Hi. My 14 yo daughter lives with #22q13. Thank you for advocating and nice to meet you. We're in Orlando

And for the sake of #awareness, she has Phelan-McDermid Syndrome #22q13, Ring 22 Chromosome Syndrome (both #rarediseases) and #autism

She's also an 😇

Today and every day we are #phelanlucky! #smilesformiles #careaboutrare #22q13 #phelanmcdermidsyndrome