Colorful promotional graphic for a podcast or video episode. At the top, bold pink text reads "MEDICALLY COMPLICATED CHILDREN". Below is a large pale yellow number 2, part of a swirling design filling the background. The main focus is the prominent "EDS UNPLUGGED" logo in black and yellow, with two images of black women in black athletic wear: one holding a megaphone, another triumphantly holding up crutches. To the right, a smaller text says "sponsored by EDS Awareness Ehlers-Danlos Syndromes" with the organization’s logo. At the bottom right, there is Donna Sullivan, a woman with brown hair, wearing glasses on her head, smiling and sitting with her arms resting on a giraffe-patterned cushion. Pink text reads "DONNA SULLIVAN" with an oversized black ampersand beside it. The overall design is lively and emphasizes awareness and support for medically complicated children and Ehlers-Danlos syndromes.

EDS Unplugged podcast Episode 2: Medically Complex Children - interview with Donna Sullivan, producer of COMPLICATED

www.chronicpainpartners.com/episode-2-me...

#EDS #hEDS #HSD #Hypermobility #EhlersDanlosSyndrome #Zebras #NEISVoid #Disability #Medicine #FII #MedicalKidnap #Doctors #MedSky

21 People With Ehlers-Danlos Syndrome Describe What a 'Bad Pain Day' Really Looks Like "It means so much more than just the physical pain."

"“It feels like my joints are all grinding sand & my #tendons are all inflamed. It feels like being made of china & just the pressure of the atmosphere is going to cause me to shatter.” – Brittney B.": buff.ly/IfCfmyP

via @TheMightySite.bsky.social
#ChronicPain #EhlersDanlosSyndrome #EDS #spoonies

A photo of my legs. The left leg has a knee brace on. The right leg has an ankle brace and a rainbow tie dye compression sock. (I was wearing two socks originally but the autism wasn't having it so we compromised and the sock not necessary to make the ankle brace tolerable was removed. The toes must be free.)

Tell me you have Ehlers Danlos without telling me you have Ehlers Danlos
#ehlersdanlossyndrome #eds #heds #disability #ow

I have #EhlersDanlosSyndrome so am used to a wide range of these symptoms, but a lot of them have definitely gotten worse post-menopause (and during swift/severe shifts in the weather!)

Contact your State Reps ASAP and tell them how you feel about this! 👉 www.congress.gov/members/find... 👉 Do NOT cut ANY funding!

Thank you, Senator Warren, for standing up for those of us who need it the most 🙏⚕️🙏

#chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability

🤣😂🤣

#EDS #hEDS #ehlersdanlossyndrome #ehlersdanlos #EDSmemes #memes

Ehlers Danlos Syndrome and Men: Three Key Issues Men and their experiences living with hypermobile Ehlers Danlos syndrome is a whole topic…one that doesn’t get nearly enough attention in my opinion.  When you look online for info…

Yes, guys do have #EhlersDanlosSyndrome too.

#BlogPost #MensHealth #GuysWithEDS #ChronicPain #ChronicIllness #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness

Ehlers-Danlos and Erectile Dysfunction (ED) | The EDS Clinic When people hear "ED," most think of erectile dysfunction, a common issue affecting men's sexual health. But in medical circles, "EDS" refers to Ehlers-Danlos Syndrome, a group of connective tissue…

Yes, erectile dysfunction can have a particular tone to it when #EhlersDanlosSyndrome is involved.

#MensHealth #GuysWithEDS #ED #ErectileDysfunction #ChronicPain #ChronicIllness #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness

Stop Victim Blaming. Chronic illness comes from a highly complex mix of genetics, environmental factors, trauma and more. Being chronically ill is not a personal failure.

Stop Victim Blaming!
Enough is Enough!

"Don't try to “fix” us, regardless of your intentions. Believe me, we’re trying, and we’ve heard it all before." - Alana Saltz

linktr.ee/thezebraalliance
#chronicillness #raredisease #invisibleillness #disability #EDS #ehlersdanlossyndrome #mentalhealth #HSD

#MedicalGaslighting #MedicalAppointmentTrauma #ChronicIllness #ChronicPain #EhlersDanlosSyndrome

Ehlers Danlos Syndrome and Men: Three Key Issues Men and their experiences living with hypermobile Ehlers Danlos syndrome is a whole topic…one that doesn’t get nearly enough attention in my opinion.  When you look online for info…

Yes, indeed. Guys live with #EhlersDanlosSyndrome too.

#BlogPost #MensHealth #GuysWithEDS #ChronicPain #ChronicIllness #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness

Rewriting Your Story? (Thoughts on New HSD/hEDS Diagnostic Criteria) There are rumblings in the Ehlers-Danlos syndromes community.  Change is coming.  Big change: the EDS Society is publishing updated diagnostic criteria for all versions of EDS in December…

There is always more to do...

#BlogPost #ANeverEndingStory #EhlersDanlosSyndrome #EDS #ChronicPain #ChronicIllness #Booksky #Books #WritersCommunity 💕 #Wellness

Ehlers-Danlos Syndromes and Autoimmune Disease Can you have EDS and an autoimmune disease?  Both at the same time?  Does a bear leave bowel movements in the woods?  Yes.  And yes, you most certainly can have EDS and an autoimmune di…

Having autoimmune disease AND #EhlersDanlosSyndrome isn't all that rare. Here are some options.

