Screenshot from webinar showing image of Dr Margaret O’Hara at the top below which is a slide with a blue background with the Long Covid Kids and Long Covid Support logos in the top right. The slide is titled 08 Hidden Demand below which is a chart showing the hidden demand for Long Covid Services in Derbyshire Primary Care Network. Text on the right reads Hidden demand far outstrips visible demand Referrals are NOT a good metric for demand.

At our webinar on our #LongCovid Clinics report with @longcovidkids.bsky.social, our Trustee @margaretohara.bsky.social talked about hidden demand for Long Covid care:

“Hidden demand far outstrips visible demand. Referrals are NOT a good metric for demand.”

Link to report below.

#ClosingClinics

@longcovidsupport.bsky.social .

All the info can be found here:

Please share with anyone who might be affected by the closure of the clinics.

#ClosingClinics
#Healthcare
#LongCovid
#LongCovidKids
#Children
#NHS

bsky.app/profile/long...

It’s shocking that sick children have to travel to find appropriate healthcare - and this option is only available to those with resources.
🙏 to @bbcspotlight.bsky.social
for sharing Molly’s story today.

Please sign up to our webinar TODAY with
@long_covid to hear more about #ClosingClinics 👇

📣1/3. Webinar on our UK #LongCovid Clinics Report by Long Covid Support & @longcovidkids.bsky.social!

🗓️ Tuesday 29th April, 4pm BST

Do you:
🟢 Work with p/w #LongCovid?
🟢 Support people seeking Long Covid healthcare?
🟢 Have Long Covid?

Sign up today! Link below ⬇️

#ClosingClinics

Grey background on left half and teal coloured background on right half of image. Text on left reads Disabled, discharged and disappearing from view A snapshot review of Long Covid services across the UK. Below are the Long Covid Support and Long Covid Kids logos. Text on the right reads Long Covid Clinics in the UK: Why are they closing, what's next? Join Long Covid Support and Long Covid Kids for a webinar. Hosted by report co-author Dr Margaret O'Hara (Founding Trustee, Long Covid Support) with support from Co-authors Sarah Weston, Oonagh Cousins and Kirsty Stanley, we will discuss The landscape of Long Covid care in the UK, Findings of our recent snapshot report of UK Long Covid services 'Disabled, discharged and disappearing from view' Date 29 April 2025 Time 4pm GMT/UTC+01:00 Register via Eventbrite

📣 1/3. ONLINE EVENT!!

Join Long Covid Support & @longcovidkids.bsky.social for a webinar to present & discuss findings from our recent report on #LongCovid healthcare services in the UK.

When: Tuesday 29th April 2025, 4pm UK time

Register on Eventbrite - link below ⬇️

#ClosingClinics

I have not yet received a response.

There is no clear evidence that NHS Dorset has undertaken meaningful consultation with patients, charities, or relevant stakeholders before deciding to close this service.

#LongCovid #LongCovidKids #LCandME #ClosingClinics

Open Letter to The Rt Hon Wes Streeting and Ashley Dalton MP | March 2025 As part of Long Covid Awareness Month, and to mark the fifth anniversary of the first UK lockdown, we are delivering an open letter and petition to the Department of Health and Social Care today. The ...

Read our recent letter to the Secretary of State and @ashleydaltonmp.bsky.social

www.longcovidkids.org/post/open-le...

#LongCovidKids #LongCovid #LCandME #ClosingClinics #Dorset

Disabled, discharged and disappearing from view. A snapshot review of Long Covid clinics across the UK. At its peak, more than 120 Long Covid services were operational across the UK. However, only 46 have confirmed they will remain open, while 31 are under review, 24 have already closed or are expected ...

Learn more in our joint report with @longcovidsupport.bsky.social

longcovidkids.org/post/disable...

