🗣️"Without modern medicine & effective treatment, I'd still be lying in bed with chronic pain.” – Nathan Roubaty on life with #Afibrinogenemia at the #EHCRoundTable. A powerful reminder of what's at stake.

On #RareDiseaseDay 2026, we're shining a light on #UltraRare #BleedingDisorders — factor deficiencies, #GlanzmannThrombasthenia, #BernardSoulierSyndrom, #Afibrinogenemia... Our #RDD blog highlights the experience of Helen, who lives with #FactorV deficiency: https://loom.ly/hcPNBXE

#HemeSky #MedSky