Hot Takes From a #Trauma Therapist ✔️ Everything does NOT happen for a reason ✔️ You don't need to love yourself before someone else can love you ✔️ You don't need to forgive in order to heal ✔️ Productivity culture preys on trauma survivors ✔️ "You're so strong" can be a really annoying thing to hear ✔️ True trauma healing entails addressing and dismantling the systems that perpetuate it ✔️ "Positive thinking" masks trauma, it doesn't heal it Credit Unknown #MySeveralWorlds #TraumaTherapy #CPTSDRecovery

Hot Takes From a #Trauma Therapist
*Everything does NOT happen for a reason
*You don't need to forgive in order to heal
*'You're so strong' is annoying to hear
*Trauma healing entails dismantling the systems that perpetuate it
*Positive thinking masks trauma

Unknown
#MySeveralWorlds #CPTSDRecovery

heal out loud. we almost lost you when you went quiet. some stories don't make it to the end unless they're heard somewhere safe. Credit: reviveyourroar #LittleVictories #MySeveralWorlds #HealOutLoud

heal out loud.
we almost lost you
when
you
went
quiet.

some stories
don't make it
to the end
unless they're heard
somewhere safe.

Credit: reviveyourroar

#LittleVictories #MySeveralWorlds #HealOutLoud

Chronic illness schedule: • Day one: Rest • Day two: Rest • Day three: Flare anyway • Day four: Recover • Day five: Recover @CAROLINEEETHERIDGE #ChronicTruths #MySeveralWorlds #LifeWithChronicIllness

Pretty much!

Chronic illness schedule:
• Day one: Rest
• Day two: Rest
• Day three: Flare anyway
• Day four: Recover
• Day five: Recover

@CAROLINEEETHERIDGE

#ChronicTruths #MySeveralWorlds #LifeWithChronicIllness

"She did not want to move, or to speak. She wanted to rest, to lean, to dream. She felt very tired." ~Virginia Woolf Humanity & Peace #MentalHealthMatters #MySeveralWorlds

"She did not want to move, or to speak. She wanted to rest, to lean, to dream. She felt very tired." ~Virginia Woolf

Humanity & Peace

#MentalHealthMatters #MySeveralWorlds

"Listen to some music Get well soon! Do you really want to take all those meds? You don't look sick Try some B12 Get outside for a walk I get tired too! Have you tried yoga? Your bloodwork is normal I'd love to sleep all day! Just push through it You're exaggerating You were ok yesterday Think yourself lucky, it could be worse!" Credit ©️ Chantel Rallmen #MySeveralWorlds #UnsolicitedAdvice #MyChronicLife

"Listen to some music
Get well soon!
Do you really want to take all those meds?
You don't look sick
Try some B12
Have you tried yoga?
Your bloodwork is normal
I'd love to sleep all day!
You were ok yesterday
It could be worse!"
©️ Chantel Rallmen
#MySeveralWorlds #UnsolicitedAdvice #MyChronicLife

Flashback to March 7, 2025 when I filed for disability in Taiwan - just over a year ago. And now here I am in Canada having done so again a year later. "I filed for #disability in Taiwan on Monday. I live with severe #AxSpA and #PsA. I also have fibromyalgia, MECFS, and #APS. My doctor said he supports me, he sees my low quality of life, and will do his best for me, but the chances of getting assistance are quite low." Credit: Carrie, #MySeveralWorlds

Flashback to March 7, 2025 when I filed for disability in Taiwan. Now here I am in Canada having done it again.

"I filed for #disability in Taiwan. I live with severe #AxSpA and #PsA. I also have fibromyalgia, MECFS, and #APS. My doc supports me but the chances are low."

Carrie, #MySeveralWorlds

Healing isn't always 'love and light'-it's often 'Holy F*ck and WTF' too. XO, Dr. Jen Credit @drjenwolkin #TraumaTherapy #Healing #MySeveralWorlds

Healing isn't always 'love and light'-it's often 'Holy F*ck and WTF' too.
XO, Dr. Jen

Credit @drjenwolkin

#TraumaTherapy #Healing #MySeveralWorlds

"I wish able bodied people understood that being forced to rest and lay around because of sickness isn't the same as them getting to rest. It's not enjoyable." Credit: Han @spoonfulofhan #MySeveralWorlds #ChronicTruths #pwME

"I wish able bodied people understood that being forced to rest and lay around because of sickness isn't the same as them getting to rest. It's not enjoyable."

