EMERGENCY INFORMATION EHLERS-DANLOS HANDLE THIS PATIENT WITH GREAT CARE! 🦓 ✔️ Joints may be lax and dislocate easily. ✔️ Skin tearing, splitting and bruising are common. ✔️ Mitral Valve Prolapse, umbilical and inguinal hernias may be present. ✔️ Arterial or intestinal rupture commonly presents as acute abdominal or flank pain that can be diffuse or localized. ✔️ Cerebral arterial rupture may present with altered mental status and be mistaken for drug overdose. ✔️ Emergency procedures (especially for Vascular #EDS) often require trauma, vascular surgery, ICU. ✔️ Elective surgery and procedures should be avoided whenever possible. ✔️ Non-invasive testing is highly preferred. ✔️ Healing may be delayed, with irregular scarring. ✔️ Use alternatives to sutures whenever possible. ✔️ Retain sutures/staples for twice the normal period; watch for wound reopening and dehiscence. ✔️ Anesthetists should use caution upon intubation, as jaw dislocation is common. ✔️ Local anesthestics are usually inadequate or short- lasting. ✔️ Potential spinal and/or cerebullar involvement may increase general anesthetic and surgical risks. #EDSInfo #EhlersDanlosAwareness #EDSAwareness #MySeveralWorlds

EMERGENCY INFORMATION
EHLERS-DANLOS

HANDLE THIS PATIENT WITH GREAT CARE! 🦓

✔️ Joints may be lax & dislocate easily.

✔️ Skin tearing, splitting & bruising are common.

✔️ Mitral Valve Prolapse, umbilical & inguinal hernias may be present.

#EhlersDanlosAwareness #EDSAwareness #EDS #MySeveralWorlds

I don’t think I’ll reach my target, but every cent counts for me, especially after putting in hundreds of hours of work . Thanks to everyone who has supported me. Hoping you all have a lovely weekend. 🫶🏼
#Kikorangi
#CrossStitch
#ChronicIllness
#EhlersDanlosAwareness

ko-fi.com/ciaraaxstitch

20. Mai im #EhlersDanlosAwareness Monat
"Meine medizinischen "must-haves"

Mich begleiten so einige #Hilfsmittel durch den Alltag. Von Rollstuhl, zuggerät, verschiedene orthesen... sind den meisten bekannt.

Eins der wichtigsten Hilfsmittel für mich im sommer:
Meine Kühlweste 🥰

Das #EDS wird bei

Ausbildung mit mir absolvieren wird.
Darauf freue ich mich schon sehr 🥰

Solltet ihr fragen haben, gerne jederzeit fragen.

#EhlersdanlosSyndrome #MyEDSChallenge #myHSDChallenge #ZebraStrong #EhlersDanlosAwareness #hEDS #TogetherWeDazzle #SelteneErkrankung #rareDisease #neuropathie #chronischkrank

Minor #ATSV + #Spiderverse spoilers!
Charlotte Webber is rep done right imo (0^^)o #ehlersdanlossyndrome
#ehlersdanlosawareness #vtuber
#representationmatters #comics

LOVE disability rep in the Vtuber space(o^^)o After all, disability is the catalyst for so many Vtubers to even start! #ehlersdanlossyndrome
#ehlersdanlosawareness #vtuber #catboy
#representationmatters

A three panel comic. First panel is a pencil drawing of a cat laying in the sun, with the words “sometimes, being sick reminds me that I am an animal.” Second panel is a drawing of a dog laying in the sun with the words “I am learning to listen to this animal body.” Final panel is a drawing of a rabbit in the sun with the words “what it wants, what it needs, what it loves.”

It’s #ehlersdanlosawareness month! Here’s a #comic about living with a #disability. You can read the whole essay at open.substack.com/pub/kelleycl...

