Last year, ACD's Walk for Strength raised $137,110. We are thrilled to be participating this year to make 2025 even bigger! We invite you to sponsor Team Xavier and help us raise awareness for Cerebral Creatine Deficiency Syndromes. Register here: creatineinfo.org/xavier/ ❤️
#WFS2025 #CreatineHeroes
📢 Early bird registration is open for our Walk for Strength. Join my family in a fun virtual walk event and make a meaningful impact in the fight against CCDS! 💰Right now, registration is $5 off! Register now! 💯 creatineinfo.org/xavier/
#WFS2025 #CreatineHeroes #raredisease
April’s Community Chat is now available! 🌷
Topic: Growing Communication Skills with Tanna Neufeld.
Learn how emotional connections support language in kids with complex needs.
Watch here: youtu.be/w5RWv4WDs7c
#CreatineHeroes #RareDisease
CTD dad, Jeff Allen, sat down with The Iced Coffee Hour to give a behind-the-scenes look at his experience on Beast Games! 🏆🔥
Catch the interview: tr.ee/S2pLKc
#CreatineHeroes #CreatineInfo #CreatineResearch #ACDResearch #RareDiseaseAwareness #RareDisease #Ruck4Rare #IceCoffeeHour
Save the Date!
ACD’s annual Walk for Strength is back on June 21, 2025.
🚨 Start your team today! It’s easy-we’ll support you every step of the way from now until June. Sign up here: www.creatineinfo.org/walk
#FuelingHope #CreatineHeroes #CreatineResearch #ACDResearch #RareDisease #WalkForStrength
CCDS Day 2025 Our Hopes for a Treatment. Our hope is that a treatment for Xavier would allow him to bathe and use the toilet independently, so he could do more activities that typical teens can do.
#CCDSDay #FuelingHope #CreatineDeficiencyResearch #CreatineHeroes #CreatineInfo #CreatineResearch #ACDResearch #RareDiseaseAwareness #RareDisease
