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Posts by Kerry L. Wong 🦋 Float Like a Buttahfly

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Life & Breath Foundation
Sarcoidosis Support Group

The Life & Breath Foundation’s mission for this support group is to provide support, empowerment, and hope to individuals and families affected by sarcoidosis. Through a compassionate and understanding community, we strive to create a safe space where members can share their experiences, find valuable resources, and gain knowledge about this complex condition.

Thursday, April 23, 2026
8:00 - 9:00 pm ET

Register to attend at lifeandbreath.org

FLaB/SAM background with text Life & Breath Foundation Sarcoidosis Support Group The Life & Breath Foundation’s mission for this support group is to provide support, empowerment, and hope to individuals and families affected by sarcoidosis. Through a compassionate and understanding community, we strive to create a safe space where members can share their experiences, find valuable resources, and gain knowledge about this complex condition. Thursday, April 23, 2026 8:00 - 9:00 pm ET Register to attend at lifeandbreath.org

Life & Breath Foundation
#Sarcoidosis #SupportGroup

Thursday, April 23, 2026 | 8:00 - 9:00 pm ET

L&B’s mission is to provide #support, empowerment, and #hope to individuals and families affected by sarcoidosis.
Register at lifeandbreath.org
🦋
#SarcoidosisAwarenessMonth #RareDisease #SpoonieSky

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"This is an important thing to think about."

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Virginia Woolf, more than a hundred years ago:

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FLaB/SAM background with info re: upcoming conference from Sarcoidosis Research Institute
Empowering the Patient Journey:
Living Well with Sarcoidosis
A free virtual conference for patients, families, caregivers, and clinicians designed to inform, inspire, and support a healthier, more hopeful life with Sarcoidosis.
Saturday, April 25, 2026
1:00 - 5:00 pm ET
Paula Yette Polite
Pamela Johnson
Kerry L. Wong
Dr. Rhonda R. McCullough
Dr. Marc Judson
Dr. Ogugua Ndili Obi
Dr. Brianna Gaynor
Dr. Daniel Culver
Dr. Michelle Sharp
Dr. Lesley Ann Saketkoo
sarcoidosisri.org/empowering-the-patient-journey-living-well-with-sarcoidosis

FLaB/SAM background with info re: upcoming conference from Sarcoidosis Research Institute Empowering the Patient Journey: Living Well with Sarcoidosis A free virtual conference for patients, families, caregivers, and clinicians designed to inform, inspire, and support a healthier, more hopeful life with Sarcoidosis. Saturday, April 25, 2026 1:00 - 5:00 pm ET Paula Yette Polite Pamela Johnson Kerry L. Wong Dr. Rhonda R. McCullough Dr. Marc Judson Dr. Ogugua Ndili Obi Dr. Brianna Gaynor Dr. Daniel Culver Dr. Michelle Sharp Dr. Lesley Ann Saketkoo sarcoidosisri.org/empowering-the-patient-journey-living-well-with-sarcoidosis

Looking forward to this special event during #SarcoidosisAwarenessMonth:

Empowering the Patient Journey: Living Well with #Sarcoidosis
Saturday, April 25, 2026 | 1:00 - 5:00 pm ET

Learn more and register at
sarcoidosisri.org/empowering-the-patient-journey-living-well-with-sarcoidosis
🦋

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Nailed it!

As he says: "Don't boo - VOTE!"

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Just a thought: How about we stop shaming the poor for buying things that may not be essential, and start shaming the rich for making a profit off things that are essential?

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I love her so much ... More off the court than on ... I will be so upset if we lose her in NY, but so angry if she gets the Kaepernick treatment. She deserves better, and I expected more from the W.
🦋💜☁️

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a woman wearing glasses and a suit is making a please sign . Alt: Tina Fey on her knees, pleading "PLEASE"
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FLaB/SAM background with photo of e wearing a shirt (w/ text repeated next to it) that says 
Sarcoidosis
You didn't cause it
You can't cure it.
You can't ignore it.
But you can still be
an awesome individual
who makes the world
a better place.
Project Purple
Mission Sarcoidosis Awareness

FLaB/SAM background with photo of e wearing a shirt (w/ text repeated next to it) that says Sarcoidosis You didn't cause it You can't cure it. You can't ignore it. But you can still be an awesome individual who makes the world a better place. Project Purple Mission Sarcoidosis Awareness

Sarcoidosis
You didn't cause it
You can't cure it.
You can't ignore it.
But you can still be
an awesome individual
who makes the world
a better place.

