Posts by melindasays_25thSec4NOW
I'm not joking when I say mRNA technology is more important than "AI" and it's a tragedy we're throwing billions into one while our government is aggressively defunding the other.
@alsobrooks.senate.gov @vanhollen.senate.gov please sign on and #FundLongCOVID research!
21 million Americans with Long COVID are depending on YOU. Ask your Senator to sign the FY27 Dear Colleague letter by Friday and #FundLongCOVID research and care. 👉🏻👉🏽👉🏿 [Campaign URL] share.nwmd.social/s/NAZH6KG9
ME/CFS Advocacy Week 2026 Day 4: Sign letters to State Medical Boards and Chief Medical Officers, share widely, optional Zoom at 3 pm ET. Text-based graphic with cream background and red and blue writing. Text: Day 4 Sign your name to letters to State Medical Boards and Chief Medical officers.* Share with your networks! Optional Zoom call at 3 om ET. *Medical providers add your name to our clinician letter!
Today for #MECFSAdvocacyWeek: add your name to letters to State Medical Boards & Chief Medical Officers.
Community sign-on: tinyurl.com/StateMedicalBoardForm
Clinicians: tinyurl.com/ClinicianSignOnForm
Share our posts: tinyurl.com/MECFSThursdaySocials
Optional Zoom at 3 pm ET.
Solve M.E.
#pwME
#MECFS is not consistently recognized, diagnosed, or safely managed across healthcare settings.
We're asking State Medical Boards to meet with our community & support our efforts to get ME/CFS questions on national licensing exams.
Sign: https://ow.ly/vLAK50YzkCb
Solve M.E. #MEAction Network
NEWS: Bette Midler just released a remake of Woody Guthrie’s classic protest song “All You Fascists Bound to Lose,” updated to fit the current moment and urge action ahead of the midterms.
You have to listen to this.
@vanhollen.senate.gov
@alsobrooks.senate.gov
9M Americans have ME/CFS and there are still no FDA-approved treatments. Please support our asks! #MEAwareness
@vanhollen.senate.gov @alsobrooks.senate.gov
Three asks: $15.4M for the CDC ME/CFS Program, $50M for the NIH Research Roadmap, and ME/CFS in the PRMRP. Please support all three in the FY27 appropriations bills. Your constituents are counting on you. #MEAwareness
@vanhollen.senate.gov @alsobrooks.senate.gov
ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
@repjohnnyo.bsky.social
9M Americans have ME/CFS and there are still no FDA-approved treatments. Please support our asks! #MEAwareness
@repjohnnyo.bsky.social
Three asks: $15.4M for the CDC ME/CFS Program, $50M for the NIH Research Roadmap, and ME/CFS in the PRMRP. Please support all three in the FY27 appropriations bills. Your constituents are counting on you. #MEAwareness
@repjohnnyo.bsky.social
ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
Text-based graphic: "Me/CFS Advocacy Week 2025 Federal Advocacy Day ME/CFS has no FDA-approved treatments. Ask your Senators and Representatives to sign onto Dear Colleague letters in support of our community appropriations requests- we need medical research funding."
ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that.
Today advocates are asking Congress to change that - join us! It takes 5 minutes:
https://ow.ly/2hKo50YySls
#MECFS #MEAwarenessHour
Solve M.E. #MEAction Network
ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that.
Today advocates are asking Congress to change that - join us! It takes 5 minutes:
solvecfs.quorum.us/campaign/157943/
#MECFS #MEAwarenessHour
Graphic stating ME/CFS has no FDA-approved treatments, urging support for medical research funding through advocacy letters.
Today for #MECFSAdvocacyWeek: make your voice heard at the federal level.
Contact your reps: solvecfs.quorum.us/campaign/157943
Share our posts: tinyurl.com/MECFSFederalAdvocacyDay
#MECFS #pwME #MEAwarenessHour
NO KINGS 3 VIRTUAL RALLY organized by Stand Up for Science! Saturday, March 28th, from 12:30-2pm CT, it's an accessible and inclusive rally for everyone, everywhere. #NoKings3 #NoKings #Democracy #VirtualRally #ChronicIllness #MECFS www.standupforscience.net/sufs-nk3
White text on a green-blue background. The text is describing Melinda's crash and loss of baseline after finishing the clinical med trial she was in.
White text on a green-blue background. The text is describing Melinda's crash and loss of baseline after finishing the clinical med trial she was in.
👋🏻 #severeME sux
#MECFS #LongCovid #ChronicIllness
Reported from San Antonio area news -- There's a #Measles outbreak at the #Dilley detention center where #LiamRamos was being held. #LiamConejoRamos is back home but there are still 400 other children (1200 total detainees) still at the facility.
#MedSky #IDSky
www.sacurrent.com/news/san-ant...
Following the violent assault of a disabled woman by ICE last week, and the many reports of abuses of people with disabilities in their concentration camps, it’s worth rereading this primer on Disability Criminalisation from the Center for Racial and Disability Justice
This entire thread is important. Exactly the movement analysis and reporting that our media will never do. Watch ICE, denounce fascism all you like - we’ll never build power if we don’t learn how. The Minnesotans aren’t simply “nice.” They are deeply organized.
I know it's hard to track all the threats to democracy out there right now, but this is at the top of the list.
STATEMENT REGARDING DETENTION OF STANDING ROCK SIOUX TRIBE MEMBER IN MINNESOTA JANUARY 24, 2026 I was notified today, January 24, 2026, that a Standing Rock Sioux Tribe member has been detained by the U.S. Immigrations and Customs Enforcement (ICE) in the state of Minnesota. Tribal leadership is actively working to locate the individual, gather accurate information, and coordinate with the appropriate authorities to secure their release. At this time, details surrounding the detention remain limited. I urge the public to refrain from spreading unverified information while this matter is being reviewed. Standing Rock Sioux Tribe will continue to advocate for the protection of our citizen's rights and will provide updates as appropriate.
ICE has kidnapped another Indigenous person in Minneapolis. This is the fifth member of the Očhéthi Šakówinnto be taken this month.
Statement from Standing Rock:
Voting NO on the DHS funding bill is the bare minimum.
Backing Kristi Noem’s impeachment is the bare minimum.
Holding law-breaking ICE agents legally accountable is the bare minimum.
ICE is beyond reform. Abolish it.
"According to reporting by The Associated Press, bystanders at the scene started screaming at federal officers, calling them "cowards." In response, an unnamed officer allegedly walked away from the crowd, mockingly yelling, "boo hoo," the AP reported."
www.cbc.ca/news/world/l...
All those people downtown yesterday, no ICE involvement, and not one incident. ICE shows up in a neighborhood and now another Minnesotan is dead. It's pretty obvious who the violent outside agitators are.
“There’s no point to calling because my senators already agree with me”
“There’s no point to calling because my senators won’t listen”
These are both false information and you should correct and/or block anyone circulating them. Your calls are tallied and create support and/or real pressure.
Call even if you think they are not going to listen to you
Mine never do but I know the staff struggle emotionally with what I say to them and I plan to wear them down
bsky.app/profile/blue...
Call. Your. Senators. Right. Fucking. Now. It’s ok if your voice shakes while you leave the voice mail. If you cry. If you cuss. If you’re inarticulate. Just get the message across.
bsky.app/profile/jaso...