“It’s Rare Disease Day!” with the Rare Disease Day hand logo and the website” The background is a blue and purple gradient.
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://go.rarediseaseday.org/NEWS
Free the cord custom tshirt with giraffe and green awareness ribbon. Me with a painful look. Filter over the phone of broken glass.
Hard to believe it’s been six years since my neurosurgery for a rare disease. I often think about how differently things could have turned out — and I’m endlessly grateful to still be able to walk, even when it’s difficult, and to work in DC doing what I love. #TetheredCord #RareDisease #ChronicPain
Medical gaslighting with chronic illness.
The conference starts tomorrow. Don't miss out!
Register here: www.awarenessforpotsies.org
#POTS #ChronicIllness #ChronicPain #MedicalGaslighting
Medical gaslighting with chronic illness. A crowd of people sitting in an auditorium
Excited to join the Awareness for POTSies virtual conference this Saturday! Honored to be part of a powerful lineup raising awareness and advocating for those with chronic conditions.
Register here: www.awarenessforpotsies.org
#POTS #ChronicIllness #ChronicPain #MedicalGaslighting
Looking forward to presenting at the A4P conference!
✅️ Head over to their website to register! www.awarenessforpotsies.org/conference
#MedicalGaslighting #ChronicPain #POTS #ChronicIllness
Get ready! 🎉 CoMorbidityCon 2025 is almost here — and it’s completely FREE to attend!
💜 Open to anyone living with these conditions—or those who support them. Please share widely with your community!
📅 Register now: chronicmigraineawareness.org/comorbidityc...
#CoMorbidityCon
Graphic with a stethoscope and a doctor’s arm, displaying the text 'CLINICAL CARE GUIDE Managing ME/CFS, Long COVID, & IACCs.' The Bateman Horne Center and MERC logos are at the bottom, with a background of a deep blue gradient.
The Clinical Care Guide for #MECFS, #LongCOVID & IACCs is here! Download, share, and use it to support better care. BHC's approach is now freely available—designed to help providers manage complex conditions with clarity & compassion. Download it. Share it. Use it. bit.ly/432YdzF
10 Best Psychology Today Articles on Stress Management (2024 Top Picks) #mindfulness #wellness #mentalhealth
Happy St. Patrick's Day! Three cute pups, four leaf clover, horse shoe, rainbow, pot
🍀
Five years and counting for me. #LongCOVID
I felt it was fitting to share a part of my journey for #RareDiseaseDay so people new to this world know that they are not alone.
#ItsNotAnxiety #ChronicIllness #ChronicPain #MedicalGaslighting
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I created this video in 2023. Since then, I have been diagnosed with numerous rare diseases and now have over 50 medical conditions.
youtu.be/8ppMtvhs8x8?...
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"How to Keep Up with the News Without Getting Overwhelmed"
by Rebecca Knight
hbr.org/2025/01/how-...
🙋🏼♀️ Nothing helps me with it (typical!) but I've heard of others benefiting from sleeping on an incline to take pressure off the area. Also heat or ice depending on preference.
6. If someone is masked (me) and you are not and it's a big waiting room that's not crowded, don't f'n sit next to them! I will not hesitate to give you the look. 😷👀
To conclude, try to suck less people.
👇🏻Feel free to add your own waiting room etiquette tips below.
5. Don't have private conversations about C. Diff and poop with graphic details loudly on the phone. Glad to know you were exposed to C. Diff and are now right here (This person is married to loud cell phone guy. See #4.).
4. Phone = silent. There are sick people & people who have sound sensitivities. We don't want to hear the game you are playing on the loudest setting possible or a race car event. There is already music/TV in waiting rooms so there are a bunch of competing sounds & frankly it's a nightmare for many.
3. Finish your cell convo before you enter the waiting room instead of going up to the reception desk with your ear piece in talking to both the receptionist and the person on your phone at the same time. It's rude, yo.
2. Use your inside voice. This one's for the men. No one wants to hear your very loud conversation about how busy and successful you are, sir.
I wrote the below post while in waiting room in 2023 and wow does this still ring true!
Get ready for a giant post on waiting room etiquette! ⬇️
1. Leave your sh*t at the door. No one wants to hear you arguing as a couple. We are not an audience on The Jerry Springer Show.
Dr. Melissa Geraghty in 2024. Psychologist Expert Advocate. Transforming Healthcare through Empowered patient voices.
View the whole post here:
www.linkedin.com/posts/drmeli...
When you start to feel like things should have been better this year remember the mountains and valleys that got you here. They are not accidents and those moments weren't in vain. You are not the same you have grown and you are growing you are breathing you are living. You are wrapped in endless boundless grace and things will get better. There is more to you than yesterday. - Morgan harper nichols
Thank you!
Day 1
youtu.be/mkR_Qwix4Ho?...
Cute closeup of a fawn pug
Cute closeup of a fox looking pomeranian who is on her side leaning against her pug sister, with one foot bent ready for pets.
A closeup of a cute wolf coloring pomeranian
My little hearts. #DogsOfBlueSky
Nice to see you over here!!!
Thank you! :)
Please add me! I have Long COVID, write/present about it, and support/advocate for others.
