Jeffrey Lubell (EDS, ME/CFS, LongCOVID Research)

@jefflubellc19.bsky.social

4 months ago

Consider the experience of my daughter, who has #hEDS, #MECFS, #Craniocervical instability, #Chiari, and #POTS. Her illness has largely followed a relapse-recovery paradigm, with extremely slow recoveries following two major relapses. 7/24