Please watch this documentary about anti-NMDAR autoimmune encephalitis. It might save the life of someone you love.
#encephalitis #autoimmuneencephalitis

m.youtube.com/watch?v=rLH-...

Clinical Features and Outcomes in Adult Patients with Autoimmune Encephalitis Requiring Intensive Care: A Retrospective Cohort Study Neurocritical Care - This study aims to explore the predictors of poor outcomes by analyzing the clinical characteristics and prognosis of adult patients with severe forms of autoimmune...

1/ 👋 there #neurotwitter #neurosky #neurocritcare, as part of my @neurocritcarej #SoMeAmbassador role, today we will be breaking down the following article: link.springer.com/ar... about #AutoimmuneEncephalitis

The DAME score predicts the risk of epilepsy in patients with autoimmune encephalitis-associated NORSE.
doi.org/10.1002/epi....

#epilepsy #ILAE #epilepsia #autoimmuneencephalitis #etiology #NORSE #statusepilepticus

Video by @crysrenae Watch on Omni Video

Will never stop spreading awareness for PANS/PANDAS 🫶🏼 #pans #pandas #panspandas #panspandasawareness #autoimmuneencephalitis

Comparison of the Efficacy of Polyvalent Intravenous Immunoglobulins and Therapeutic Plasma Exchange in Anti-NMDAR Encephalitis in the ICU - Neurocritical Care Background Anti-N-methyl D-aspartate-receptor encephalitis (anti-NMDARe) is a severe disease with a favorable outcome when immunomodulatory management is started rapidly. The main objective of this st...

Happy to share our last study on severe anti-NMDARe just published in @neurocritical.bsky.social : This observational study suggests therapeutic plasma exchange (TPE) may be more effective and faster-acting than IVIG. link.springer.com/article/10.1... #NeuroICU #AutoimmuneEncephalitis #Neurology

An autoimmune disease stole this man's memory. Here's how he's learning to cope Sometimes our immune system runs amok and attacks the organ that makes us “us” — the brain. It's called autoimmune encephalitis and it can appear out of the blue.

What happens when your immune system hijacks your brain? Of all the ways our immune system can run amok & damage the body instead of protecting it, #AutoimmuneEncephalitis is one of the most unfathomable. Adding Insight, @mountsinainyc.bsky.social's Dr. Sam Horng👉 apnews.com/article/auto...

Please boost this. Our son Adam has autoimmune encephalitis and autoimmune seizures. IVIG is the only treatment that works, but BCBS of Oklahoma just denied it as “experimental” after 2 years of success. 💙 #IVIG #AutoimmuneEncephalitis #AutoimmuneEpilepsy

#Medsky🧪 #IDsky #Immunosky #neurosky #publichealth #Autoimmuneencephalitis is a severe brain condition where the immune system attacks the brain, leading to symptoms such as memory loss, confusion, behavioral changes, difficulty moving, and severe seizures.

Approximately, 26% patients with unexplained seizures or epilepsy deterioration tested positive for autoimmune or paraneoplastic antibodies.
doi.org/10.1002/epi4...

#epilepsy #ILAE #epilepsiaopen #antibodytesting #APEscore #autoimmuneencephalitis #EEG #paraneoplasticencephalitis

γ-Aminobutyric acid B receptor (GABABR)-IgG (immunoglobulin G) autoimmune encephalitis often presents as encephalopathy with seizures in the context of underlying small cell lung carcinoma.
doi.org/10.1111/epi....

#epilepsy #ILAE #epilepsia #antiGABABreceptor #autoimmuneencephalitis

Psychiatric care is key to recovery after #AutoimmuneEncephalitis, but many patients are missed. New research from @kbi-uhn.bsky.social shows better assessments could ensure no one slips through the cracks. 🫂

🔗 Read more: www.uhnresearch.ca/news/healing... @uhn.ca

Autoimmune encephalitis - Nature Reviews Disease Primers In this Primer, de Bruijin et al. discuss the epidemiology, pathophysiology, diagnosis, management and quality of life of adults with autoimmune encephalitis, a rare neurological condition that causes progressive inflammation of the brain. The authors also discuss unmet needs of the field and discuss strategies to improve long-term outcomes.

Learn more about #AutoimmuneEncephalitis with our NEW Primer by Titulaer and colleagues. Check it out here:

IVIG full strength, Let’s Go!!

Let’s go grab a coffee, woolly socks, pj’s, recliner chair, blanket from the warmer (!), knitting, and infusion meds…

Maybe a nap? Probably not unless I just can’t stay awake.

#IVIG
#AutoimmuneEncephalitis

1st day of 5-Day IVIG treatment!

“Your nurse is tied up in a room, so I’ll be getting your vitals.”

Me: Someone should really let her out. 🤨

#AutoimmuneEncephalitis
#NEISVoid
#DadJokes

Chemo was yesterday. My ex husband texted me 7x while I was there, violating my boundary each time. I didn’t think chemo could get shittier, but I was wrong.

