EB and sexuality Understanding Sexual Health for people with EB and where to access psychological support for sexual expression for people with EB.

🧡 It’s World Sexual Health Day!

For people living with EB, navigating intimacy and relationships can be complex. That’s why we have a dedicated resource to support open, respectful conversations around sexuality & wellbeing.

💬 https://bit.ly/3JNboid

#WorldSexualHealthDay #DEBRAUK #EBCommunity

We’re proud to share our 2025 Research Report — showing how your support is driving #EBresearch that brings real hope, improves lives, and ensures the voice of the #EBcommunity is at the heart of the research process.

🔗Read here: debra.ie/news/our-lat...

#HealthResearchMatters #PPI #EB

In 2024, the global #EB community spoke — and now we have the top #EBresearch priorities, chosen by the #EBcommunity, for the #EBcommunity. @charitydebra.bsky.social @jameslindalliance.bsky.social

📝Read the report: t.co/veC46NvD0b

👇See the top topics from both #livedexperience & #HCPs:

At our 6th #EB Expert workshop, lived experience led the way. The key areas of focus were advancing #EBresearch and evolving how Debra communicates with the #EBcommunity and the public.

Find out what happened and read the workshop report here 👉 www.debra.ie/news/united-...

#PPI #EB