Project Purple
Mission Sarcoidosis Awareness
🦋
#SarcoidosisAwarenessMonth #sarcoidosis

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Thank you for your courage to publicly address abusive language.

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Kaleidoscope/SAM background with photo of book open to Brad DeMaagd's "Living with Neurosarcoidosis"

Kaleidoscope/SAM background with photo of book open to Brad DeMaagd's "Living with Neurosarcoidosis"

Kaleidoscope/SAM background with quote from Brad DeMaagd's "Living with Neurosarcoidosis":

“This is not the life I saw back in my 20s, but it’s still my life. I take smaller steps to reach larger goals, but I keep reaching.”

Kaleidoscope/SAM background with quote from Brad DeMaagd's "Living with Neurosarcoidosis": “This is not the life I saw back in my 20s, but it’s still my life. I take smaller steps to reach larger goals, but I keep reaching.”

“This is not the life I saw back in my 20s, but it’s still my life. I take smaller steps to reach larger goals, but I keep reaching.”
~Brad DeMaagd
Read Brad’s story (& 59 others) in Kaleidoscope: #RareDisease Stories
a.co/d/0e1Zcsar
🦋
#SarcoidosisAwarenessMonth #sarcoidosis #SarcoidStories

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Rep Justin Jones made a statement entrance, walking into the Tennessee legislature with an"Abolish ICE" flag. No subtlety. No backing down.🔥🔥

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FLaB/SAM background with screenshot from Sarcoidosis News/Bionews column.
Text reads
When chronic illness life feels
overwhelming, seek joy and support
Sixteen medical appointments are just the beginning of my busy month
Written by 🦋Kerry Wong | April 17, 2026
FLOAT LIKE A BUTTAHFLY

FLaB/SAM background with screenshot from Sarcoidosis News/Bionews column. Text reads When chronic illness life feels overwhelming, seek joy and support Sixteen medical appointments are just the beginning of my busy month Written by 🦋Kerry Wong | April 17, 2026 FLOAT LIKE A BUTTAHFLY

Between medical stuff, life stuff, and the state of the world today, I am (understandably) #overwhelmed. This week’s #Sarcoidosis News column focuses on what I’m dealing with and what I’m doing about it.
🦋
#SarcoidosisAwarenessMonth #ChronicIllness #SpoonieSky
sarcoidosisnews.com/columns/when...

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ICE is not about immigration.

ICE is about normalizing a paramilitary force on peaceful streets.

Abolish ICE.

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i'll read any article of any length. i'll read any book. but i will not watch a youtube explainer or monologue that is longer than three minutes. write it down buddy

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Like, for example, a Secretary of Defense citing a fake Bible verse from Pulp Fiction to promote wars of aggression.

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FLaB/SAM background with info about Sarcoidosis Awareness Month Seminar from Temple Health:
Join the Temple Lung Center’s Sarcoidosis Program on Friday, April 24th for an educational seminar during Sarcoidosis Awareness Month. Experts from multiple specialties will share presentations on the diagnosis, management, and treatment of the disease.
Friday, April 24, 2026
10:00 am - 12:00 pm ET
Temple University Hospital – Main Campus (Philadelphia, PA)
Participants may also attend virtually, via Zoom
templehealth.org/about/events/2026-04-24-sarcoidosis-awareness-month-seminar

FLaB/SAM background with info about Sarcoidosis Awareness Month Seminar from Temple Health: Join the Temple Lung Center’s Sarcoidosis Program on Friday, April 24th for an educational seminar during Sarcoidosis Awareness Month. Experts from multiple specialties will share presentations on the diagnosis, management, and treatment of the disease. Friday, April 24, 2026 10:00 am - 12:00 pm ET Temple University Hospital – Main Campus (Philadelphia, PA) Participants may also attend virtually, via Zoom templehealth.org/about/events/2026-04-24-sarcoidosis-awareness-month-seminar

#SarcoidosisAwarenessMonth Seminar
Friday, April 24 | 10am - 12pm ET

Join @temple.edu Lung Center’s #Sarcoidosis Program for an educational seminar. Presentations on #diagnosis, management, and #treatment of the disease.
🦋
templehealth.org/about/events/2026-04-24-sarcoidosis-awareness-month-seminar

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SAM/Snowflake background with photo of Lauren. 
Text reads 
April Is Sarcoidosis Awareness Month
Fallen Snowflake Lauren Henderson
Is A Beautiful Face Of Sarcoidosis

SAM/Snowflake background with photo of Lauren. Text reads April Is Sarcoidosis Awareness Month Fallen Snowflake Lauren Henderson Is A Beautiful Face Of Sarcoidosis

Lauren had a style and a shine all her own. With a smile that sparkled as brightly as her personality, she was adored and admired by all who knew her. Lauren passed away in June 2025, but her light shines on.