#NewBlogPost #AutoimmuneDisease #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth #Acupuncture #TuiNa #LifestyleSupport 💕 #Wellness

The Ehlers-Danlos Syndrome Symposium at UVA is now underway, starting off with remarks by Dacre Knight and Lori McMahon. Watch the livestream here: https://ow.ly/TZkh50YGsn2
#ehlersdanlos #ehlersdanlossyndrome #chronicillness #eds

I complain about my disabled body hurting from drawing and then this is literally how I’m sitting the whole time, like no shit sherlock ☠️ #ehlersdanlossyndrome

Traveling With Hope: An Interview With Nicola of Earth Balance Tai Chi ***** Have you ever tried tai chi or qigong? So many of us get asked if we’ve tried yoga (to the point where some of us want to scream when we hear that word) but it seems to me that Chinese …

Tai chi & qigong for people with #EhlersDanlosSyndrome? Yes, indeedy.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TaiChi #QiGong 💕 #Wellness

And if I’m *not* at home, I’m at a drs appt 🫠

#NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #EhlersDanlosSyndrome #EDS #Gastroparesis #FeedingTube #Tubie #POTS

Traveling With Hope: An Interview With Nicola of Earth Balance Tai Chi ***** Have you ever tried tai chi or qigong? So many of us get asked if we’ve tried yoga (to the point where some of us want to scream when we hear that word) but it seems to me that Chinese …

A wonderful resource for anyone with #EhlersDanlosSyndrome or any other complex condition.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TaiChi 💕 #Wellness

Online Resources for Understanding and Living With EDS and HSD Ehlers-Danlos Syndrome (EDS) is a group of connective tissue disorders that affect the skin, joints, and blood vessel walls. Because it is a complex and often misunderstood condition, finding reliable...

Have you been looking for information, resources, and support? Give our blog post a read. 🩵🦓🩵

linktr.ee/thezebraalliance #EDS #ehlersdanlossyndrome #ehlersdanlos #hEDS #HSD #hypermobilityspectrumdisorder #hypermobility #chronicillness #EDSresources

Ehlers Danlos Syndrome and Men: Three Key Issues Men and their experiences living with hypermobile Ehlers Danlos syndrome is a whole topic…one that doesn’t get nearly enough attention in my opinion.  When you look online for info…

Guys have #EhlersDanlosSyndrome too, you know.

#BlogPost #MensHealth #GuysWithEDS #ChronicPain #ChronicIllness #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness

A memorial-style poster on a teal background with white text, two white doves holding olive branches, a crying zebra illustration, and a photo of two people standing together at an indoor event. Text on the poster says: EDS Awareness Ehlers-Danlos Syndromes Remembering EDS champion: Dr. Grahame 1932 - 2026 chronicpainpartners.com In the photo, Dr. Grahame, an older light-skinned man with short gray hair and glasses is wearing a light beige jacket over a blue striped shirt. Next to him is Jan Groh, a light-skinned woman with short dark hair and glasses wearing a patterned dress and a scarf, with visible forearm supports/braces and a blue-handled mobility aid. Two small candle illustrations appear near the bottom corners.

Remembering Beloved EDS Specialist Dr. Rodney Grahame (1932-2026)

www.chronicpainpartners.com/remembering-...

#EDS #EhlersDanlosSyndrome #hEDS #HSD #Zebras #Medicine #Doctors #NEISvoid

** youre too young to be [enter symptom] ** Picture of a little boy who looks "crazy" is holding a knife

Tell us about it 🔪🙈
What are the different "You're too young" comments you have heard?

linktr.ee/thezebraalli...
#chronicillness #raredisease #invisibleillness #disability #dynamicdisability #mentalhealth #healthmeme #EDS #HSD #meme #memes #ehlersdanlossyndrome

I’m tired of this grandpa 😭

#chronicillness #chronicpain #heds #ehlersdanlos #ehlersdanlossyndrome

Image from @inmyhead_sharon (not sure which platform) about people who are not chronically ill, think folks with Chronic Illnesses arent doing enough to "fix it".

What would you add to this image?
🩵🦓🩵

Chronic Illness Resource Orgs:
Chronic Illness Coalition
Partnership to Fight Chronic Disease
NACDD
Good Days

linktr.ee/thezebraalliance
#chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability #mentalhealth

Yes! I use #Guava to track medications, symptoms, vitals, and more! I also have an app that will alert me to barometric pressure changes so I can better prep for the day!

#NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Gastroparesis #FeedingTube #TubeFed #Tubie #EhlersDanlosSyndrome #EDS

#ChronicIllness #ChronicPain #Disability #Crip #EhlersDanlosSyndrome

There is still so much to learn.

buff.ly/Bjo6ZvS

#NewBlogPost #ANeverEndingStory #EhlersDanlosSyndrome #EDS #ChronicPain #ChronicIllness #Booksky #Books #WritersCommunity 💕 #Wellness

New diagnostic criteria for EDS? Yes, but the story's still unfolding. It's not over by a long shot.

buff.ly/Bjo6ZvS

#NewBlogPost #ANeverEndingStory #EhlersDanlosSyndrome #EDS #ChronicPain #ChronicIllness #Booksky #Books #WritersCommunity 💕 #Wellness

Rewriting Your Story? (Thoughts on New HSD/hEDS Diagnostic Criteria) There are rumblings in the Ehlers-Danlos syndromes community.  Change is coming.  Big change: the EDS Society is publishing updated diagnostic criteria for all versions of EDS in December…

This really is a never-ending story...

#NewBlogPost #ANeverEndingStory #EhlersDanlosSyndrome #EDS #ChronicPain #ChronicIllness #Booksky #Books #WritersCommunity 💕 #Wellness

Rewriting Your Story? (Thoughts on New HSD/hEDS Diagnostic Criteria) There are rumblings in the Ehlers-Danlos syndromes community.  Change is coming.  Big change: the EDS Society is publishing updated diagnostic criteria for all versions of EDS in December…

There is always something new to learn, right?

#NewBlogPost #ANeverEndingStory #EhlersDanlosSyndrome #EDS #ChronicPain #ChronicIllness #Booksky #Books #WritersCommunity 💕 #Wellness