It would be good to see clear public health messaging on this @ukhsa.bsky.social
What is your advice ?
#Infection
#Reinfection
#LongCovidKids
#OverlappingIllness
#PostViralIllness
#Disability
It hurts every cell in my body that parents weren’t warned about infection risk in the early pandemic.
I welcome this information from the RCPCH but it needs to be louder and everywhere. Hopefully it will flood media outlets this week.
#Parenting #Information #Flu #Chidren #PostViralIllness
And it’s not just about the flu itself but also the ongoing impact of post-viral conditions leading to potentially lifelong and hugely debilitating chronic illness 😔
#postviralillness #longcovid #mecfs
(Promoted by Stephen Green, Hawthorn Cottage, The Street, Erpingham, Norfolk, NR11 7QB)
An excellent and comprehensive report 👇🏼
#LongCovid #PostViralIllness
open.substack.com/pub/bridgeto... Bridget OShea died of #MECFS a few days ago. Please share her advocacy for #mecfsawareness & #longcovidawareness #longcovid #postviralillness
#belper #derbyshire #PostViralIllness #ME #naturewriting www.theguardian.com/environment/...
#myalgicencephalomyelitis #mecfs #MyalgicE #postexertionalmalaise #PEM #PostExertionalSymptomExacerbation #pese #PostExertionalNeuroimmuneExhaustion #PENE #ChronicFatigue #PersistantFatigue #Burnout #PostViralIllness #PostViralSyndrome
I wasn’t ready to die. As I feel like I’m closer and closer everyday. I’m only 38 years old.
I’ve been sick with Long Covid for 54 months now. (almost 5 years)
#Coronavirus #Covid19 #Covid #PostCovidSyndrome #LongCovid #CovidLongHauler #Stillsick2020 #Stillsick #PostViralIllness #ChronicIllness
We break down what this closure means—and what might come next:
www.autoimmuneinstitute.org/covid_timeli...
#LongCOVID #postviralillness #autoimmunedisease #PublicHealth #chronicillness #COVID19 #longcovidresearch #HHS #nih #CDC #healthpolicy #longhaulers
I am one of many. The #millionsmissing
#mecfs #chronicillness
#chronicfatigue #ehlersdanlosawareness #ehlersdanlossyndrome #pots #smallfiberneuropathy #mcas #SIBO #nocturnalepilepsy #arttherapy #covid19 #longcovid #longhauler #postviralillness
I've been witness for 5 decades to the neglect of #postviralillness & here we are back to 1970's.
#fascism
#DestroyingAmerica
#chronicillness
#disability
#longCOVID
#MEcfs
www.msn.com/en-us/news/p...
#mecfs #mecfsawareness #mecfswarrior #fibro #fibromyalgia #fibrowarrior #chronicillness #chronicillnessandme #chronicillnessawareness
#MyalgicE #MEcfs #pwME
#SevereME #MillionsMissing
#MyalgicEncephalomyelitis
#LongCovid #postviralillness
#invisibleillnessawareness
#fibromyalgiaawareness
#mecfs #mecfsawareness #mecfswarrior #fibro #fibromyalgia #fibrowarrior #chronicillness #chronicillnessawareness
#MyalgicE #MEcfs #pwME
#SevereME #MillionsMissing
#MillionsMore #MyalgicEncephalomyelitis
#LongCovid #postviralillness. #invisibleillnessawareness
#fibromyalgiaawareness #chronicPain
#longCOVID
#postviralillness
#MEcfs
#MEDsky
neurosciencenews.com/long-covid-c...
#mecfs #mecfsawareness #mecfswarrior #chronicillness #chronicillnessandme #chronicillnessawareness
#MyalgicE #MEcfs #pwME
#SevereME #MillionsMissing #CanYouSeeMEnow
#EndMEcfs #MillionsMissingSpeakOut #MyalgicEncephalomyelitis #postviralillness #invisibleillnessawareness #chronicPain
So… this is just twitter? But better? Safer?
We will see #hey #imnewhere #mecfs #fibromyalgia #fibrowarrior #chronicillness #neurodivergent #adhd #adhdawareness #MyalgicE #MEcfs #pwME #SevereMe #MillionsMore #MyalgicEncephalomyelitis #postviralillness #invisibleillnessawareness
#chronicPain
People can end up with #postviralillness that never go away and totally screw nervous, immune systems, etc. Not often lethal, but it is no life. Overreacting isn't good, but there are consequences.
#MEcfs #longCOVID #postpolio #postviralillness
Another January, & somehow I am in my 3rd year (part-time) of a practice based #PhD with this brilliant bunch @centreplacewriting.bsky.social
#PlaceWriting
#beachcombing #postviralillness #RomneyMarshes
Interesting interview (in German)
#MECFS #LongCovid #postviralillness
www.wissenschaft.de/gesundheit-m...
Interview with Jonas Bergquist by Danielle Meadows, from @openmedf.bsky.social
Interesting to hear about the new research and what it could mean for the future. It seems the first application could be for diagnostics.
#PwME #MECFS #PostCovid #PostViralIllness #MedSky
youtu.be/6KcheaA4-q0
Svårstoppat utbrott av mykoplasma – sprider sig
VI HAR INTE GJORT NÅT ALLS FÖR ATT STOPPA DET OCH VI HAR HELT SLUT PÅ IDÉER!
Typ att skydda sig från smitta med, jag vet inte, en sån där öh, vaheterdet... #MaskUp #CallForPublicHealthAction #Mykoplasma #PostViralIllness
www.aftonbladet.se/a/25b5B4
I can't listen to music (due to illness/cognitive issues), so helpfully my brain is playing a very short part of Welcome to the Black Parade. Thanks brain, I kind of need to relax though?
We'll caaaarry oooooon! 🤦🏼♀️
#PwME #NEISvoid #PostViralIllness
If they had taken ME/CFS seriously from the beginning instead of stigmatizing it — how many of us would have our lives back? It’s really really disturbing.
#LongCovid #MECFS #PostViralIllness
...not sure if it's what you are looking for, but I'm using maps in my current critical/creative phd project on the Romney Marshes - #beachcombing the coast #environment #disability & #postviralillness themes.
I imagine lots of #psychogeography people use maps in different ways too.
From Dan the LC Kiwi (not on Bsky yet): "Check out dysimmune.nz for the latest #LongCovid #MECFS #PostViralIllness research happening in Aotearoa NZ. If you are based in Auckland, consider signing up to be part of a study."
dysimmune.nz/our-team/
Maybe consult that thesaurus: undue implies unwarrented and hoo boy, that's a big red flag, especially if you're a therapist claiming to specialize in chronic illness
#LongCovid #MECFS #ChronicIllness #PostViralIllness