I've rescheduled all of the care to try to make this trip happen in April

Endocrinology busy until August due to clinician shortages which sucks I'm suffering a lot

Please keep sharing so I can meet my GFM neurosurgery goal and survive

#SevereME #EDS #Chiari #MESpine #CSFLeaks #Neurosurgery

🚨 We're excited to announce our seventh speaker, Dr. Ayman Qureshi, consultant neuro radiologist at NHNN. Join to learn about blood patching techniques for spinal CSF leaks. Register 👉🏻 csfleak.uk/event/webina...
#CSFLeakAssociation #CSFleaks

#CSFLeak. Treatment of patients with spinal #CSFLeaks in the UK needs a fundamental rethink. The leaks cause severe neurological problems. So you need CSFLeak specialists, neurologists, surgeons and embolization experts to coordinate. It fails miserably. 2yrs since finding it and still waiting!!!

🎯 Making waves at #BASH2025! Our trustee Bern connected with 300+ healthcare professionals on CSF leaks, alongside Dr Sanjay Cheema's expert presentation.
Huge thanks to Bern for 3 days of tireless advocacy! 💪
#CSFLeaks #SIH #standupforcsfleakers #CSFLeakAssociation

My mom just posted this for my #birthday today. See that huge scar on my neck? That was from my #healthinsurance denying an mri for six months. I ended up with two huge spinal surgeries, for #csfleaks. All I want for my bday is #medicareforall😉🎂

Little patient voices video on #CSFleaks
I should also be in there a couple of times.

It's patient views, as in this conference patients could present next to providers, researchers and doctors.

youtu.be/dDjop7lGWPM?...

#Liquorverlustsyndrom
#spinalleak
#CSFleaks
#iatrogenicleak
#chronicleak