Trying to Survive the System: My Lived Experience of Multiple Disabilities The Broken Orchestra: Surviving Disability, System Failure, and the Persistence of Hope.

If you work in government, an NPO, or #EduSky🍎, I invite you to read and reflect—real change starts with understanding lived experiences.

My days require juggling pain, paperwork, & a system that fails to see or know us.

#auspol #DisabilityJustice #DisabledBySociety #InvisibleDisability #Spoonie

Oh, and I should have put big #CW on that collection as it deals with some troubling themes.

Sorry - it is very late/early and I ran out of spoons.

#Unalive #DisabledBySociety #MentalHealth etc

This also coincided with seeing a report of one in a similar position.

However, a completely different outcome.

A massive outpouring of concern, compassion, empathy, and financial support.

The difference? Replace multiple disabilities with recovering from #cancer.

#DisabledBySociety #Unseen

A screenshot of an email response from UC to another student on our introduction discussion board for one of the units starting today in my master's degree program. It reads: "With three kids and such a busy schedule, what’s something you do just for yourself when you get the chance to take a break?"

I know many are lucky enough not to understand why this comment is so infuriating to read. #IYKYK

It is yet another blatant example of being #DisabledBySociety.

I did not choose to be multiply #Disabled, most are due to the direct actions of others.

Yet our experience and efforts do not count

Recently, received a condescending call from Carers QLD, who seemed to lack experience, saying that my multiple profound complex disabilities aren’t debilitating enough to qualify for #NDIS.

This is yet another frustrating example of being #DisabledBySociety.

Navigating #cPTSD with #AuDHD is 🤬

ADHD vs. PTSD (or ADHD and PTSD) - Neurodivergent Insights November 22, 2021 ADHD vs PTSD(or.... ADHD and PTSD)Buckle up; this is a complex one. There are different perspectives when it comes to Attention Deficit Hyperactivity Disorder (ADHD) and Post-Traumat...

Had call with a young person with (perhaps) no lived experience, condescendingly tell me that my multiple & complex serious disabilities aren’t debilitating ENOUGH to warrant help from #NDIS.

Another example of being #DisabledBySociety.

#cPTSD - maybe
#AuDHD - no
#PVD - maybe
#ChronicPain - no

a purple background with the words " we dream too " Alt: A GIF animation featuring a purple/lilac background with the words written in bold script caps WE and TOO at the top and bottom respectively in dark purple. In between the capitalised letters, are the words written in black cursive are the cycling words: dream, love, feel, laugh, work, dance, play, think. To clarify the GIF cycles through each statement as follows: WE dream TOO WE love TOO WE feel TOO WE feel TOO WE laugh TOO WE work TOO WE dance TOO WE play TOO WE think TOO

So again, for the people in the back:

This is what we mean by being #DisabledBySociety both figuratively & literally, primarily & secondarily.

What you should also appreciate is that is can happen to anyone at anytime.

Financial & emotional supports can help cushion, but they don’t always last.

#DisabilityInclusion #DisabledBySociety

Graphic of common phrases people use to wave away struggle.

Don't forget "Just..." followed by any advice. There has never been a time in history where that has worked for any real life struggles. #disabledbysociety

What are your privileges?

1 You have never been judged for your skin colour
2 You can express your gender openly
3 Your religion is always accepted
4 You can hold hands in public safely
5 You’ve never been criticised for not speaking English

1/3
#DisabledBySociety #Privilege

I just re-read Neuroqueer Heresies by @dr-nicky.bsky.social. This time what struck me is how parents of neurodivergent kids are disabled by society. We don't often talk about associative disabling, but this is loud and clear in my #GhostParent research. #autistic #pda #DisabledBySociety

I’m certain this is every #ParentCarers biggest worry. What will happen to our children when we’re no longer here, to fight for them, be their voice and get them what they need to thrive?

I know it’s mine! #DisabledBySociety 💔