#eds #neis #neisvoid #heds #chronicillness #comic

Special thanks to @crucialcomix.bsky.social and Zareen Choudhry for the #chronicillnesscomicsclub

#ehlersdanlosawareness, ESPECIALLY
when the awareness is scary and uncomfy to address-bc lifestyle changes need to happen for accessibility. this vid is so gaspy I am flaring bad after my mri lol #covyvulny #ehlersdanlossyndrome #vtuber

Terrible quality pic but the only one I could find showing my W-sitting. This was my sister’s and my preferred way to sit throughout our childhood. I could probably still do it if I could get down on the floor. 😂 pathways.org/what-is-w-si... #veds #medicalmystery #ehlersdanlos #ehlersdanlosawareness

#ChronicIllnessAwareness
#FibromyalgiaAwareness
#EhlersDanlosAwareness
#LupusAwareness
#InvisibleIllness
#ChronicPain
#BrainFog
#FatigueIsRea

A graphic by SEDSConnective for EDS HSD Awareness Month. The image has a white background with the SEDSConnective logo at the top. The main text reads: "What support devices do you use to help with your pain?" At the bottom it says, "EDS HSD Awareness Month with #sedsconnective."

May is Hypermobility Awareness Month!
#ehlersdanlossyndrome #ehlersdanlosawareness #HypermobilitySpectrumDisorder
#hypermobilityawareness #EDS #HSD #paediatricGJH

I totally forgot that today is Rare Disease Day! Sharing for my own rare disease, Ehlers Danlos Syndrome. You can’t cure your DNA, but you can research it and treat the symptoms. Consider donating to EDS research this year! #rarediseaseday #ehlersdanlosawareness #edsresearch

I am one of many. The #millionsmissing

#mecfs #chronicillness
#chronicfatigue #ehlersdanlosawareness #ehlersdanlossyndrome #pots #smallfiberneuropathy #mcas #SIBO #nocturnalepilepsy #arttherapy #covid19 #longcovid #longhauler #postviralillness

#Dis #ChronischKrank #RareDiaease #SelteneErkrankung #SeltenSindViele #notJustSad #mentalHealth #Depression #EhlersDanlosAwareness

My right ulna is going through it's goth loner phase today. Any suggestions for getting it over this? Pulling away from the carpals and radius is just hurting everyone, we're supposed to be a team ulna 😢
#eds #ehlersdanlosawareness #dislocationstation

Black and white drawing of a bottle, closed with a cork, floating in the ocean. A sea turtle shadow can be seen. The raggedy lable on the bottle reads ‘Lost Cause’. Inside the bottle a nude woman can be seen sitting at the bottom holding her head just above the water which has seeped into the bottle. There are scattered clouds in the sky and a seagull in the distance.

Feeling a little lost at sea.

#procreateartist
#digitalprint
#ehlersdanlosawareness
#beetjedobberen

Something only someone with EDS or HSD would or could say: “Honey…I just kicked myself in the upper inner thigh…” 🥲🤣🫠🦓 #hEDSProblems #EhlersDanlosAwareness #HypermobileEhlersDanlos #HSD #BedriddenSpoonie #BendyNotBroken

I’m having a whole bunch of feels.
All sorts of feels, good & bad.
Chronic illness is a full time job, physically & especially emotionally, & occasionally my feels overwhelm me.
I need a quick
‘Not Sure Why Cry’. 😬🥺
#EhlersDanlosAwareness #ChronicIllnessAwareness
#Kikorangi
#DisabilityAwareness

EDS Fatigue means not having the energy to make something to eat during the day, which is when my fatigue is at it’s worst, so I normally only eat one meal each day at dinner. On good days I manage a brunch type meal, usually with my son’s help.
#EhlersDanlosAwareness #Kikorangi

I get different types of headaches. Today’s is like someone has my head in a vice, slowly crushing it. Makes it very hard to concentrate & go about my daily jobs and no amount of pain relief seems to touch it.

#ChronicIllness #ChronicPain #EhlersDanlosAwareness