Thank you, Allison, for keeping her in our thoughts.
💜🦋
#SarcoidosisAwarenessMonth

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FLaB/SAM background with info about upcoming webinar:
LIFE & BREATH FOUNDATION
Management of Sarcoidosis Fatigue
With Dr. Alba Azola
Fatigue is one of the most common and challenging symptoms of sarcoidosis-and one of the least understood. Join Dr. Alba Azola as we break down what's really behind sarcoidosis-related fatigue and, more importantly, what you can do about it. This conversation will offer practical tools, expert insight, and encouragement for navigating daily life with more energy and confidence.
Thursday, April 16, 2026 | 8:00 - 9:00 pm ET
us02web.zoom.us/webinar/register/WN_AcfMExoTTh6lJh2u98w5zw

FLaB/SAM background with info about upcoming webinar: LIFE & BREATH FOUNDATION Management of Sarcoidosis Fatigue With Dr. Alba Azola Fatigue is one of the most common and challenging symptoms of sarcoidosis-and one of the least understood. Join Dr. Alba Azola as we break down what's really behind sarcoidosis-related fatigue and, more importantly, what you can do about it. This conversation will offer practical tools, expert insight, and encouragement for navigating daily life with more energy and confidence. Thursday, April 16, 2026 | 8:00 - 9:00 pm ET us02web.zoom.us/webinar/register/WN_AcfMExoTTh6lJh2u98w5zw

TOMORROW!

Life & Breath Foundation for Sarcoidosis presents:
Management of Sarcoidosis Fatigue
Thurs, April 16, 2026 | 8:00 - 9:00 pm ET

What’s really behind #sarcoidosis-related #fatigue, and what can you do about it?

lifeandbreath.us2.list-manage.com/track/click?...
🦋
#SarcoidosisAwarenessMonth

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SAM/snowflake background with photo of "Fallen Snowflake" Rodney Reese, a "Beautiful Face of Sarcoidosis"

SAM/snowflake background with photo of "Fallen Snowflake" Rodney Reese, a "Beautiful Face of Sarcoidosis"

Rodney was a legend in the community. He inspired, encouraged, and supported #sarcoidosis warriors with his spirit, his strength, and his heart. Rodney passed away in November 2021, but his legacy lives on in all of us.

Thanks to Allison for keeping him in our thoughts
💜🦋
#SarcoidosisAwarenessMonth

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SAM/snowflake background with photo of "Fallen Snowflake" Bob Gross, a "Beautiful Face of Sarcoidosis"

SAM/snowflake background with photo of "Fallen Snowflake" Bob Gross, a "Beautiful Face of Sarcoidosis"

Bob was a kind, warm, genuinely good man who fought bravely and advocated for the #sarcoidosis community. He passed away in September 2025, and is greatly missed.

Thanks to Allison for keeping him in our thoughts.
💜🦋
#SarcoidosisAwarenessMonth #BeautifulFacesofSarcoidosis #FallenSnowflake

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Kaleidoscope/SAM background with photo of Sarcoidosis warrior Hanna Curtis

Kaleidoscope/SAM background with photo of Sarcoidosis warrior Hanna Curtis

Kaleidoscope/SAM background with quote from Hanna Curtis:

“After so long, I love it: I love my sarcoidosis. I love who it makes me because I would not be the strong person I am today without it.”

Kaleidoscope/SAM background with quote from Hanna Curtis: “After so long, I love it: I love my sarcoidosis. I love who it makes me because I would not be the strong person I am today without it.”

“After so long, I love it: I love my sarcoidosis. I love who it makes me because I would not be the strong person I am today without it.”
~Hanna Curtis
Read Hanna’s story (& 59 others) in Kaleidoscope: #RareDisease Stories
a.co/d/0e1Zcsar
🦋
#SarcoidosisAwarenessMonth #sarcoidosis #SarcoidStories

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I hate that they keep calling it "misconduct."
That makes it sound like a minor brush, nothing too serious.

This isn't simply improper or unprofessional.
It is abuse.
It is assault.
It is rape.
It is violence.
It is a CRIME.

Leaving their jobs may be a start, but it is certainly not justice.