Credit: Han @spoonfulofhan

#MySeveralWorlds #ChronicTruths #pwME

GUIDE TO CHAIRS Ehlers Danlos Edition 🪑A comfy position doesn't exist 🪑I'm gonna need a muscle relaxer 🪑Nap time 🪑Good thing I'm flexible 🪑POTS episode 🪑Good thing I'm flexible 2.0 🪑 Spinal instability 🪑 are spines supposed to be this straight? 🪑 Fold me like a taco 🪑 I forgot how humans sit 🪑 Torture device 🪑 I'm gonna need help getting up Credit: fb: what's poppin? #EDSmemes #EDS #EhlersDanlos #MySeveralWorlds

CHAIRS
Ehlers Danlos Edition
🪑 A comfy position doesn't exist
🪑 Need a muscle relaxer
🪑 Nap time
🪑 I'm flexible
🪑 POTS episode
🪑 Spinal instability
🪑 Are spines supposed to be this straight?
🪑 Fold me like a taco
🪑 forgot how humans sit
🪑 Torture device
🪑 Need help getting up
#MySeveralWorlds

Autoimmune Hangover (noun) an increase in #autoimmune symptoms caused by overexertion or an increase in stress, often following a busy weekend, holiday, or travel. Synonym: spoonie hangover Credit: @shannanemrow #MySeveralWorlds #AutoimmuneDisease #Spoonie

Autoimmune Hangover (noun)
an increase in #autoimmune
symptoms caused by
overexertion or an increase in stress, often following a busy weekend, holiday, or travel.
Synonym: spoonie hangover

Credit: @shannanemrow

#MySeveralWorlds #AutoimmuneDisease #Spoonie

👉 I always feel like I am too much and spend half my appointment apologizing! ❓What about you? "You need to know that competent, smart people are routinely made to feel stupid & "dramatic" in medical situations. It has nothing to do with how smart you are or how valid your medical issue is. It's a systemic problem that is happening to lots & lots of other people too." Credit: Dr. Glenn Patrick Doyle #MedicalGaslighting #MedicalTrauma #MySeveralWorlds

"Competent, smart people are routinely made to feel stupid & "dramatic" in medical situations. It has nothing to do with how smart you are or how valid your medical issue is."
@drdoylesays.bsky.social

#MedicalGaslighting #MySeveralWorlds
#MedicalTrauma

"I know you don't like #HealthAdvice but" [insert] I'm going to give you my unsolicited, unprofessional opinion anyways... People say this often. My eyeballs get stuck from rolling each time. If you know someone doesn't like it and has stated so many times, DON'T OFFER IT!" Credit: Carrie, #MySeveralWorlds @globetrotteri

"I know you don't like #HealthAdvice but" [insert] I'm going to give you my unsolicited, unprofessional opinion anyways...

People say this often. My eyeballs get stuck from rolling each time. If you know someone doesn't like it and has stated so many times, DON'T OFFER IT!"
Carrie, #MySeveralWorlds

"I hate those posts shaming Disabled people for not exercising. Some of us legit can't. Exercise intolerance is real. When I try to swim fo just 5 mins, my muscles get so sore, I can't walk for 2 weeks. How is being stuck in bed for 14 days better than peing able to walk around my house daily' "or Disabled people, moving our bodies isn't always a choice between "lazy" and "fit." Sometimes, it's choosing stability, function, and quality of life over crash-and-burn cycles that make us worse." Credit: adisabledicon #DisabilityAwareness #MySeveralWorlds #MyChronicLife

I hate those posts shaming Disabled people for not exercising. Exercise intolerance is real.
Disabled people, moving our bodies isn't always a choice between "lazy" and "fit." Sometimes, it's choosing stability, function & quality of life.
Via adisabledicon

#DisabilityAwareness #MySeveralWorlds

DEALING WITH TRAUMA CAN BE LIKE... Completely shocked Trying to process Having an ok day Triggered. Feeling awful. Unable to get out of bed. Feeling better, healing. Maybe I have overcome it? Relapse, will I ever heal?" Credit: The Present Psychologist #CPTSD #MentalHealth #PTSD #Trauma #MySeveralWorlds

DEALING WITH TRAUMA CAN BE LIKE...

Completely shocked
Trying to process
Having an ok day
Triggered. Feeling awful.
Unable to get out of bed.
Feeling better, healing.
Maybe I have overcome it?
Relapse, will I ever heal?"
Credit: The Present Psychologist

#CPTSD #MentalHealth #PTSD #MySeveralWorlds

"I can't express this enough, you have NO IDEA what other people carry with them everyday. You have NO IDEA what someone's life is like. Don't create more pain & stress to others. Be kind. BE genuine. Stop being so mean to people to fulfill whatever it is you don't like about you." Credit: Millions Missing Voice Global #MySeveralWorlds #MyChronicLife #pwME #ChronicTruths

"I can't express this enough, you have NO IDEA what other people carry with them. You have NO IDEA what someone's life is like. Don't create more pain & stress to others. Be kind. Be genuine. Stop being mean to people to fulfill what you don't like about you." #MySeveralWorlds #MyChronicLife #pwME

"I decided to have my life story bound in leather." Credit Unknown 📚 Image of old leather bound books. #ChronicMemes #MySeveralWorlds #MyChronicLife

"I decided to have my life story bound in leather."

