Journey: Anti-NMDAr AE – Day Nine Mama & Dada enjoying the sleeping child and getting into the holiday spirit with festive masks. Just nine days in and I can see that I’ve got a pattern when it comes to any good signs Kiddo exh…

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 9: December 15, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

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Journey: Anti-NMDAr AE – Day Eight [See Day Seven‘s blog post to refresh your memory of what happened the day before.] In the past 30-ish hours the only documentable sleep Kiddo had was a 25 minute nap from 11:00 a.m. – 1…

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 8: December 14, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

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Journey: Anti-NMDAr AE – Day Seven Dada’s response when I checked in via text to let them know I was headed in after my night at home! I arrived at the hospital this morning bearing one of Kiddo’s favorite weekend breakf…

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 7: December 13, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

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Journey: Anti-NMDAr AE – Day Six Even in the hospital, in the middle of the night, Mama + Kiddo match. Thankfully, and very out of the ordinary for Kiddo’s nights in the hospital up until this point, they slept for much of t…

More episodes, but somehow also, more sleep.

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 6: December 12, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

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Journey: Anti-NMDAr AE – Day Five (Dada helping keep Kiddo still while getting a new IV line. (You can’t see them well but you will get to know these nurses, Hannah and Shannon, well over the course of this series.) Around 8:…

The first day we heard the words “brain on fire.”

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 5: December 11, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

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Journey: Anti-NMDAr AE – Day Four Today is our first day without a scheduled procedure since we arrived with Kiddo at the Monroe Carell Jr. Children’s Hospital’s Emergency Room.But first – last night.

Worsening symptoms, still no answers.

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 4: December 10, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

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Journey: Anti-NMDAr AE – Day Three Bright eyed and bushy tailed at 6:00 a.m. – ready to switch shifts. I want to preface this day’s entry with something very important to me. As I mentioned in yesterday’s writing entry I took …

Some words about why I’m writing about some of the worst and hardest days of our lives.

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 3: December 9, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

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Journey: Anti-NMDAr AE – Day Two As long as there’s bacon, all is well. Learning from our previous mistakes, Kiddo’s dad and I were now swapping our shifts before the 7 am nurses’ shift change. On this day I was at the hospi…

More symptoms, still no answers.

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 2: December 8, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

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