#LongCovidKids #LongCovid #LCandME #ClosingClinics

"I really struggled with that, everyone is still suffering, and why are they shut it down"

" it didn't mean the people with Long Covid, all their symptoms didn't just disappear"

Listen to Molly's interview about the closing #LongCovid Clinic in #Dorset on BBC South Today.
#LCandME #ClosingClinics

Speaking about the closing Long Covid clinics Molly, age 16 said:

“I really struggled with that because everyone is still suffering, why have they shut it down?" Molly asked.

www.bbc.com/news/article...

#LCandME #ClosingClinics #FundThePlan #FundOurFuture

Speaking about the closing Long Covid clinics Molly, age 16 said:

“I really struggled with that because everyone is still suffering, why have they shut it down?" Molly asked.

www.bbc.com/news/article...

#LCandME #ClosingClinics #FundThePlan #FundOurFuture

Long Covid Clinics

3/3. We continue to monitor the status of UK #LongCovid clinics. If you learn that your clinic is changing, please complete our survey.

#ClosingClinics

longcovidclinics.co.uk

View of the conference

Today I watched the brilliant @margaretohara.bsky.social
present the data from the joint
@longcovidsupport.bsky.social & @longcovidkids.bsky.social
clinic report at the #CPCS conference
Superb 👌, & at the end of a long day 🫂.
🙏 to everyone who participated in this research.
#ClosingClinics

Disabled, discharged and disappearing from view. A snapshot review of Long Covid clinics across the UK. At its peak, more than 120 Long Covid services were operational across the UK. However, only 46 have confirmed they will remain open, while 31 are under review, 24 have already closed or are expected ...

Staggering findings in the joint report by @longcovidsupport.bsky.social and @longcovidkids.bsky.social

www.longcovidkids.org/post/disable...
#ClosingClinics

Disabled, discharged and disappearing from view. A snapshot review of Long Covid clinics across the UK. At its peak, more than 120 Long Covid services were operational across the UK. However, only 46 have confirmed they will remain open, while 31 are under review, 24 have already closed or are expected ...

"Being a Dad was the most important part of my life and I feel like I've lost that" Dr Alexis Gilbert - a heartbreaking reality.

Read our findings and recommendations in our joint report with @longcovidsupport.bsky.social

www.longcovidkids.org/post/disable...

#ClosingClinics

Disabled, discharged and disappearing from view. A snapshot review of Long Covid clinics across the UK. At its peak, more than 120 Long Covid services were operational across the UK. However, only 46 have confirmed they will remain open, while 31 are under review, 24 have already closed or are expected ...

Thank you @binitakane.bsky.social
Thanks @abrokenbattery.bsky.social
#ClosingClinics

www.longcovidkids.org/post/disable...

We urge policymakers to consider the impact of these changes and listen to those affected. Cutting support will only lead to worsening health outcomes, greater economic inactivity, and higher long-term costs.

#WelfareCuts #ClosingClinics #WelfareReform

www.longcovidkids.org/post/disable...

An image showing a page from the report that highlights the 8 findings of the report.

Care is inconsistent & often falls short of #NHS commissioning guidelines which require Long Covid clinics to be physician-led & offer in-person care.

#ClosingClinics #PatientSafety

www.longcovidkids.org/post/disable...

We are deeply concerned about the impact
The UK Government's latest welfare cuts could have on people living with Long Covid & related conditions.
Findings from our recent joint report with
@longcovidsupport.bsky.social highlight the challenges already facing those with Long Covid

#ClosingClinics

Thought I’d put up a new banner photo. Despite this & other debilitating symptoms, I was discharged last year from my #LongCovid clinic because:
1) I had been through all they offered, and;
2) They were cutting back the limited things they did offer and getting rid of staff.

