Online Resources for Understanding and Living With EDS and HSD Ehlers-Danlos Syndrome (EDS) is a group of connective tissue disorders that affect the skin, joints, and blood vessel walls. Because it is a complex and often misunderstood condition, finding reliable...

Have you been looking for information, resources, and support? Give our blog post a read. 🩵🦓🩵

linktr.ee/thezebraalliance #EDS #ehlersdanlossyndrome #ehlersdanlos #hEDS #HSD #hypermobilityspectrumdisorder #hypermobility #chronicillness #EDSresources

Many people living with #EhlersDanlosSyndrome and #HypermobilitySpectrumDisorder continue to face delayed diagnosis, fragmented care, and limited provider awareness.

Colorful promotional graphic for The Ehlers-Danlos Society Female Health Summit virtual conference. The design features soft pastel shapes and icons on a light gradient background. At the top, the Ehlers-Danlos Society logo appears above the large headline “Female Health Summit,” with the subtitle “Virtual Conference for Community Members and Healthcare Professionals.” Centered text reads “1 WEEK TO GO” in large bold letters. Along the bottom, a dark blue banner lists event details: “Saturday, March 7, 2026,” “8:45 AM – 5:30 PM EDT,” and “Online Webinar,” accompanied by small calendar, clock, and computer icons.

Have you got your ticket for the #FemaleHealth Summit? It's coming up fast on March 7, and we have some incredible speakers joining us across a breadth of topics: www.ehlers-danlos.com/female-healt... #EhlersDanlossyndrome #HypermobilitySpectrumDisorder

EDS ECHO Health Advocacy - The Ehlers Danlos Society

Applications are now open: www.ehlers-danlos.com/eds-echo-hea... #advocacy #ehlersdanlossyndrome #hypermobilityspectrumdisorder

Hey, fellow #hEDS and #HSD zebras with unstable wrist, hand, and finger joints: thoughts on those rectangular flappy topped veggie choppers. (I don't have the spoons to hand chop veggies anymore.)
#EhlersDanlosSyndrome #HypermobilitySpectrumDisorder #hypermobileEDS #HypermobilityNeeds

Ehlers-Danlos Society EDS info graphic

Ehlers-Danlos Society HSD info graphic

What are the #EhlersDanlosSyndromes and what is #HypermobilitySpectrumDisorder? Is one worse than the other? The simple answer is yes because symptoms of (h) #EDS are (typically) more severe, BUT that does not discount the impact #HSD has on quality of life, or lack thereof. 🩵 We see you HSDers 🤗

“Promotional graphic for The Ehlers-Danlos Society’s Giving Tuesday campaign. Text reads: ‘Giving Tuesday – December 2, 2025 – Two Weeks To Go!’ A stylized zebra heart replaces the ‘V’ in ‘Giving.’ On the right, a smiling woman holds a young child who has their arms around her. The background is white and purple with soft decorative shapes.”

💜December 2nd is Giving Tuesday, & your gifts will have double the impact!

We're thrilled to share that a donor whose family understands the journey of #EhlersDanlossyndrome (EDS) and #hypermobilityspectrumdisorder (HSD), is matching your generous donations— dollar for dollar—up to $400,000!

You ARE worth more than you do.
Your worth is INNATE and NOT connected to your productivity!

#EDSECHOMentalHealth #MentalHealthMatters #EhlersDanlosSyndrome #HypermobilitySpectrumDisorder

View the event agenda here and see today's topics and speakers: www.ehlers-danlos.com/wp-content/u...

#EDSECHOMentalHealth #MentalHealthMatters #EhlersDanlosSyndrome #HypermobilitySpectrumDisorder

Excited to be joining this fantastic event for the #hypermobileEhlersDanlossyndrome ( #hEDS) and #hypermobilityspectrumdisorder ( #HSD) community today!

