I have just seen a woman walking around with a taxidermied rooster. It is time to depart Portland. #ASBH2025
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#ASBH2025
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I wish we as ethicists could agree to stop calling patients “noncompliant.” The word compliant suggests patients *must* comply with medical instructions, rather than engaging in shared decision making about whether they wish to adhere to recommendations. #ASBH25 #ASBH2025 #Bioethics
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#ASBH2025 overlapping with the #ACR25 presentation on sJIA/Stills/HLH/MAS feels specifically inconvenient for me, a Pediatric Ethics Fellow with sJIA, PID, and a history of undifferentiated HLH/MAS. However, I fear that I may be the only person encountering this problem. 😂
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Marissa, wearing a multi-colored jumpsuit and a dark blue zip-up, gently touches Caesar the No Drama Llama, who is mostly white with touches of brown.
Meeting Caesar the No Drama Llama was not only the highlight of this year's ASBH 2025, but maybe the highlight of every conference I've ever attended. #asbh2025
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Nicole Foti at a podium on the right with PowerPoint with title of her talk: Health Equity in the Digital Determinants of Health, Bioethics and AI
Nicole Foti (Stanford Center for Biomedical Ethics) presents interesting discussion of “digital determinants” of health and AI #asbh2025
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Quinn Waeiss at podium with PowerPoint covering items related to LLMs in healthcare to their left
Quinn Waeiss (Stanford Center for Biomedical Ethics) with great talk on patient and provider perspectives on AI communication tools in healthcare #asbh2025
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Celebrate 25 years of Loyola Bioethics at #asbh25 with this incredible video of Emily Anderson & two of our fellows in #Ukraine, Dr. Vladyslava Kachkovska & Dr. Yaryna Pikulytska. Clearly "Education as Accompaniment" is the right anniversary theme. #asbh2025 luc.hosted.panopto.com/Panopto/Page...
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Hey #asbh2025, come remake bioethics with us at tomorrow's workshop from 2:30-3:30. We would like to see all sorts of people in considering how we can use multiple solidarities to change our discipline and institutions.
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Disability is diversity, and disabled ethicists bring a depth of experience that can enhance the field IF they are included. So far we‘ve seen accessibility only matters at the height of a pandemic. Disappointing from the nation’s leading group of bioethicists. #ASBH2025 (2/2)
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More talks about disability justice & the importance of increasing the diversity of ASBH & as usual not one word was uttered about or accommodation made for anyone whose disability leaves them immunocompromised, which is about 6.6% of Americans, some of whom are ethicists.
#ASBH2025 (1/2)
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Got to sit next to Prof. Goldberg in this talk.
1. It’s so cool as a student/fellow to meet people you admire on BlueSky and in Academia in real life.
2. Dr. Stramondo, Dr. Cupples, and Dr. Diaz all had insanely amazing presentations. Please go read these skeets.
#ASBH2025
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Dr. Cupples: Physicians and lawyers involved in disability determinations are considered highly credible but the person w/ the lived XP of disability themselves is deemed much less trustworthy #ASBH2025 #Bioethics
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Dr. Cupples and Mr. James: "Administrative systems such as the disability benefits apparatus purport to serve needs of a vulnerable population while harming them in practice" -- this is administrative violence hidden behind a mask of benevolence, & structural gaslighting accomplishes this #ASBH2025
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Dr. Diaz: Only six English-language studies focused on the actual lived experiences of disabled people with unmet dental health needs 👀 #ASBH2025 #Bioethics
(major themes in this study: dental underinsurance, lack of accommodations in the dentist's office)
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Dr. Diaz: People w/ poor oral health are highly stigmatized in US society #ASBH2025 #Bioethics
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Dr. Diaz: "The ability to brush one's teeth is difficult or impossible to do alone for many people w/ developmental disabilities" -- maintenance of dental hygiene is largely framed as self-delivered and individualized, which blames people w/ poor oral health for their condition #ASBH2025 #Bioethics
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Next presentation is from Dr. Marissa Diaz on unmet dental needs and disability, with a mixed methods focus -- the presentation here focuses on the qualitative findings #ASBH2025 #Bioethics
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Dr. Stramondo is citing provisions from CMS regs that medicalize access and embodies #StructuralGaslighting #ASBH2025 #Bioethics
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Dr. Stramondo: "Wheelchairs are NEVER medically necessary. They are SOCIALLY necessary to allow the user to access social inclusion and the good of life. This is ... medicalizing access!" #ASBH2025 #Bioethics
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Dr. Stramondo is locating this work in a book he is writing on philosophy and assistive technology #ASBH2025 #Bioethics #DisabilityEthics
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Dr. Stramondo: The medical model of disability is a "justifying story and mythology" that upholds structures of oppression by gatekeeping access to social goods via medical criteria #ASBH2025 #Bioethics
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Dr. Stramondo: This work of medical gatekeeping intersects with and exemplifies Nora Berenstain's work on #StructuralGatekeeping #ASBH2025 #Bioethics
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Much of what Dr. Stramondo is articulating in this session intersects with my work on accusations of malingering, #StructuralViolence, #ableism, and @dorfmandoron.bsky.social's work on the fear of the disability con. Also resonates with @nicole-lee-sch.bsky.social's terrific #DisHist work #ASBH2025
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Dr. Stramondo: "Virtually all policies that allegedly provide access otherwise denied by social causes gatekeep this access via medical limitations" -- e.g., forensic screening of disability status [ed: "induction of physicians into the surveillance state" = something I study historically] #ASBH2025
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Dr. Stramondo is presenting on medicalizing access and medical gatekeeping of interventions designed to address the socialization of structural #ableism #ASBH2025 #Bioethics
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There's quite a few sessions on disability ethics here at #ASBH2025, and I'm especially excited to be attending the session on "Combating Structural Gaslighting through Disability Narratives" and listening to Joseph Stramondo, from whom I learn much! #Bioethics
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I asked Jerome Adams at #asbh2025 what his approach was to our ongoing public health catastrophe, our government kidnapping people, and he said that no one can do everything, it's a bandwidth issue.
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It shouldn't be so significant that Jerome Adams is advocating for universal health care at the #asbh2025 plenary, but it is.
Why can't ASBH advocate for this institutionally?
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