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FLaB/SAM background with quote from Sarcoidosis News column:

"When we say 'look at me' with our purple hair and accessories, we're taking advantage of an opportunity. While we have your attention, we can share our experiences: what we feel physically, how we're limited by this disease, how that makes us feel, and what we need from others. And it's an opportunity for our friends, colleagues, and loved ones to say, 'I'm here with you, and I'm here for you."

Kerry Wong
Sarcoidosis News Columnist

FLaB/SAM background with quote from Sarcoidosis News column: "When we say 'look at me' with our purple hair and accessories, we're taking advantage of an opportunity. While we have your attention, we can share our experiences: what we feel physically, how we're limited by this disease, how that makes us feel, and what we need from others. And it's an opportunity for our friends, colleagues, and loved ones to say, 'I'm here with you, and I'm here for you." Kerry Wong Sarcoidosis News Columnist

From "The power of purple during #SarcoidosisAwarenessMonth":

"When we say 'look at me' with our purple hair and accessories, we're taking advantage of an opportunity."
💜🦋
sarcoidosisnews.com/columns/power-purple-during-sarcoidosis-awareness-month
#sarcoidosis #awareness #community #SpoonieSky

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May Victor Orbán simply be the first in a string of countries engaging in overdue housecleaning by kicking their authoritarian leaders to the curb.

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Advertisement
Image of a smiling Satou Sabally on the back page of the New York Post.

Text: “HERE COMES KIMBREL
ONCE-DOMINANT CLOSER PROMOTED TO AMAZIN' BULLPEN - PAGES 80-81
SUNDAY

NEW YORK POST
APRIL 12, 2026
Sports
Getty Images

Star Sabally headed to NY to create Big 4
Kenney / Page 70

SATOU OF LIBERTY

Superstar free agent Satou Sabally is joining the Liberty, signing a multiyear deal Saturday. The addition bolsters a championship-or-bust superteam that already includes the star trio of Breanna Stewart, Sabrina lonescu and Jonquel Jones, who re-signed Saturday.”

Image of a smiling Satou Sabally on the back page of the New York Post. Text: “HERE COMES KIMBREL ONCE-DOMINANT CLOSER PROMOTED TO AMAZIN' BULLPEN - PAGES 80-81 SUNDAY NEW YORK POST APRIL 12, 2026 Sports Getty Images Star Sabally headed to NY to create Big 4 Kenney / Page 70 SATOU OF LIBERTY Superstar free agent Satou Sabally is joining the Liberty, signing a multiyear deal Saturday. The addition bolsters a championship-or-bust superteam that already includes the star trio of Breanna Stewart, Sabrina lonescu and Jonquel Jones, who re-signed Saturday.”

SATOU OF LIBERTY! 🗽 🏀 ⛹🏽‍♀️

#NewYorkLiberty #WNBAFreeAgency #WNBA #WNBASky #SatouSabally #NewYorkPostBackPage #LightItUpNYL #SkyHoops

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Sometimes the worst part of
a chronic illness isn't the pain.

It's all the time that's lost.

Sometimes the worst part of a chronic illness isn't the pain. It's all the time that's lost.

Sometimes the worst part of a #ChronicIllness isn't the pain.

It's all the time that's lost.

#ChronicTruths #MySeveralWorlds

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Very true...

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FLaB/SAM background with Caring Hands logo and photo of Allison Walker

Beautiful Faces of Sarcoidosis
All month long, Caring Hands Sarcoidosis Foundation is sharing the Beautiful Faces of Sarcoidosis, showcasing and honoring sarcoidosis warriors everywhere.
It’s not too late to add your beautiful face to the campaign! Send your photo and brief narrative (your sarc story, a quote, or a message for the sarcoidosis community) to Allison at SarcoidNetwork1@gmail.com.

FLaB/SAM background with Caring Hands logo and photo of Allison Walker Beautiful Faces of Sarcoidosis All month long, Caring Hands Sarcoidosis Foundation is sharing the Beautiful Faces of Sarcoidosis, showcasing and honoring sarcoidosis warriors everywhere. It’s not too late to add your beautiful face to the campaign! Send your photo and brief narrative (your sarc story, a quote, or a message for the sarcoidosis community) to Allison at SarcoidNetwork1@gmail.com.

Caring Hands Sarcoidosis Foundation is sharing the #BeautifulFacesofSarcoidosis, showcasing and honoring #SarcoidosisWarriors everywhere.

Send your photo & brief narrative (sarc story, quote, or message for the sarc community) to SarcoidNetwork1@gmail.com.
🦋
#SarcoidosisAwarenessMonth #sarcoidosis

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💯💯💯💯💯
🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
☁️☁️☁️☁️☁️
🗽🗽🗽🗽🗽

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