In this video, children and young people with Long Covid share their experiences to help others understand the reality they face every day.

Made in collaboration with young people with lived experience.

#LongCovidKids #LongCovid #YoungVoices #LCandME #CharityFilm

m.youtube.com/watch?v=e0U7...

Please give our video a thumbs up on YouTube!
'Don't shut the door on us' if you support the advocacy of these young people.

www.youtube.com/shorts/6JRF4...
#YoungVoices #YouthAdvocay #FundThePlan #LCandME #FundOurFuture

Words overlayed on the screen say - '65,000 people live with ME/CFS in New Zealand' In this image taken from the RE: News Facebook page, a female presenter is talking to the camera.

"I don't think we have got to grips with the severity of the situation""

fb.watch/zxNMcf6Bad/

#WorldMEDay
#LCandME

A screenshot of the research paper 'Skeletal muscle changes in #LongCovid & #MECFS are different to those resulting from inactivity'. A preprint on medRxiv.

Skeletal muscle changes in #LongCovid & #MECFS are different to those resulting from inactivity.
A useful thread on this new research.
Please share with anyone who may be interested or
find this helpful in their own advocacy.
threadreaderapp.com/thread/19198...
#LongCovidKids #LCAndMe #SevereME

🙏 to @ashleydaltonmp.bsky.social MP
for confirming the DoH position.

“We know that #LongCovid is a complex condition, with a wide range of symptoms that, in the worst cases, can be debilitating”

This understanding must translate into answers & the support patients need.

#Healthcare
#LCandME

Response from Ashley Dalton MP received 24th April 2025. On March 26, 2025, we composed an Open Letter to The Rt Hon Wes Streeting and Ashley Dalton MP. On the 24th April 2025 we received a response from Ashley Dalton, which you can read below.

🧡 For our community: The response from the Department of Health to our Long Covid & M.E. letter is now live on our blog.
Read and stay informed 👉

longcovidkids.org/post/reply-f...

We know many questions remain-and we’re working on a response to ensure your voices continue to be heard. #LCandME

Screenshot of the blog page showing the title and an option to listen to the audio of the blog ‘Young People with ME/CFS and/or Long COVID: What Do We Know?’ Dated 3rd May 2025.

#Blog

Young People with ME/CFS and/or Long COVID: What Do We Know?
By @cortjohnson.bsky.social

www.healthrising.org/about-us/

#LCandME
#PaediatricLongCovid #LongCovidKids

I have not yet received a response.

There is no clear evidence that NHS Dorset has undertaken meaningful consultation with patients, charities, or relevant stakeholders before deciding to close this service.

#LongCovid #LongCovidKids #LCandME #ClosingClinics

Open Letter to The Rt Hon Wes Streeting and Ashley Dalton MP | March 2025 As part of Long Covid Awareness Month, and to mark the fifth anniversary of the first UK lockdown, we are delivering an open letter and petition to the Department of Health and Social Care today. The ...

Read our recent letter to the Secretary of State and @ashleydaltonmp.bsky.social

www.longcovidkids.org/post/open-le...

#LongCovidKids #LongCovid #LCandME #ClosingClinics #Dorset

Disabled, discharged and disappearing from view. A snapshot review of Long Covid clinics across the UK. At its peak, more than 120 Long Covid services were operational across the UK. However, only 46 have confirmed they will remain open, while 31 are under review, 24 have already closed or are expected ...

Learn more in our joint report with @longcovidsupport.bsky.social

longcovidkids.org/post/disable...

#LongCovidKids #LongCovid #LCandME #ClosingClinics

"I really struggled with that, everyone is still suffering, and why are they shut it down"

" it didn't mean the people with Long Covid, all their symptoms didn't just disappear"

Listen to Molly's interview about the closing #LongCovid Clinic in #Dorset on BBC South Today.
#LCandME #ClosingClinics

“In the absence of specialist support, Molly & her family have been doing what they can.
A support dog called Woody now helps around the house.”

In “July, Molly will travel 300 miles to Liverpool to a private clinic, because the family cannot find help nearby”

#LCandME
#LongCovidKids #LongCovid

Speaking about the closing Long Covid clinics Molly, age 16 said:

“I really struggled with that because everyone is still suffering, why have they shut it down?" Molly asked.

www.bbc.com/news/article...

#LCandME #ClosingClinics #FundThePlan #FundOurFuture

“In the absence of specialist support, Molly & her family have been doing what they can.
A support dog called Woody now helps around the house.”

In “July, Molly will travel 300 miles to Liverpool to a private clinic, because the family cannot find help nearby”

#LCandME
#LongCovidKids #LongCovid

Speaking about the closing Long Covid clinics Molly, age 16 said:

“I really struggled with that because everyone is still suffering, why have they shut it down?" Molly asked.

www.bbc.com/news/article...

