I just turned 57 on the 1st and realised im 3 away from 60. I’m existing only being profoundly disabled by severe pain & so much more too many dx & im
Truly out of Fs . I’ve had it with these “people “

Same! See my new label 😂?

I would not have been able to keep my mouth shut and definitely would have given them a piece of my mind.

The answer for everyone that isn’t indigenous to Australia is along the lines of “no, for as long as you or I are standing here, there’ll be one migrant or descendant of migrant left!”

Nooooo insight.

I overheard my next door neighbor complaining to the 5 guys he moved into the 2 bedroom duplex…. Talkin bout “they should just let us be racist if we wanna be racist.”

This shithead has attacked folks and done a bunch of awful shit… humans suck so hard

My hometown is S KY is chocked full of nationalist Christians that walk through those church doors every time they open with hate & fear of anything different than them. They will never be reached.

We’re still saying that for the people she overheard …

"We'll never get them all out of here either."
That is what the native Americans said about the settlers.

I would have opened my big mouth.

Hoo boy, that was a tough listen. Two women in a department store, browsing racks right next to me, discussing 'immigrants'. I had to walk away when one said '...and you know what? We'll never get them all out of here either'.

There's just no helping some people. 🙄 #Its2026

Second vaguepost in an hour but dating advice: if we’re flirting and you keep saying that you’re ugly or unlikeable or whatever and refuse or interrogate any compliments to the contrary when I’m clearly already showing interest back, there’s nothing I can do. There’s no way I can respond.

WE MISS LEONARD NIMOY, LOVE
MR.SPOCK..........🖖🏻🖖🏻🖖🏻🖖🏻🖖🏻🖖🏻🖖🏻

“I can’t believe what you say because I see what you do.” — James Baldwin

🤷🏼

Karoline Leavitt @PressSec Fact Sheet: President Donald J. Trump is Accelerating Medical Treatments for Serious Mental Illness

we've noticed and i'm glad he's getting help

Everything and much much less pain. I’m tipped out at 90mme now & barely surviving. So I can’t imagine anything less . Not sure how you’re able to withstand what you are . Gentlest hugs 💜

My life caught the rare birth defect etc etc … then my second one she’s like a bloodhound & didn’t give up and found all my autoimmune issues ( have 7 so far ) etc . I see rheumos as detectives. I know just the thought is exhausting though . I HATE going to the dr . Anyhow wishing you better

CDC guidelines 2016 destroyed my life & now I’m wasting away literally, can barely walk and just kinda exist but I push myself bc I have children. I won’t give up. I truly hope you can find a GOOD Dr thst will help you have u seen a rheumatologist? I know that get a bad rap but my first one saved

Years now since a brain spinal surgery gone very wrong- woke up in icu with severe burning head to toe agony and no amt of diff opioids has ever completely gotten rid of it but I was on 125mcg hr fentanyl patches plus 45mg day of oxycodone for breakthrough & I DID somewhat have a life then but the

So id start there to find out possible drs etc to try to see or communicate with -I know the exhaustion and pain make it prob impossible to travel but maybe theres good drs who can see you virtually & order tests etc? I suffer from severe chronic fatigue & excruciating intractable pain for over 20

But his posts are the truth of what it’s like & his mom & dad are some of THE biggest advocates for ppl with cfs ME & are amazing and super super highly intelligent folks who don’t give up. & they’re on top of the best research & newest treatments etc . They havs YouTube channels etc and all over SM

To easily find both of them on here look at my last reposts. Whitney is bedridden & I feel very protective of him bc I’ve watched his journey for a decade or more now & know how fragile he is so I follow but don’t bother him & feel it would be detrimental to him to follow me , it would exhaust him.

I feel like a war torn soldier, at war with the whole world for the most basic human rights.  But I'm a devastatingly fragile, severely chronically sick person.  Why don’t I feel like I’m being taken care of by a kind and loving society that wants me to thrive again?

#mecfs #LongCovid

A quote from 2024, but sadly still urgently relevant today:

"Care for ME needs a complete overhaul worldwide if we are to care for ME patients the way we care for patients with any other health condition." — Whitney Dafoe @whitneydafoe.bsky.social

#MyalgicEncephalomyelitis #pwME #MECFS

Living just one more day with #MECFS is the saddest, most horrifying thing I could imagine. But I’m going to do it. I’m going to wake up tomorrow and let another day slide past me without living it. And I’m going to get up the next day and do it again. Acceptance, letting go, courage…

I want to venture out into the garden today on Easter, find an egg, open it up, and find my life waiting for me in there.  On pause.  Swallow it whole and then do anything I want.  Anything.  I just want to picture it and go, my body firing into action.  Follow the white rabbit!

#mecfs #pwME

In The Hospital

In January this year I spent 3 weeks in the hospital for a serious infection and related conditions. My experience there was at once a surprise and a discouraging setback.

Read the whole piece and watch the video on my blog 💙
www.whitneydafoe.com/mecfs/?post=...

#mecfs #LongCovid

When you have #severeMECFS, you can't be very active at all, so if you're lucky and can tolerate a screen (and many or most can't), about the only thing you can work on involves your computer. 1/2

1) During the Stanford Community Symposium, Dr. Randall Peterson explained how his team at the University of Utah has recreated the Itaconate shunt model of ME/CFS in zebrafish.

They found that these fish swim less and have reduced oxygen consumption.