The story of bluebird bio (now rebranded as Genetix Biotherapeutics) is spotlighted in our recent report with Genetic Alliance UK on improving R&D for rare diseases in the UK.

You can read more here: https://www.lifearc.org/rd-report/

#ChangeTheRareFuture

The UK has an opportunity to transform the future for people living with rare diseases. Our COO, Karen Skinner, outlines some of the key recommendations from our recent report published with Genetic Alliance UK.

Read it here: https://www.lifearc.org/rd-report/

#ChangeTheRareFuture

Rare disease research and development is complex. But we can take steps now that will create a better future.

Below are the 10 recommendations from our recent report with Genetic Alliance UK to help #ChangeTheRareFuture.

Find the full report here: www.lifearc.org/rd-report/

LifeArc and Genetic Alliance UK launch a new report calling for the acceleration of research and development (R&D) for rare diseases   - LifeArc LifeArc and Genetic Alliance UK have launched a report calling for the UK Government, NHS, researchers, industry, patient groups and policymakers to work together to transform the lives of more than 3...

LifeArc recommendations to accelerate #RareDisease research. Strategic long-term investment required with commitment across the devolved UK nations for action and funding to ensure deliverables are met. #RareDiseaseNI #RareConditions #ChangeTheRareFuture #Research. www.lifearc.org/2025/lifearc...

The recent report published by LifeArc and @geneticallianceuk.bsky.social gives several recommendations on how we can #ChangeTheRareFuture and get treatments to people with rare conditions faster.

Read it here: t.ly/Ka7qn

Orange fading to pink background. Lots of figures greyed out with three (rare) figures much bolder. Text says: there is an opportunity to change the future for millions of people living with rare conditions in the UK

The recent report published by @lifearc.bsky.social and @geneticallianceuk.bsky.social gives several recommendations on how we can #ChangeTheRareFuture and get treatments to people with rare conditions faster.

Read it here: t.ly/Ka7qn.

@lilyfoundation.bsky.social

The UK can lead in rare disease innovation—with long-term investment and a united approach. ⏳

Our CEO John James contributed to @lifearc & @GeneticAll_UK’s new report on how we can #ChangeTheRareFuture.

Read more: www.lifearc.org/rd-report?ut...