARDING DETENTION OF STANDING ROCK SIOUX TRIBE MEMBER IN MINNESOTA

JANUARY 24, 2026

I was notified today, January 24, 2026, that a Standing Rock Sioux Tribe member has been detained by the U.S. Immigrations and Customs Enforcement (ICE) in the state of Minnesota. Tribal leadership is actively working to locate the individual, gather accurate information, and coordinate with the appropriate authorities to secure their release.

At this time, details surrounding the detention remain limited. I urge the public to refrain from spreading unverified information while this matter is being reviewed.

Standing Rock Sioux Tribe will continue to advocate for the protection of our citizen's rights and will provide updates as appropriate.

STATEMENT REGARDING DETENTION OF STANDING ROCK SIOUX TRIBE MEMBER IN MINNESOTA JANUARY 24, 2026 I was notified today, January 24, 2026, that a Standing Rock Sioux Tribe member has been detained by the U.S. Immigrations and Customs Enforcement (ICE) in the state of Minnesota. Tribal leadership is actively working to locate the individual, gather accurate information, and coordinate with the appropriate authorities to secure their release. At this time, details surrounding the detention remain limited. I urge the public to refrain from spreading unverified information while this matter is being reviewed. Standing Rock Sioux Tribe will continue to advocate for the protection of our citizen's rights and will provide updates as appropriate.

ICE has kidnapped another Indigenous person in Minneapolis. This is the fifth member of the Očhéthi Šakówinnto be taken this month.

Statement from Standing Rock:

2 months ago 6293 3706 72 130

Voting NO on the DHS funding bill is the bare minimum.

Backing Kristi Noem’s impeachment is the bare minimum.

Holding law-breaking ICE agents legally accountable is the bare minimum.

ICE is beyond reform. Abolish it.

2 months ago 41716 10691 723 325
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Eyes on ICE: Document and Record · No Kings On Saturday, federal agents horrifically shot and killed 37-year-old Alex Pretti, an ICU nurse who cared for veterans, in the Eat Street neighborhood of south Minneapolis after brutally beating him in...

No Kings mass call

Tomorrow 8-9PM EST

www.mobilize.us/nokings/even...

2 months ago 288 100 5 7
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Federal officers have shot another person in Minnesota amid immigration crackdown, governor says | CBC

"According to reporting by The Associated Press, bystanders at the scene started screaming at federal officers, calling them "cowards." In response, an unnamed officer allegedly walked away from the crowd, mockingly yelling, "boo hoo," the AP reported."
www.cbc.ca/news/world/l...

2 months ago 79 34 0 2

All those people downtown yesterday, no ICE involvement, and not one incident. ICE shows up in a neighborhood and now another Minnesotan is dead. It's pretty obvious who the violent outside agitators are.

2 months ago 4349 1471 21 11

“There’s no point to calling because my senators already agree with me”

“There’s no point to calling because my senators won’t listen”

These are both false information and you should correct and/or block anyone circulating them. Your calls are tallied and create support and/or real pressure.

2 months ago 1419 655 4 13
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Call even if you think they are not going to listen to you

Mine never do but I know the staff struggle emotionally with what I say to them and I plan to wear them down

bsky.app/profile/blue...

2 months ago 402 115 5 1

Call. Your. Senators. Right. Fucking. Now. It’s ok if your voice shakes while you leave the voice mail. If you cry. If you cuss. If you’re inarticulate. Just get the message across.

bsky.app/profile/jaso...

2 months ago 742 468 1 19