Credit Unknown

📚
Image of old leather bound books.

#ChronicMemes #MySeveralWorlds
#MyChronicLife

"Me all ready for another exciting day in the living room." Credit Unknown Image: A ferret wearing a teal robe. #MySeveralWorlds #ChronicMeme

"Me all ready for another exciting day in the living room."

Credit Unknown

Image: A ferret wearing a teal robe.

#MySeveralWorlds #ChronicMeme

Carrie Kellenberger - Spondylitis Association of America - Ankylosing Spondylitis I never expected to lose my mobility, but that is what happened in July of 2014 when my body gave out on me and I could no longer move the way I used to. Year by year, I lost my energy to move and soo...

My #AxSpA Story for @spondylitis

When I was diagnosed w. #AnkylosingSpondylitis in 2009, the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability
🔗
spondylitis.org/patient-stor...

#MySeveralWorlds #CarrieMarshall

"You should think of your energy as if it's a luxury item. Not everyone can afford it." Credit: @femalequotient Image of Taylor Swift on a podcast #pwME #MySeveralWorlds #AutoimmuneFatigue #AutoimmuneDisease #PostExertionalMalaise

"You should think of your energy as if it's a luxury item.
Not everyone can afford it."

Credit: @femalequotient
Image of Taylor Swift on a podcast

#pwME #MySeveralWorlds #AutoimmuneFatigue #AutoimmuneDisease #PostExertionalMalaise

Little dwarf with a pick axe represents high pain days.

My little dwarf with a pick axe is very active today after:
✔️ 3 weeks of testing & emergency treatments
✔️ floods
✔️ a blown circuit
✔️ dealing with OW
✔️ working with pharmacist on meds while building bridge to safety
✔️ dealing with 7 major life stressors

#MySeveralWorlds #Resilence #KeepOnGoing

Fibromyalgia Warrior Journey | MySeveralWorlds.com Inspiring Fibromyalgia Warrior Carrie. She shares her journey living in Taiwan with Ankylosing Spondylitis, Fibromyalgia, and ME/CFS.

Many thanks to Melissa at @teamfibro (Fibromyalgia National Health Organization) for featuring my journey with #fibromyalgia. Learn top tips for #LifeWithFibromyalgia at
🔗
supportfibromyalgia.org/fibromyalgia...

#FibromyaligiaAdvocate #FibroNerds #MySeveralWorlds
#SupportFibro

Art, Advocacy, and Adaptation: Carrie’s Journey with Difficult to Treat Axial Spondyloarthritis - Arthritis Life Listen Now: Watch Now: Summary: In episode 150 of The Arthritis Life Podcast, Carrie shares her inspiring journey of living with “difficult-to-treat” axial spondyloarthritis while building a new life ...

Carrie shares her story about life with D2T #axSpA. She talks about treatment-resistant her arthritis. Her site #MySeveralWorlds is a patient centered hub that assists folks who are chronically ill & disabled.
🔗
arthritis.theenthusiasticlife.com/2024/12/19/a...

Via @arthritischeryl.bsky.social

EMERGENCY INFORMATION EHLERS-DANLOS HANDLE THIS PATIENT WITH GREAT CARE! 🦓 ✔️ Joints may be lax and dislocate easily. ✔️ Skin tearing, splitting and bruising are common. ✔️ Mitral Valve Prolapse, umbilical and inguinal hernias may be present. ✔️ Arterial or intestinal rupture commonly presents as acute abdominal or flank pain that can be diffuse or localized. ✔️ Cerebral arterial rupture may present with altered mental status and be mistaken for drug overdose. ✔️ Emergency procedures (especially for Vascular #EDS) often require trauma, vascular surgery, ICU. ✔️ Elective surgery and procedures should be avoided whenever possible. ✔️ Non-invasive testing is highly preferred. ✔️ Healing may be delayed, with irregular scarring. ✔️ Use alternatives to sutures whenever possible. ✔️ Retain sutures/staples for twice the normal period; watch for wound reopening and dehiscence. ✔️ Anesthetists should use caution upon intubation, as jaw dislocation is common. ✔️ Local anesthestics are usually inadequate or short- lasting. ✔️ Potential spinal and/or cerebullar involvement may increase general anesthetic and surgical risks. #EDSInfo #EhlersDanlosAwareness #EDSAwareness #MySeveralWorlds

EMERGENCY INFORMATION
EHLERS-DANLOS

HANDLE THIS PATIENT WITH GREAT CARE! 🦓

✔️ Joints may be lax & dislocate easily.

