Waking up in the night not knowing whether I’m gonna eject stuff out my stomach or bowel or pass out first was not fun (+ fever). Consequently I feel even less alive today than normal… I’ve been trying famotidine lately, I think it slows down digestion even more… #HEDS #HEDSproblems
Something only someone with EDS or HSD would or could say: “Honey…I just kicked myself in the upper inner thigh…” 🥲🤣🫠🦓 #hEDSProblems #EhlersDanlosAwareness #HypermobileEhlersDanlos #HSD #BedriddenSpoonie #BendyNotBroken
Subluxed my finger adjusting my pillow as I got into bed. #hEDSproblems
Popped my shoulder out stretching so that’s the rest of today cancelled. 😐 #hEDSproblems #hEDS
Woke up at 1:30pm after an extra few hours sleep with the worst TMJ pain, 4 hours later, painkillers and no relief. Do you reckon I can go back to bed?? #hEDSproblems #chronicpain
A knee subluxation when home alone has been a joy to navigate today #hEDSproblems
#hEDSproblems getting into bed and waiting for my hips to either fully relocate or sublux 😑