#ClosingClinics

📺 1/2 Thanks to @drdavidgk.bsky.social & BBC Midlands Today for covering our #LongCovid clinics report & our Trustee @margaretohara.bsky.social for speaking:

“These people could work but they need medical help, they don’t need a life coach”

Report link⬇️

#ClosingClinics
@longcovidkids.bsky.social

Long Covid Report 2025 Executive Summary B Disabled, discharged and disappearing from view A snapshot review of Long Covid services across the UK Executive Summary, March 2025

Exec summary is here: www.calameo.com/brand-and-soul/read/0005611769c6970ed066f

Full report is here: v.calameo.com?bkcode=00056...

#LongCovid #ClosingClinics

'Labour is ignoring long COVID suffers like me. I feel like I'm in an abusive relationship' Margaret O'Hara, who has long COVID, feels deeply frustrated with the government's emerging policies on getting those with long-term sickness back into work.

📣 Our Founding Trustee @margaretohara.bsky.social:

"You've got to almost admire the government, their ability to ignore #LongCovid… There isn't a carpet big enough to sweep this under, but they're trying”

#ClosingClinics

uk.news.yahoo.com/labour-long-...

Delighted to be part of it, it was a huge team effort. So pleased it's out in the world now.

Now we need the right thing done by people with #LongCovid #ClosingClinics

Q: In what other serious clinical condition could the dismantling of services be justified?
A: None & not Long Covid either

Brilliant report on UK #LongCovid healthcare. It’s horrific so many are not getting appropriate care for such a life-altering illness. I’ve had LC since 2020. Discharged from LC clinic last year - never had appt with their Doctor & still have disabling symptoms.
#ClosingClinics

Proud to have co-authored a new @longcovidsupport.bsky.social @longcovidkids.bsky.social report on Long Covid clinics in UK.

#LongCovid services must a) not close & b) meet the needs of people with Long Covid. Please share🙏

#ClosingClinics

Grey background with teal writing. 'Disabled, discharged and disappearing from view. A snapshot review of Long Covid services across the UK' Long Covid Support and Long Covid Kids logo. Photos of people on the left.

11/11. Long Covid services are at risk. We call for urgent action. Key recommendations:

🔹 Reinstate surveillance
🔹 Reverse clinic closures
🔹 Ring-fence funding
🔹 Recognise #LongCovid as a disabling condition.

📢 Take action!

#ClosingClinics

Report: tinyurl.com/yc9awcyz

Pale background on the left with writing saying Finding 08 Demand for Long Covid care. Long Covid Support and Long Covid Kids logos are at the bottom. Grey background on the right with white writing saying Health authorities are underestimating the true demand for Long Covid care.

10/11. Health authorities use GP referrals to justify cutting #LongCovid services, ignoring true demand.

❌ This method is deeply flawed

❌ Many needing care aren’t referred

⚠️ Cuts based on bad data put lives at risk!

#ClosingClinics

Report: tinyurl.com/yc9awcyz

Grey background on the left with writing saying Finding 07 Limited Public Consultation. Long Covid Support and Long Covid Kids logos are at the bottom. Pale background on the right with grey writing saying Public consultation about specialist Long Covid service change is absent or tokenistic. Few adults and CYP reported participating in public consultations and none felt that the outcomes met their expectations. 6% Adults 1.4% CYP.

9/11. Only 6% of adults & 1.4% of children told us they were consulted on #LongCovid service changes.

Patients MUST have a say in the care they rely on.

This is not acceptable.

#ClosingClinics

Report: tinyurl.com/yc9awcyz

Green background on the left with text saying Finding 06 Diminishing services. Long Covid Support and Long Covid Kids logos are at the bottom. In the right is a grey background with white writing saying Specialist Long Covid service provision in the UK is already limited and is set to diminish further. Some services have already closed, others are merging with local providers and many face the risk of closure unless funding is secured beyond March 2025. There is a hanging sign saying CLOSED.

8/11. Specialist UK #LongCovid services are already limited - and more are set to close.

❌ Shut down
❌ Merging with local providers
❌ Facing closure by March 2025 without ring fenced funding

📢 We need action NOW!

#ClosingClinics

Report: tinyurl.com/yc9awcyz