Hedge Study Update - The Ehlers Danlos Society

The Hypermobile Ehlers-Danlos Genetic Evaluation (HEDGE) Study continues to advance understanding of #hypermobileEhlersDanlossyndrome ( #hEDS) and #hypermobilityspectrumdisorder ( #HSD). Read the latest update & key findings! www.ehlers-danlos.com/hedge-study-...

And guess what type of patients can have issues with sphincter weakness and laxity, and I'm talking about in other parts of the body, too? EDS patients. 🙃

So, yeah, I'm totally trying this stuff out.

#ehlersdanlossyndrome #HypermobilitySpectrumDisorder #hypermobileehlersdanlossyndrome #GERD

A Simple Exercise to Strengthen the Lower Esophageal Sphincter and Eliminate Gastroesophageal Reflux: An Autobiographical Case Report A novel exercise is described for resistance training of the lower esophageal sphincter. Resistance is provided by gravity as food is swallowed and pushed up an incline into the stomach. The incline i...

A possible solution for some with GERD symptoms, especially those who have esophageal sphincter weakness and/or laxity: KEE - Karrfalt Esophageal Exercise.

#ehlersdanlossyndrome #HypermobilitySpectrumDisorder #hypermobileehlersdanlossyndrome #GERD

cureus.com/articles/873...

Affordable Splint Rings | Evabelle Jewelry | Clermont Evabelle Jewelry offers Silver Splint Rings, Arthritis Rings, Mallet Finger, Trigger Finger Splint Rings, Thumb Splint Rings, Ehlers Danlos Splints, EDS Splints

🦋 Use code EDSMH2025 for 10% off your first order⁠
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Explore more at evabellejewelry.com
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#sponsored #ringsplints #handpain #hypermobile #hypermobility #ehlersdanlossyndrome #ehlersdanlos #hsd #eds #hypermobilityspectrumdisorder

"Infographic titled 'Common Symptoms of Dysautonomia' by The Ehlers-Danlos Society. It shows seven illustrated human figures with icons representing symptoms: tachycardia (fast heart rate), hypotension (low blood pressure), dizziness/lightheadedness, gastrointestinal dysmotility (problems moving food through the digestive system), temperature and sweating dysregulation, sleep problems, and bladder issues."

October is #Dysautonomia Awareness Month. Many people with #EhlersDanlossyndrome (EDS) or #hypermobilityspectrumdisorder (HSD) also have a type of dysautonomia. People with #EDS & #HSD most commonly have a form of orthostatic intolerance. Learn more: www.ehlers-danlos.com/dysautonomia/ ⁠

Have you found benefits from prolotherapy? We'd love to hear your experiences. ⁠
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#painmonth #painmanagement #prolotherapy #EDS #HSD #EhlersDanlossyndrome #Hypermobilityspectrumdisorder

"Both GJH and extreme hypermobility are significant risk factors for long COVID. People with extreme #hypermobility, as newly defined in this study, are at particularly high risk of developing #LongCOVID after an initial #COVID -19 infection."

#ehlersdanlossyndrome #hypermobilityspectrumdisorder

"Learn more at bodybraid.com or visit us at the Symposium if attending in person!"

#sponsoredpost #PostureSupport #EhlersDanlosSyndrome #HypermobilitySpectrumDisorder

New from Dr. Clair's Corner! youtu.be/ovMSTnDRcvQ?...

#EhlersDanlosSyndrome #HypermobilitySpectrumDisorder #Healthcare #HealthProfessionals

Guava: An easier way to manage your health For chronic illness or wellness. Manage your meds, symptoms, medical records and more.

One tool, one shared view — built to support both patients and providers in managing complex conditions." ⁠
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Learn more about Guava at guavahealth.com/home #sponsoredpost #EhlersDanlosSyndrome #HypermobilitySpectrumDisorder

Three Lumia ear cuff devices in gold, rose gold, and silver next to a charging case. An inset shows the device worn on the ear. Text reads: “Experience Lumia Today. Available Now at lumiahealth.com. HSA/FSA We take HSA/FSA Cards! Now wear it your way!”

