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Advocacy for Neuroacanthocytosis Patients (NA Advocacy)
Advocacy for Neuroacanthocytosis Patients (NA Advocacy)
@na-advocacy.bsky.social
2 months ago
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Proceedings of the 12th International Meeting on Neuroacanthocytosis, Cohen Syndrome, and Other VPS13-Related Disorders | Tremor and Other Hyperkinetic Movements

Delighted to share the newly published proceedings from the 12th International Meeting on #Neuroacanthocytosis, Cohen Syndrome, and Other VPS13 Related Disorders.

doi.org/10.5334/tohm...

Please share with other interest communities!

#VPS13Adisease #XKdisease #CohenSyndrome

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Advocacy for Neuroacanthocytosis Patients (NA Advocacy)
Advocacy for Neuroacanthocytosis Patients (NA Advocacy)
@na-advocacy.bsky.social
4 months ago
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The wait was worth it. Our Symposium report is now live. Science, stories, and shared hope.
naadvocacy.org/symposia/ - download it and pass it on!

#neuroacanthocytosis #vps13adisease #xkdisease #ResearchCollaboration #PatientAdvocacy #CohenSyndrome #vps13 #RareDisease #internationalsymposium

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Advocacy for Neuroacanthocytosis Patients (NA Advocacy)
Advocacy for Neuroacanthocytosis Patients (NA Advocacy)
@na-advocacy.bsky.social
8 months ago
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✨You’re invited!
12th International Meeting on Neuroacanthocytosis Syndromes, Cohen Syndrome, and VPS13-related Disorders.

🔗 Details (English, Deutsch, Español) naadvocacy.org/12th-interna...

#neuroacanthocytosis #VPS13Adisease #XKdisease #CohenSyndrome #RareDiseaseCommunity

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