Palm cross leaning against a picture in a frame. The picture is typography and it says, "Punk priest".
On God alone my soul in stillness waits.
This Palm Sunday, remembering the #MillionsMissing - those who have ME/CFS
Thank you for remembering us. #MillionsMissing #disability
If you haven’t already, please add your name to this letter to state medical boards urging them to address the education gap on MECFS and to add knowledge of this debilitating condition to licensing requirements.
#MECFS #MillionsMissing
Please learn about the #MillionsMissing and their extreme need for caregiving support, sometimes accessed through Medicaid, which is currently at risk
Wir finden: Das Warten muss ein Ende haben. Setze mit uns ein wichtiges Zeichen für ME/CFS und unterstütze uns bei unserer Aktion am 09.05.2026 um 14:00-16:00 Uhr am Platz der Menschenrechte in Wien!
#unversorgtseit1969 #MECFS #MillionsMissing
2/2
Six years ago, last night.
#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
#PASC
#CovidIsNotOver
#WearAMask
Wir freuen uns auch, wenn ihr uns am 09.05. 14:00-16:00 Uhr am Platz der Menschenrechte in Wien
besucht!
#unversorgtseit1969 #MECFS #MillionsMissing
3/3
.. als Oma vor ein paar Wochen schrieb (in den extrem seltenen Nachrichten) “und liegt Schnee?” Und Kind dann mich fragte und um ein Foto vom Garten vorm Zimmer bat. #ME/CFS #MillionsMissing
Pacing and management guides from #meactnet.bsky.social
#mecfs #chronicillness #disability #MillionsMissing #healthcare
Måske I kunne lave en lille afdeling for ME-børn. Det er så hjerteskærende at Sundhedsstyrelsen ikke vil se dem.
#millionsmissing
“Missing from … my childhood”
www.shutterstock.com/editorial/im...
Postet euer Video gern zusätzlich am 12. Mai auf euren eigenen Social-Media-Kanälen. Benutzt die Hashtags #unversorgtseit1969 #MillionsMissing und taggt uns, damit wir es teilen können. Danke 💛
💙 Euer ÖG ME/CFS-Team
#ME/CFS #unversorgtseit1969 #MillionsMissing
4/4
Achtzehn Millionen (!) Menschen - allein in den USA - leiden an den Folgen einer Corona-Infektion.
#CovidIsNotOver #LongCovid
#MillionsMissing
Long COVID by the numbers:
400 million people affected worldwide
200+ documented symptoms
10–26% of COVID survivors develop it
0 FDA-approved treatments
6 years and counting
Read that last one again.
#LongCOVID #LongCOVIDAwareness #MillionsMissing
700–1000 Personen demonstrieren vor dem Parlament in #Wien anlässlich des Long-Covid-Awareness-Tags mit MUT für ein besseres Gesundheitssystem, Versorgung und Anerkennung für alle Betroffenen von #Long Covid, #MECFS oder anderen #PAIS.
#mecfs #longcovid #postcovid #millionsmissing
#LongCovidAwarenessDay
#millionsmissing
I was a teacher with a rich and active life. Now, thanks to #LongCovid, my days look like this:
Ja, da er fru Landmark igang igjen.
#ME #pwME #millionsmissing #actionforME #MyalgicE
www.forskersonen.no/kronikk-me-m...
A post for Long-Covid Awareness Day.
www.facebook.com/100061511663...
#LongCovidawaressday #LongCovid #PAIS #IACI #pwme #millionsmissing
279 million people - from my ME/CFS photo project
glass.photo/andrewgiffor...
ALT: Colour photo of a rotund green-blue-grey pumpkin on a counter top, looking a little like a planet
#Photography #MECFS #pwME #LongCovid #MillionsMissing #LongCovidAwarenessDay
Today is my coronaversarry. Six years straight of being sick with Covid/long Covid.
Terrible irony to be sick again for it
Just trying to keep breathing
#Covid
#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
#ME
#CFS
#PASC
#POTS
#MyalgicEncephalomyelitis punishes me for being #human. I was curious and stubborn and intelligent and caring, but I'm not allowed to be that person anymore. I have to choose not to think too hard, or this #illness will choose that for me.
#severeME #millionsmissing #spoonie
6 years ago today, Covid-19 was officially declared a pandemic by the WHO. Now, most people have returned to normal. But there are still #millionsmissing with #longCOVID whose lives have been capsized. I wrote an article about it: the-fence.com/a-failure-to... for @thefence.bsky.social
It's very saddening to read this news. Condolences to Bob's family, friends and colleagues. A great loss to the entire ME community. 💙
#mecfs #MillionsMissing #PwME #chronicillness #disability
Wir freuen uns, gemeinsam mit euch wieder ein Zeichen zu setzen:
📍Sa, 09.05.2026 (ACHTUNG: neues Datum!)
📍Platz der Menschenrechte, Wien (ACHTUNG: neue
Location!)
Alle weiteren Details folgen bald auf allen unseren
Kanälen. Stay tuned!
#unversorgtseit1969
#MillionsMissing
2/2
"50 reasons to mask"
#maskup #covid #flu #measles #healthcare #disability #mecfs #chronicillness #millionsmissing
Screenshot from quella_the_dizzy_octopus on Instagram. Screenshot reads "Hi all! Nevra is currently in hospital. She is very ill right now so it is excellent she is getting medical attention. However, her GFM donations have stalled and she needs funds to pay for her hospital stay. A clean private room that protects her from infection and MCAS triggers is about 260 GBP/day. Nevra also does not have funds to pay for rent. It is essential we fundraise for this so she can recover in a safe place after being discharged. Please screenshot and share with her GFM links on as many platforms as possible. This is an emergency situation."
🚨 Nevra's situation is urgent. She can't afford both rent and hospital bills. 🚨
Please donate if you can, and share this post to spread the word.
PayPal: paypal.me/SaveLizNevra
GoFundMe: gofundme.com/f/save-nevra
#pwME #SevereME #MyalgicEncephalomyelitis #MillionsMissing #mecfs
Wurde wieder reich beschenkt am Wochenende: Tulpen vom Besten 🌷, Essen für 4 Tage von Mama und Schwiegermama plus selbstgemachter Erdbeerkuchen. 🤰🏼🍓🍰 So geht Entlastung bei #MECFS ! Bin so dankbar dafür! ❤️
#learnaboutme #longcovid #millionsmissing #Familylove #Blessed
Zeichnender Artist:
@pehpunkt.bsky.social
Bringt sensationell die Welt / das Leben von vielen mit MECFS z.B. nach Covid auf den Punkt.
Schwer krank ohne jede Aussicht auf ärztliche Hilfe 2026 mitten in Europa.
#MillionsMissing
“To The Caterpillar” by Trish Loehrer is included in the amazing Pillow Writers’ 2nd Anthology. Both anthologies are available and your purchase helps support MEAction!
Trish describes herself as one of the #MillionsMissing & dedicated this poem to her son who is also one of the #MillionsMissing.