"Now available for general purchase - we take HSA/FSA!"
Learn more at lumiahealth.com

#Sponsored #POTS #Dysautonomia #EhlersDanlosSyndrome #Hypermobility #HypermobilitySpectrumDisorder #EDS #HSD #Lumia #BrainFog #Syncope #ISS2025

EDS Canada Foundation Diagnosis can be the longest detective mission. It’s estimated that more than 126,000 Canadians live with hypermobile Ehlers-Danlos Syndromes (hEDS). Regardless of a diagnosis, EDS Canada is here to s...

Are you in Canada and need help finding a doc, services, or otherwise (medically)? Take a look at the #EDS Foundation of Canada:
edscanada.org
🩵🦓🩵
#ehlersdanlossyndrome #ehlersdanlos #hypermobility #hypermobilityspectrumdisorder #hEDS #raredisease #chronicillness #chronicpain

Please share your experiences in the comments. Let's bring awareness to this topic. 🩵🦓🩵

#chronicpain #EDS #ehlersdanlossyndrome #ehlersdanlos #hypermobility #hypermobilityspectrumdisorder #HSD #hEDS #chronicillness

New CORE Network of Excellence Cohort Announced - The Ehlers Danlos Society The Ehlers-Danlos Society is delighted to announce new members of its CORE Network of Excellence Program. The CORE (Collaboration, Outreach, Research & Education) Network of Excellence is a global net...

The Ehlers-Danlos Society is delighted to announce new members of its CORE Network of Excellence Program, created to address the deep need for improved access to care globally for #EhlersDanlosSyndrome (EDS) and #hypermobilityspectrumdisorder (HSD).
www.ehlers-danlos.com/new-core-net... #Healthcare

Many people with #EhlersDanlossyndrome (EDS) or #hypermobilityspectrumdisorder (HSD) also experience #chronicfatigue and other symptoms common in ME/CFS.

Disability Pride Month July is Disability Pride Month, add your frame to celebrate the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) community!

Get involved this month:
🎉 Download our profile frame: twibbo.nz/edsandhsddis... (this is a FREE frame, do not put credit card details in to get this frame)
🗣️ Share your story: www.ehlers-danlos.com/share-your-s...

#DisabilityPrideMonth #EhlersDanlosSyndrome #HypermobilitySpectrumDisorder

Support - The Ehlers Danlos Society Meet and connect with others in the EDS & HSD community

The last day, Day 31 of #EDS & #HSD Awareness Month:
We want to thank you for helping us spread Awareness about #EhlersDanlosSyndrome & #HypermobilitySpectrumDisorder ! 🤗 Just liking our posts 🟰 Info in front of more 👀 : Thank You! 🩵🦓🩵
For Year-Round Resources + Info:
‪@ehlersdanlos.bsky.social‬

Home - The Ehlers Danlos Society …looking for advice and information on EDS or HSD, support groups, and the helpline.

Day 29 of #EDS & #HSD Awareness Month: Celebrate the Community 👉 Tag a fellow zebra who inspires you - human or organization: Share with us in the comments 🧡 🦓 🧡
@ehlersdanlos.bsky.social‬ inspired and inspires The Zebra Alliance Community 🩵 🦓 🩵
#ehlersdanlossyndrome #hypermobilityspectrumdisorder

"What advice would I give my younger self... Total honesty, I don't know

Day 26 of #EDS & #HSD Awareness Month: Words to My Younger Self 👉 What advice would you give past you? Some common answers:
🩵 Self-advocate more
🧡 Be kinder to yourself
🩵 You aren't broken: You're stronger than you think + feel
#ehlersdanlossyndrome #hypermobilityspectrumdisorder #chronicillness

Dysautonomia - The Ehlers Danlos Society

Dysautonomia, also known as autonomic dysfunction, is a group of disorders that affect the autonomic nervous system (ANS). Many people with #EhlersDanlosSyndrome or #HypermobilitySpectrumDisorder also have a type of #Dysautonomia: www.ehlers-danlos.com/dysautonomia/