✔️ Skin tearing, splitting & bruising are common.

✔️ Mitral Valve Prolapse, umbilical & inguinal hernias may be present.

#EhlersDanlosAwareness #EDSAwareness #EDS #MySeveralWorlds

Navigating Taiwan's healthcare system: with Carrie Kellenberger - Rti In this week's episode of Oh, I Didn't Know That, Amber talks with Carrie Kellenberger about h...

In this episode of Oh, I Didn't Know That, Amber talks with Carrie, author of #MySeveralWorlds, about navigating Taiwan's healthcare system as a foreigner with #AutoimmuneDisease.
Head to part 1 to hear Carrie's story with #AxSpA.
🔗
www.rti.org.tw/en/programne...

@radiotaiwan.nzcow.com

"Nothing is absolute. Everything changes, everything moves, everything revolves, everything flies and goes away." ~Frida Kahlo ©️ MYSEVERALWORLDS.COM #FridaKahlo #MySeveralWorlds #WarriorWords #Resilience

"Nothing is absolute.
Everything changes, everything moves, everything revolves, everything flies and goes away."
~Frida Kahlo

©️ MYSEVERALWORLDS.COM

#FridaKahlo #MySeveralWorlds
#WarriorWords #Resilience

A person in their darkest hours doesn't need a pep talk. They need to know someone else sees and understands the darkness. Credit: Nate Postlethwait @nate_postlethw #LifeReminders #KindnessMatters #MySeveralWorlds

A person in their darkest hours doesn't need a pep talk. They need to know someone else sees and understands the darkness.

Credit: Nate Postlethwait
@nate_postlethw

#LifeReminders #KindnessMatters #MySeveralWorlds

CAR RIDES WITH CHRONIC PAIN FEEL LIKE THIS: ‣ Stuck in the same position with no way to stretch ‣ Every bump feels like an impact Seats that never support the right places ‣ Muscles tightening because your oodv's on high alert ‣ Pain stacking on top of your 'regular pain' Fatigue hitting way sooner than it should ‣ Trying not to show how uncomfortable vou are It's not "iust a drive." It's something you have to get through. Credit: Surviving Chronic Pain #ChronicPainAwareness #MySeveralWorlds #LetsTalkAboutPain

CAR RIDES WITH CHRONIC PAIN FEEL LIKE
*Stuck in the same position with no way to stretch
*Bumps are impact
*Muscles tightening/ body on alert
*Pain on top of regular pain
It's not iust a drive. It's something you have to get through.
Credit: Surviving Chronic Pain
#MySeveralWorlds #LetsTalkAboutPain

WHAT PATIENTS WISH DOCTORS KNEW "5 minutes of their day can affect our life for months or years. They're only seeing a small picture into our daily reality. Sometimes symptoms are hard to describe, but that doesn't mean they aren't real. O We are not choosing this, and we would do anything to get better. A little empathy goes a long way. We hope they'll treat us like they'd treat a family member they love." Credit: Chronic Love Club

WHAT PATIENTS WISH DOCTORS KNEW

"5 minutes of their day can affect our life for months or years.

They're only seeing a small picture into our daily reality.

We hope they'll treat us like they'd treat a family member they love."

Credit: Chronic Love Club
#MySeveralWorlds #MyChronicLife

Story of my life! "HAVING TO MAKE MEDICAL DECISIONS ON A FREOUENT BASIS IS OVERWHELMING After the doctor has given you your options and you've done your own research, the anxiety often remains. Will this treatment help me or harm me? Will it cause a flare or do irreversible damage? When your condition makes you sensitive to medications, you feel like your body sees the list of possible side- effects as a to-do list. Either way it's a risk: you risk getting worse or you risk staying the same, either way it's terrifying." Credit: @strongerthanpots #ComplexChronicIllness #MySeveralWorlds #DifficultToTreat #MyMedicalDrama

Story of my life!

"HAVING TO MAKE MEDICAL DECISIONS ON A FREOUENT BASIS IS OVERWHELMING

Either way it's a risk: you risk getting worse or you risk staying the same, either way it's terrifying."

Credit: @strongerthanpots

#ComplexChronicIllness #MySeveralWorlds #DifficultToTreat #MyMedicalDrama

"Morning struggles of a full time #Spoonie I literally just put a pill in my mouth, dropped the other one, and then freaked out cuz I couldn't find the one IN MY MOUTH." Credit, Carrie, #MySeveralWorlds

"Morning struggles of a full time
#Spoonie

I literally just put a pill in my mouth, dropped the other one, and then freaked out cuz I couldn't find the one IN MY MOUTH."

Credit, Carrie, #MySeveralWorlds