3 people standing in Leinster House - Dr Avril Kennan HRCI, Peter Roche T.D. and Linda McGrath, HRCI
HRCI was delighted to meet with Peter Roche T.D. and Senator Manus Boyle in Leinster House yesterday to brief them on the three key asks in our Position Paper 2025. Find the Position Paper on our website hrci.ie/hrci-positio...
#HealthResearchMatters
Researchers! Expressions of Interest closing dates under the HRCI/Health Research Board (HRB) Joint Funding Scheme are fast approaching. Interested in learning more? Follow this link to see the current open calls hrci.ie/joint-fundin...
#HealthResearchMatters
HRCI was delighted to attend the launch of the National Rare Disease Strategy 2025-2030 @roinnslainte.bsky.social yesterday. We warmly welcome the Strategy’s strong commitments to foster innovation in rare disease research and to establish a National Rare Disease Registry. #HealthResearchMatters
📣HRCI-HRB Joint Funding Scheme 2026 opening soon.
📆Applications open: 1 September 2025 at 1pm
⌛Research projects of 12-36 months duration & up to €300,000 supported.
Full details below including @hrci.bsky.social step by step video⬇️
Further info: www.hrb.ie/funding-sche...
#HealthResearchMatters
The Irish Thoracic Society are now inviting EOI's under the HRCI/@hrbireland.bsky.social Joint Funding Scheme that supports their Research Mission. Funding up to €100,000, for projects of 24 months is available. Find further info on the call hrci.ie/joint-fundin... #HealthResearchMatters
The latest charity to open an EOI call under the HRCI/@hrbireland.bsky.social Joint Funding Scheme is The Alzheimer Society of Ireland. Up to €240,000 is available for projects of 24 months. The closing date for receipt of EOIs is 12/9/2025. More info hrci.ie/joint-fundin...
#HealthResearchMatters
The closing date for the Expressions of Interest call from Breakthrough Cancer Research under the Joint Funding Scheme is fast approaching. Find more info on the HRCI Open Calls page hrci.ie/joint-fundin... #HealthResearchMatters
Parkinson's Ireland have launched an Expressions of Interest call under the HRCI/ @hrbireland.bsky.social Joint Funding Scheme 2025/26. Closing date for EOI's: September 5th 2025
Find more info:https://hrci.ie/joint-funding-open-calls/
#HealthResearchMatters
Muscular Dystrophy Ireland (MDI) is taking part in the HRCI/HRB Joint Funding Scheme 2025/26 & are currently seeking expressions of interest for projects that align with MDI’s Research Strategy. Find more info on the call hrci.ie/joint-fundin... https://hrbireland.bsky.social #HealthResearchMatters
@epilepsyireland.bsky.social have launched a call for Expressions of Interest as part of the HRCI hrbireland.bsky.social (HRB) Joint Funding Scheme. Find more information on the call by visiting the Open Calls page on our website https://hrci.ie/joint-funding-open-calls/
#HealthResearchMatters
We're delighted to announce the HRCI/HRB Joint Funding Scheme is once again running for 2025/26. Researchers, visit our website hrci.ie/joint-fundin... to get all the info you need, including a video which goes through the scheme step by step #HealthResearchMatters @hrbireland.bsky.social
We’re proud to share our 2025 Research Report — showing how your support is driving #EBresearch that brings real hope, improves lives, and ensures the voice of the #EBcommunity is at the heart of the research process.
🔗Read here: debra.ie/news/our-lat...
#HealthResearchMatters #PPI #EB
Delighted to join Rare Diseases Ireland at the All-Party Group meeting on Rare Diseases to launch our call for rare diseases to be included on the schedule for Ireland’s EU Presidency.
@oireachtasnews.bsky.social #RareDiseases #HealthResearchMatters
In this year’s HRCI Annual Report Member Story, Niamh Gavin, CEO of Adelaide Health Foundation, reflects on the impact we've had on AHF's approach to PPI, research funding, and the value of the HRCI members network.
hrci.ie/impact/membe...