#LCandME #ClosingClinics #FundThePlan #FundOurFuture

Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW • Five years after the start of the Covid pandemic, thousands remain severely ill - Many housebound or often bedbound, unable to attend school, work, or take part in daily life.  Disabled, discha...

In her opinion piece, 18 year old Emily-May reminds us that health can change at anytime.

That’s why we are calling for action to ensure the right support is available for all those who need it.
✍️

you.38degrees.org.uk/petitions/in...

#LCandME #FundThePlan #FundOurFuture

I'm 18 and bed bound with long Covid After contracting Covid Emily-May, unlike her friends, did not recover and was left with several debilitating conditions.

Read her opinion piece here

Thanks to Emily-May and @bigissue.com

#YoungVoices #LCandME

www.bigissue.com/opinion/long...

“Politicians are picking and choosing who should be offered help like children making mindless decisions in a sweet shop – when in an hour, a day, a week or a year’s time, they could be the ones in the position of the very people they are hurting”
EMILY-MAY STEPHENSON

#LCandME #YoungVoices

I'm 18 and bed bound with long Covid After contracting Covid Emily-May, unlike her friends, did not recover and was left with several debilitating conditions.

Read Emily-May’s opinion piece here.
@bigissue.com

www.bigissue.com/opinion/long...

#YoungVoices
#LCandME

“Politicians are picking & choosing who should be offered help like children making mindless decisions in a sweet shop, when in an hour, a day, a week or a year’s time, they could be the ones in the position of the very people they are hurting”

Emily-May Stephenson, age 18

#LCandME #YoungVoices

We are pleased to endorse this crucial initiative.

Young people with Long Covid tell us they are worried about their future.

Please take part of relevant to you.

#LCandME #LongCovid #WelfareBenefits #Disability #LongCovidKids.

We witnessed the health of children deteriorating in 2020,21,22,23,24…

Our voices & reports were ignored.

…and it continues in 2025.

#LongCovidKids
#PaediatricLongCovid
#Childhood
#Parenting
#Family
#LCandME
#HeartHealth
#Cardiology

By working together we can improve the lives of children and young people with Long Covid, M.E. and related conditions.

Please write to your MP to support our recent action, all the info you need can be found in this #Blog

www.longcovidkids.org

#LCandME #sundayvibes

Will you Write to your MP in support of our Long Covid and M.E. campaign? We have ONE final timely request to help us turn these calls for action into direct requests for Long Covid & M.E: PLEASE WRITE TO YOUR MP.

🎯#Blog Something for the weekend!

We have ONE final timely request to help us turn these calls for action into direct requests for Long Covid & M.E:

PLEASE WRITE TO YOUR MP.

www.longcovidkids.org/post/will-yo...
#LCandME
#WriteToThem
#FundThePlan
#FundOurFuture
#Community

Now on YouTube.

We would love it if you could watch, like and share their short advocacy video

youtu.be/6JRF4CVEVsI

#FridayVibes #YoungVoices #LCandME

Before you head into the #weekend 👀

The kids are watching the views on their video.

They would love it if you could watch, like and share their short advocacy video

youtu.be/6JRF4CVEVsI

#FridayVibes #YoungVoices #LCandME

Open Letter to The Rt Hon Wes Streeting and Ashley Dalton MP | March 2025 As part of Long Covid Awareness Month, and to mark the fifth anniversary of the first UK lockdown, we are delivering an open letter and petition to the Department of Health and Social Care today. The ...

A copy of the letter can be seen here
#LCandME #FundThePlan #FundOurFuture
www.longcovidkids.org/post/open-le...

Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW • Five years after the start of the Covid pandemic, thousands remain severely ill - Many housebound or often bedbound, unable to attend school, work, or take part in daily life.  Disabled, discha...

you.38degrees.org.uk/p/LCME

#LCandME #FundThePlan #FundOurFuture

Open Letter to The Rt Hon Wes Streeting and Ashley Dalton MP | March 2025 As part of Long Covid Awareness Month, and to mark the fifth anniversary of the first UK lockdown, we are delivering an open letter and petition to the Department of Health and Social Care today. The ...

Learn more about why your support is so crucial.

#LCandME #Childhood #Parenting
#HealthCare

www.longcovidkids.org/post/open-le...

Just W🤩W
14000!

Thank you to everyone who has signed so far. Keep sharing so that we can gain more signatures.

Please support our petition to help ensure children & young people have access to the specialist health care they need, now and on the future. 🙏

#LCandME #FundThePlan