As #ECFS2025 draws to a close, the CFI team return home bursting with information and a real insight into #TheFutureOfCF. Thanks to the ECFS Conference organisers and everyone that shared their discoveries and learnings. Keep an eye out in the next Spectrum for the full report.
Just some of the dedicated Irish Researchers we met at #ECFS2025 who are commited to learning, sharing information and shaping #TheFutureOfCF.
An extremely interesting addition to #ECFS2025. Fuori Tutto is a #CF awareness campaign set in the centre of Milan. A visual depiction of individual CF stories that give the visitor a unique reflective insight to life with CF. #AlwaysLearning ##CysticFibrosis
A busy day at Day 2 of #ECFS2025 yesterday. A highlight was attending an insightful presentation by Paul McNally on starting modulators in early life. #TheFutureOfCF #cysticfibrosis
Our very own @hgavillet.bsky.social giving her talk today at #ECFS2025 in Milan on the impact of #kaftrio CFTR modulator therapy on the #CysticFibrosis lung microbiome
Our KAFPATH-CF study is a multi-national (UK, USA, & Canada) multi-centre long-term longitudinal study of adults with #CF
Our very own Ryan Marsh presenting his #CysticFibrosis gut microbiome & metabolomics data at the #ECFS2025 meeting in Milan
This is part of the wider @cysticfibrosis.org.uk funded GRAMPUS-CF strategic research centre
👀 here for more details www.grampus-cf.org
Important and meaningful focus on resources to support children either with CF, with a parent who has CF or with a close family member with CF at #ECFS2025 Day 1.
#TheFutureofCF #CFIreland #CysticFibrosis
Exercise is ever more important as people with CF are getting older. Not only to address cardio-metabolic consequences of aging but to also address mental health- Dr Donald Urquhart #ECFS2025 #thefutureofCF
A menopause focused mindset is needed in care of women with CF as they become older, as many symptoms of menopause overlap with symptoms of #CF... Dr Jennifer Taylor-Cousar on Day 1 of #ECFS2025
CFI delegates, Rory and Nicola, will be reporting back over the next few days. Follow the updates here or read the full report in the next edition of Spectrum.
#CysticFibrosis #CFIreland #ECFS2025
Off to Milan for #ECFS2025! Looking forward to catching up with fabulous European CF colleagues and being a massive history nerd in Roma with my brother after the conference! 🤓
📢 La conférence #ECFS2025 commence dans 4 semaines tout juste (Milan, Italie - 4 au 7 juin)
🔬 Au programme : thérapie génique, médecine personnalisée, santé mentale, accès aux traitements...
👉 Programme complet : www.ecfs.eu/milan2025/pr...
#CysticFibrosis #ECFS2025 #mucoviscidose
@martavilagonz.bsky.social was honoured to give an invited talk, while @miriamsalva.bsky.social presented a poster and delivered an oral presentation (thank you ECFS for the Student Helper Award!). Great to make new connections and exchange ideas with fellow researchers.
#ECFS2025 #CysticFibrosis