#HealthResearchMatters
Today our members @ilfa-ireland.bsky.social launch groundbreaking research which provides a pathway for a future where all lung fibrosis patients receive the care they need to live longer, healthier lives. ilfa.ie/wp-content/u... #HealthResearchMatters
🚨 Exciting news from HRCI! 🚨
We’re proud to launch our **Annual Report 2024** — capturing a year of advocacy, collaboration, and impact in health research. 📖
Find the full report here 👉 hrci.ie/hrci-annual-...
#HealthResearchMatters
There's great momentum around patient registries right now! The FoRT report, Sustaining Patient Registries in Ireland, calls for a bold, Dept of Health-backed vision for their future. A vital roadmap for care, research & policy. Worth a read 👉 cfri.ie/wp-content/u...
#HealthResearchMatters
Two new #EB treatments—Filsuvez & Vyjuvek—offer hope. 🦋
Filsuvez may arrive in Ireland soon, but Vyjuvek, a game-changing #genetherapy, could take years unless access speeds up.
Debra is working hard to make it happen.
👉 bit.ly/NewEBtreatme...
#HealthResearchMatters
Three people standing in front of a pullup poster at the event
A brilliant day at the Irish Health Research Forum! The theme, "Is it time to get serious about patient registries?" sparked rich conversations and the RDCat and RDCTN teams were thrilled to be part of it last week. Huge thanks to HRCI for a valuable event! #HealthResearchMatters
Elaine shared insights from our ongoing international review of patient registries. She discussed the potential for patient registries in a digitised healthcare system and their future within the context of the European Health Data Space (EHDS) Regulation. #HealthResearchMatters
Dr Elaine Meehan, our Project Lead for Health Information Quality and Assurance, took part in a panel discussion on ‘Where do we go from here?’ at the @hrci.bsky.social Irish Health Research Forum today on patient registries. #HealthResearchMatters
🌟 A fantastic day of collaboration and momentum—thanks to everyone who joined us. We can’t wait to share what comes next, keep an eye out for the Forum report later this year! #HealthResearchMatters
At the Irish Health Research Forum, we're discussing the vital role of patient registries. We’ve just shown this powerful video on why they matter. @hrci.bsky.social
#HealthData #PatientRegistries #RareDisease #HealthResearchMatters
m.youtube.com/watch?v=1hKH...
Delighted 2b chairing this morning’s @hrci.bsky.social IHRF forum on Patient Registries hrci.ie/may-2025-is-... Gr8 exchanges in our discussion groups #HealthResearchMatters @rcsi-facnurmid.bsky.social
We are delighted to attend @hrci.bsky.social Irish Health Research Forum which is taking place this morning. Today's event focuses on the importance of patient registries, "Why Patient Registries Matter Now More Than Ever"
Finding Solutions, Moving Forward Together" #healthresearchmatters #advocacy
The Irish Health Research Forum “Is it time to get serious about patient registries?” is taking place tomorrow! 🎉 Reminder for registered attendees that the reg desk opens at 9.30am, with the event starting at 10am
Check the agenda & speakers here 👉 hrci.ie/may-2025-is-...
#HealthResearchMatters
Great to have a really constructive meeting with Minister for Health, Jennifer Carroll MacNeill this afternoon. We discussed the key asks in our HRCI Position Paper 2025. Read it here: hrci.ie/hrci-positio... #HealthResearchMatters
Just launched! 🚀 Our Irish Health Research Forum report ‘Public trust in health research: are we doing enough?’ is live, and features recommendations for all stakeholders. Find the report, one page event snapshot & images from the day here: hrci.ie/nov-2024-tru...
#HealthResearchMatters
Fantastic to see @fjobrien.bsky.social and Claudia on #IrelandAM with Elaine Crowley and Mark King. Shining a light on the #EBresearch we’re co-funding with @researchireland.bsky.social and further supported by @hrbireland.bsky.social.
Learn more👉 bit.ly/SpecialScaff...
#HealthResearchMatters #EB
Delighted to see Minister Lawless @maynoothuniversity.ie, learning about Prof Rob Elmes' team’s innovative research on spray-on, wash-off bandages. Highlighting the power of investing in #EBresearch. We co-funded this groundbreaking research with @researchireland.bsky.social.
#HealthResearchMatters
