The MacArthur "Genius" Award-winner was best known as the founder of the Disability Visibility Project, which highlights disabled people and disability culture through storytelling projects, social media and other channels. n.pr/47WGe0m
Alice Wong’s legacy is the political horizon she helped articulate. A horizon where disabled knowledge is central, and care is a shared commitment. She taught us to name grief & rage without collapsing under them, to celebrate disabled brilliance without ignoring the material conditions shaping life
Her memoir is an incredible part of her legacy too. Thanks for this compilation.
bsky.app/profile/amyt...
Hugs to you.
There are so many wise words that I've highlighted in her memoir, "Year of the Tiger: An Activist's Life".
Rereading the Intro just now and sharing this glimpse into her incredible character and spirit. I am forever grateful that she left us with her legacy and principled guidance.
I feel the same way. She was a compass for so many of us 💔💔💔.
I have not wanted to believe this for the 30 min since announced. Alice Wong was at the top of a very short list of ppl who truly made the world a better place; a fierce oracle who inspired, rallied, personally supported in dark moments +spoke up for so many of us in the disabled community.
💔 RIP
Pls help me prep for some education sessions I'll be giving; want to see what public perceptions are:
Without looking it up, what do you think the average life expectancy for a Canadian is?
Have you heard of the term "healthspan"?
What do you think the healthspan of the average Canadian is?
🙏🏽
OMG. The world has lost a truly amazing, compassionate, and talented human being.
My condolences to his family and friends.
How devastating a loss to the Edmonton community, and the AB medical community.
RIP Darren. 💔💔💔
🔬Interesting new brainstem and cerebellum study in Long COVID - new imaging findings
A new brain imaging study of Long COVID patients reveals major damage in key parts of the brain responsible for movement, balance, and automatic body functions like heart rate and sleep
Let’s break it down🧵
Not all heroes wear capes. Incredible work from @putrinolab.bsky.social. They have created a *FREE* manual for clinicians treating chronic illnesses associated with infections.
#LongCovid #MECFS #LymeDisease and many others.
Starting Sept. 1, B.C.’s Medical Services Plan is capping all online group medical visits to just 20 patients, to “ensure there can still be a one-on-one interaction between each patient and physician,” the Health Ministry told The Tyee.
At 1st read, thought this was abt actual humans being dehumanized in the name of productivity.
Realizing AI is just extending what has been all along: Extract what you can. Discard. Rinse. Repeat.
And that's how we have society that only puts worth on ppl's productivity and not their humanity.
👇
Yet, I also find it telling that the eulogies only list accomplishments (what institutions & organizations extracted from them) and not the actual type of human being they were.
I want to live in a world where how a person treats other people matters more than their accomplishments.
It is so difficult and so confirmatory of the systems we are trapped in that you must watch people, organizations & institutions eulogize one of your abusers (an openly known "secret") as though they were a saint.
And the suffering without accountability, in silence, continues.
Thank you. Yeah, it was off-putting, to say the least.
Thanks. I've done a lot of tinkering over the last couple of yrs to help them work for me, especially at work.
PS: Doctors can be visibly or invisibly disabled. Doctors can use mobility aids while caring for pts. In fact, more disabled doctors are needed in the profession, not less.
Thank you.
I don't feel that I need to disclose my personal health info at work, but I gave her enough info that she then quickly said, "Oh wow, I'm so proud of you for being able to be a doctor!"
Shared to show the many forms ableism can come out in a 2 min interaction with a complete stranger.
Pic of iridescent rainbow carbon fibre wrapped aluminum forearm crutches with orange ferrules and black & orange accents propped against a car door.
PSA: This afternoon, a visitor at one of the health facilities in which I work, and while I was rounding on my patients, came up to me and asked,
"Who are you? Are you using THOSE (pointing at my forearm crutches in pic) because you *actually* need them, or is it for some sort of performance?" (🤯)
And we're not even going to delve into genetics, epigenetics and intergenerational trauma that impacts one's health and inherent predisposition to certain diseases, again mostly outside of one's control.
On top of the fact that many ppl have chronic inflammation, trauma due to life circumstances, racism, systemic oppressive factors *outside their control* that impact their health.
Don't be deluded into thinking you can "morally" protect yourself from serious illness.
I've been a palliative care & family physician for 20+ yrs. Marathon runners, organic food eaters, cross-fitters + whatever else is considered a virtuous "healthy" lifestyle have all unfortunately been subjected to (for many, early) life-limiting diseases, despite this.
No one "deserves" illness.
Thanks for this! Resourceful, as always.
#TSUNAMI Watch has been issued by the National Tsunami Warning Center and it includes #BC Notification Zones A, B, C, & D.
If it materializes, expect it to begin around 2205 Langara BC and at 2330 PDT at Tofino.
For more and updates: go to tsunami.gov
#BCtsunami #BCstorm
To think & act as though you're entitled to comfort, is in fact privilege.
Ppl must examine themselves & the world around them: who is materially at actual risk (of dying, losing health, autonomy, freedoms, losing their careers/livelihoods) in the given context, and why is your comfort worth more?
TW: SA
Today's hockey trial in Canada underlines once again victims of sexual assault are not valued in society. The system is designed to protect perpetrators, mostly men, while harming the assaulted, mostly women and girls. This must change. Believe the victims.
Oh and for all the armchair legal experts with their "Well, actually..." this is a reminder that not guilty does not mean innocent. You do not get found innocent in a Canadian criminal trial. ✌🏻
My thoughts are with EM. I hope you are surrounded with love and care. You matter. Your story matters.