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Posts by Patty Reboli Spears

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Great discussion with @rickbuck.bsky.social & all @theaacr.bsky.social is doing to unite cancer centers across the country to advocate for cancer research. #naccdopamn2025

11 months ago 2 1 0 0
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Dr. Ribisl gives one heck of a presentation, even for this non-scientist 😉 Fascinating research around smoking cessation & advertising + cancer control efforts. @unclineberger.bsky.social

7 months ago 2 1 0 0
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We love Shelley Earp, MD! 🩵
@unclineberger.bsky.social

7 months ago 3 2 0 0
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Kicking off 50 years of @unclineberger.bsky.social with @robertferrismdphd.bsky.social & the 48th Annual Scientific Symposium… looking forward to hearing the amazing reflections on #50years of #cancerresearch!

7 months ago 6 3 0 0
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A Patient-Philanthropist's Vision for New Cancer Research - UNC Health Foundation Philanthropy has always played a major role in research at UNC, but Barbara Dean has taken this one step further by being an active participant in supporting those research efforts. Dean’s experience ...

Patient/community engagement can make a difference. Building trust and fostering communication directly with researchers matters.

I am excited about this new fund to foster innovative cancer research! #UNCLinenerger #bcsm #lcsm #cancerresearch

unchealthfoundation.org/gifts-at-wor...

8 months ago 5 0 0 0
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Patty Spears is set to chair the #AACR25 Patient Advocate Poster Symposium: 3 – 4:30 p.m. CT, Room S402. unclineberger.org/news/unc-lin... @paspears88.bsky.social @theaacr.bsky.social

11 months ago 5 1 1 0

Landed in Chicago! On my way to @theaacr.bsky.social #AACR25 meeting as part of the #AACRSSP25 program! Looking forward to networking and learning about cancer research… @unclineberger.bsky.social #patientadvocacy @arosen380.bsky.social @jillfeldman4.bsky.social @bobriter.bsky.social

11 months ago 14 1 1 0
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New study from the Stanford Mind & Body Lab to better understand and support the health and well-being of people recently diagnosed with cancer.
You can take part from home.
For more info: www.embracestudy.org

@stanford-cancer.bsky.social #bcsm #lcsm #mmsm #pcsm #crcsm #cancerwellbeing

1 year ago 3 0 0 1

So excited about this session! Hear about patient and community engagement - @bobriter @e_paskett @EugeneManley CJ Williams, A. Co-Dyre, R. Prosser, B.Salhia, A. Saghian #patientengagement #AACRSSP #AACR25 @unclineberger.bsky.social @theaacr.bsky.social www.abstractsonline.com/pp8/#!/20273...

1 year ago 3 1 0 0

NIH cutting COVID research because “the pandemic is over” is like grounding all weather satellites because it’s sunny out today ☀️

We need to study pathogens before they’re emergencies

...It's not sunny in Pittsburgh today #PublicHealth

1 year ago 117 34 2 2
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At today's Congressional Forum, Dr. Larry Saltzman testified that NIH-funded research was crucial to his 15-year survival with chronic lymphocytic leukemia. "For patients waiting on the next treatment, time is everything. These cuts could rob us of the time we need most."

1 year ago 38 8 1 1
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Saying ‘pandemic is over,’ NIH starts cutting COVID-19 research Grant terminations halt research on improving vaccinations and preventing future pandemics

"Grant termination letters went out last night to principal investigators of 29 awards made by the National Institute of Allergy and Infectious Diseases.., including 9 grants that were part of a program hoping to deliver antiviral drugs to prevent future pandemics."

www.science.org/content/arti...

1 year ago 40 21 2 4
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NEW: Baldwin, Welch Announce Forum on Devastating Trump Cuts at NIH Jeopardizing Cures for Alzheimer’s Disease, Cancers | U.S. Senator Tammy Baldwin of Wisconsin WASHINGTON, D.C. – Today, U.S. Senators Tammy Baldwin (D-WI) and Peter Welch (D-VT) announced that...

Heads up: [Wed, March 26th at 2:30 pm (ET)] Congressional Forum on Capitol Hill to discuss the devastating cuts at NIH that are jeopardizing cures for Alzheimer’s Disease and many cancers.

press release www.baldwin.senate.gov/news/press-r...

Livestream at youtube.com/live/JofqSdWmhbM

1 year ago 1 0 0 0
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Opinion | Sorry, R.F.K.: There Is No Autism Mystery (Gift Article) Greater awareness, not vaccines, has driven an increase in diagnoses.

#MedSky #NeuroSky

Wonderful @nytimes.com op ed by @holdenthorp.bsky.social about his diagnosis of #autism spectrum disorder in midlife & his take on why the incidence of the condition appears to be increasing.

www.nytimes.com/2025/03/20/o...