Recovering from both things in bed today. #NPDAttack #Darvo #Briumvi #Sjogrens #CNSV #BcellDepletion #DVSurvivor #autoimmuneencephalitis #MS

Living with Autoimmune Encephalitis Learn about autoimmune encephalitis & hear personal stories of coping & thriving while living with this rare condition.

#AutoimmuneEncephalitis can induce longlasting and pervasive impacts. On Tuesday 11th of March, we are hosting a webinar featuring those with lived experiences of AE.

Link below to register:
events.humanitix.com/understandin...

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In #autoimmuneencephalitis the immune system attacks the brain itself, due to its symptoms they can be confused with other conditions

Josep Dalmau revolutionized this field by first describing this pathology

👉https://s.mtrbio.com/enfenyqiqd

We are excited to share our last paper on #AutoimmuneEncephalitis (AE)‼️ 🧠

The assessment of clinical prognosis in autoimmune encephalitis: Girona score (ACPE-Gi) assesses the severity in the acute phase of AE and predicting the risk of disability at 3 months, measured by mRS

Awareness of the full spectrum of #autoimmuneencephalitis symptoms including #catatonia can facilitate improved recognition and advocacy for treatments and interventions to support the families and communities impacted.

Journey: Anti-NMDAr AE – Day Nine Mama & Dada enjoying the sleeping child and getting into the holiday spirit with festive masks. Just nine days in and I can see that I’ve got a pattern when it comes to any good signs Kiddo exh…

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 9: December 15, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

raisingnashville.com/2020/12/15/m...

Journey: Anti-NMDAr AE – Day Eight [See Day Seven‘s blog post to refresh your memory of what happened the day before.] In the past 30-ish hours the only documentable sleep Kiddo had was a 25 minute nap from 11:00 a.m. – 1…

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 8: December 14, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

raisingnashville.com/2020/12/14/m...

Journey: Anti-NMDAr AE – Day Seven Dada’s response when I checked in via text to let them know I was headed in after my night at home! I arrived at the hospital this morning bearing one of Kiddo’s favorite weekend breakf…

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 7: December 13, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

raisingnashville.com/2020/12/13/m...

Journey: Anti-NMDAr AE – Day Six Even in the hospital, in the middle of the night, Mama + Kiddo match. Thankfully, and very out of the ordinary for Kiddo’s nights in the hospital up until this point, they slept for much of t…

More episodes, but somehow also, more sleep.

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 6: December 12, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

raisingnashville.com/2020/12/12/m...

Journey: Anti-NMDAr AE – Day Five (Dada helping keep Kiddo still while getting a new IV line. (You can’t see them well but you will get to know these nurses, Hannah and Shannon, well over the course of this series.) Around 8:…

The first day we heard the words “brain on fire.”

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 5: December 11, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

raisingnashville.com/2020/12/11/m...

Journey: Anti-NMDAr AE – Day Four Today is our first day without a scheduled procedure since we arrived with Kiddo at the Monroe Carell Jr. Children’s Hospital’s Emergency Room.But first – last night.

Worsening symptoms, still no answers.

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 4: December 10, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

raisingnashville.com/2020/12/10/m...

Journey: Anti-NMDAr AE – Day Three Bright eyed and bushy tailed at 6:00 a.m. – ready to switch shifts. I want to preface this day’s entry with something very important to me. As I mentioned in yesterday’s writing entry I took …

Some words about why I’m writing about some of the worst and hardest days of our lives.

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 3: December 9, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

raisingnashville.com/2020/12/09/m...

Journey: Anti-NMDAr AE – Day Two As long as there’s bacon, all is well. Learning from our previous mistakes, Kiddo’s dad and I were now swapping our shifts before the 7 am nurses’ shift change. On this day I was at the hospi…

More symptoms, still no answers.

#AutoimmuneEncephalitis #AntiNMDArAE #BrainOnFire

Anti-NMDAr Autoimmune Encephalitis: Day 2: December 8, 2020 - Monroe Carell Jr. Children’s Hospital at Vanderbilt

raisingnashville.com/2020/12/08/m...

Journey: Anti-NMDAr Autoimmune Encephalitis Ready to go on a walk in our neighborhood. Urban “hiking”. Their words. Kiddo lost their words. They couldn’t remember the name of their beloved giraffe stuffy, the one they had slept w…

Anti-NMDAr Autoimmune Encephalitis: Our Journey

#RareDisease #AutoimmuneEncephalitis #BrainOnFire

raisingnashville.com/2020/12/05/a...

3/

I guess I should start looking for folks with my issues. Anyone out there with #CNS-V or CNS Vasculitis? How about #AutoimmuneEncephalitis ? #PrimarySjogrensSyndrome ? #Sarcoidosis ? Being rare is stupid. #PPMS too.