Starting tomorrow! Smart Patients is hosting an Ask the Expert with Dr. Dale Shepard from the Cleveland Clinic from Dec 16–18, 2025 on desmoid tumors. Learn more by signing up at https://www.smartpatients.com/communities/desmoid-tumor

#DesmoidTumor #RareDisease #ClinicalTrials #PatientEducation

This picture is a flyer advertising the Cultivating Voices Live Poetry New Books Showcase featuring Josephine LoRe, Catherine Striskik, Ellen Stone, and Jennifer Saunders with host Sandy Yannone.

I'm very excited to read poems from Tumor Moon in this moon-themed New Books Showcase from Cultivating Voices. Also excited that it's timezone friendly for those of us in CET! Registration is free but required, register at the link us02web.zoom.us/meeting/regi... #poetry #desmoids #DesmoidTumor

🚨 New in #Oncology!

🇪🇺 European Commission approves OGSIVEO® (Nirogacestat) for adults with desmoid tumors.

✅ First & only therapy authorized in the EU for this rare disease.

🔗 Read more: bit.ly/ONCOnews19AU-2

#ONCOnews #OncoAlert #OncEd #CancerResearch #DesmoidTumor

Welcome! You are invited to join a meeting: Concrete Wolf Press Poetry Book Release Reading for Chris Dahl & Jennifer Saunders. After registering, you will receive a confirmation email about joining t... Chris Dahl & Jennifer Saunders read from their Award Winning poetry collections. 11 AM to 12:15 PM Pacific

I'll be reading online from Tumor Moon TODAY (June 7), my poetry collection that revolves around parenting in the wake of my child's desmoid tumor diagnosis. Free to attend but registration required. Join us! #TumorMoon #desmoid #DesmoidTumor #poetry us02web.zoom.us/meeting/regi...

Any other #desmoidtumor patients on this app yet?