1 year ago 34 9 1 1
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Rob Winn: Fighting for Better Access to Genetic Testing - OncoDaily Rob Winn: Fighting for Better Access to Genetic Testing / AACI, Association of American Cancer Institutes, cancer, fight against cancer, genetic testing,

Fighting for Better Access to Genetic Testing - Rob Winn

oncodaily.com/blog/252443r...

#Cancer #Medicine #Health #FightAgainstCancer #Oncology #OncoDaily

1 year ago 11 3 0 0

Why basic research matters and defunding and firing scientists will cost us.
Many life-saving breakthroughs started as curiosity-driven science with no clear application. Yet, these discoveries once seen as obscure ended up transforming medicine.
Here’s why funding basic science is essential.
A 🧵👇

1 year ago 130 52 3 1
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Renowned geneticist Francis Collins retires from NIH, urging 'respect' for embattled workers Dr. Francis Collins, a renowned geneticist, and former longtime director of the National Institutes of Health, is retiring from the government agency and urging “respect” for its embattled workers.

"When you hear about patients surviving stage 4 cancer because of immunotherapy, that was based on NIH research over many decades. When you hear about sickle cell disease being cured because of CRISPR gene editing, that was built on years of research supported by NIH"

apnews.com/article/nih-...

1 year ago 334 125 2 9
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Inside the Collapse at NIH Administration officials pressured NIH to avoid clear advice from the agency’s own lawyers to restart grant funding now.

By @katherinejwu.com

"The NIH... supported 99 percent of the drugs approved in the U.S. from 2010 to 2019. The agency has had a hand in “nearly all of our major medical breakthroughs over the past several decades,”

The NIH is in a struggle for its (and our) lives. This is existential to America:

1 year ago 814 489 11 28

Don’t give up
Don’t give up
Don’t give up
Don’t give up
Don’t give up
Don’t give up
Don’t give up
Don’t give up
Don’t give up

You can do it. Don’t give up.

1 year ago 958 225 26 5
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NIH funding freeze stalls applications on $1.5 billion in medical research funds The National Institutes of Health had to stop considering new grant applications, delaying funding for research into diseases ranging from heart disease and cancer to Alzheimer's and allergies.

The National Institutes of Health had to stop considering new grant applications, delaying funding for research into diseases ranging from heart disease and cancer to Alzheimer's and allergies.

1 year ago 3568 1479 161 131

NIH indirects case update:

Hearing ongoing now, and I'll try to live tweet some notable exchanges.

Prior to more detailed arguments, Judge Kelley starts off with a few point questions to both sides:

(I'm paraphrasing here)

1 year ago 347 197 14 38
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Reaffirming the JAMA Network Commitment to the Health of Patients and the Public In the first month of the new administration responsible for leading the US, the executive branch has issued a flurry of orders, including ones associated with the dismissal or resignation of tens of ...

"the silencing of science and health-related communications through suppression or erasure of information, and the corresponding silence by many in the fields of biomedicine and public health, deserve special consideration."

"The free exchange of ideas is essential to scientific progress"
@jama.com

1 year ago 47 19 0 0

Let's do one in #Seattle !! 😎 Paging @uwmedicine.bsky.social @fredhutch.bsky.social #scienceforall

1 year ago 29 8 1 0

AACR urges Congress to reaffirm its long history of steadfast and bipartisan support for medical research by ensuring that NIH has all of the resources needed to advance its lifesaving mission to prevent, diagnose, and treat cancer and other diseases: AACR.org/NIH

1 year ago 58 34 0 2
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A Direct Hit, by @holdenthorp.bsky.social @science.org
www.science.org/doi/full/10....
"This is a moment to unite."

1 year ago 900 375 24 18
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It's not "Breaking News" now, since it was announced by NIH yesterday. But it is breaking.......
washingtonpost.com/health/2025/...

1 year ago 862 278 37 22
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This is what amounts to an ILLEGAL & indiscriminate funding cut for research centers everywhere. It will mean shuttering labs across the country, layoffs in red & blue states, and derailing lifesaving research on everything from cancer to opioid addiction.

We all need to speak out to save lives.

1 year ago 1256 528 82 36
NOT-OD-25-068: Supplemental Guidance to the 2024 NIH Grants Policy Statement: Indirect Cost Rates NIH Funding Opportunities and Notices in the NIH Guide for Grants and Contracts: Supplemental Guidance to the 2024 NIH Grants Policy Statement: Indirect Cost Rates NOT-OD-25-068. OD

1. Today the NIH director issued a new directive slashing overhead rates to 15%.

I want to provide some context on what that means and why it matters.

grants.nih.gov/grants/guide...

1 year ago 7026 4101 256 901

Happy #BlackHistoryMonth! Follow these #MedSky leaders among us:

go.bsky.app/3wc2Q3G

1 year ago 77 36 0 1