Group of five people engaged in a focused discussion around a table, promoting ECRD 2026 conference participation. with overlapping text: lead a discussion at ECRD 2026
Have an idea or challenge you’d like to discuss at #ECRD2026 in Prague?
Submit your topic for an opportunity to lead a small group discussion and be part of the programme.
⏳ Deadline: 17 April, 18:00 CET
📩 https://go.eurordis.org/groupECRD2026
A diverse group of professionals networking and engaging in conversations at a modern indoor event space. With overlapping text: ready to lead the conversation?
Step forward and lead the conversation at #ECRD2026!
Participants can now submit topics for interactive group discussions in Prague.
📅 3 June
📩 Submit by 17 April: https://go.eurordis.org/groupECRD2026
Audience members attentively clapping, with overlapping text: be part of the change
#ECRD2026 is approaching! 👥
On 3–4 June, the rare disease community will gather in Prague & online to connect, collaborate and shape the future of rare disease policy in Europe.
👉 Register and join the conversation: https://go.eurordis.org/register-bsky
Panel of four speakers engaged in a hybrid conference discussion on rare diseases, seated with microphones and water bottles on a table. with overlapping text: join the discussions
At #ECRD2026, three parallel tracks on 4 June, each exploring key challenges in rare disease care:
🏥 Specialised Healthcare
💊 Preparing Reimbursement Decisions
🧠 Mental Health
Explore the sessions shaping these discussions: https://go.eurordis.org/register-bsky
Audience attentively listening at a conference, with overlapping text saying: be part of the action.
At #ECRD2026, three parallel tracks on 3 June will explore key rare disease challenges:
🔬 Therapies & medical devices
🧬 Diagnosis, research & prevention
❤️ Evidence-based holistic care
Discover the sessions shaping these discussions: https://go.eurordis.org/ecrd-postersbluesky
📢 Deadline approaching: Call for Poster Abstract Submissions – ECRD 2026
Open to patient groups, academics, healthcare professionals & all working in rare diseases or public health.
🗓 Deadline: 6 March
Submit here: www.rare-diseases.eu/posters/
#ECRD2026 #RareDiseases #OrphanProducts
⏳ 3 days left! The deadline for ECRD 2026 Poster Abstract Submissions is this Friday, 6 March.
Submissions are open to patient groups, academics, healthcare professionals, and all other interested parties.
📩 Submit now → www.rare-diseases.eu/posters/
#ECRD2026 #RareDiseases
Two professionals engaged in a serious discussion. With overlapping text: mental health
At #ECRD2026, the Mental Health track will address the often overlooked psychological & social challenges of rare conditions, highlighting gaps in care, research & policy - and the need for integrated, patient-centred approaches across Europe. 👉 https://go.eurordis.org/register-in
Two women seated on stage discussing reimbursement decisions at a conference with framed photos of landmarks behind them.
At #ECRD2026, the Preparing Reimbursement Decisions track will explore how Europe can prepare for the inclusion of orphan medicines in the EU #HTAR framework, building on lessons from oncology and ATMPs to support fairer access to treatments. 👉 https://go.eurordis.org/register-in
Illustration of a figure running along an orange path overlaid on technical blueprints, promoting a call for interest in the European Regional Taskforce on Rare Diseases.
📢 Reminder: Expressions of Interest close 26 February!
#EURORDIS is launching a European Regional Task Force to help shape a European Blueprint for Rare Diseases and inform policy discussions ahead of #ECRD2026.
Learn more & apply: https://go.eurordis.org/regional-task-force
ECRD 2026 offers live captioning and AI translation in over 60 languages for rare disease conference in Prague and online.
Attending #ECRD2026 on 3–4 June? 👀
Live captioning and AI-powered translation will be available throughout the event, with real-time access in 60+ languages.
Learn more & register: https://go.eurordis.org/register-in
Three professionals engaged in a panel discussion with overlapping text: specialised healthcare
At #ECRD2026, the Specialised Healthcare track will explore how health systems can ensure timely, equitable access to expert care for rare & complex conditions, drawing on #Rare2030 recommendations to inform stronger policies across Europe. 👉 https://go.eurordis.org/register-in
"Share your work now!" Features a photo of 2 people deep in conversation at a conference, an illustration of a man on a running track to represent the conference theme (competitiveness), and a banner with the key ECRD info: 3 & 4 June, Prague.
⏰ Poster Abstract submissions for #ECRD2026 close on 6 March!
All accepted posters will be featured in the virtual exhibition and top-scoring posters will be selected for a live Poster Pitch Session.
👉 https://go.eurordis.org/ecrd-postersbluesky
Two professionals in a discussion at a table during the 13th European Conference on Nard Diseases and Orphan Products in Prague.
At #ECRD2026, the Evidence-based Holistic Care track will explore integrated clinical, psychological & social support, patient involvement in research, and how evidence can better shape policies across Europe. 👉 https://go.eurordis.org/Awardees
Four professionals seated on stage during a panel discussion at the 13th European Conference on NARID Diseases and Orphan Products in Prague.
#Diagnostic delays remain a major challenge for people living with a rare disease. At #ECRD2026, the Diagnosis, Research & Prevention track will explore early detection, newborn screening, and the journey from diagnosis to treatment.
👉 https://go.eurordis.org/register-in
"Turn your work into shared knowledge". Features a photo of people sat in rows having animated discussions at a conference and the ECRD 2026 banner: 3 & 4 June 2026, Prague & online.
Poster presentations are where practical insights & lessons learned are shared - what is working, what is missing, and what must change! #ECRD2026
👉 https://go.eurordis.org/ecrd-postersbluesky
Accepted posters will feature in the virtual exhibition + representing authors get 20% off registration.
Progress in rare diseases depends on shared knowledge 🔬
As ECRD 2026 partners, ERDERA invites you to submit your abstract and help shape future rare disease care 🤝 🔗 https://loom.ly/pZztyoc #ECRD2026 #EURORDIS #RareDiseases
A diverse group of people engaged in conversations during a networking event in a modern indoor space.
#ECRD2026 is less than 6 months away! On 3–4 June (Prague + online), stakeholders will advance concrete policy solutions for people living with a rare disease. Key highlight: a #EuropeanBlueprint for Rare Diseases.
Learn more: https://go.eurordis.org/ECRD2026
Two women engaged in a focused discussion at a round table during the 13th European Conference on Rare Diseases in Prague. Overlapping text 'be part of the conversation'
What makes #ECRD2026 unique?
This year, ECRD will mark a key milestone in the inclusive, multi-stakeholder process towards a European Blueprint for Rare Diseases. 👀
Be part of the conversation. Register now: https://go.eurordis.org/register-bsky
Researchers discuss scientific posters at a conference with large windows in the background and attendees engaging in presentations.
Looking to share your work with Europe’s rare disease community?
#ECRD2026 invites researchers, patient reps, clinicians & policymakers to submit research posters.
Selected posters get a virtual exhibition feature + 20% registration discount.
👉Submit now: https://go.eurordis.org/ecrd-postersbluesky
🌍 Save the date for #ECRD2026, a leading patient-led policy event on rare diseases | 3–4 June | Prague & online
This year’s theme: “Rare Diseases in a changing and competitive Europe: shaping policies to address the unmet needs of people living with rare diseases”
🔗 Info: https://loom.ly/kNumRPA
📣Registrations are open for #ECRD2026, taking place on 3–4 June 2026 in Prague and online. Join the rare disease community in discussions shaping future priorities for rare diseases in Europe.
📝Secure your place with early-bird registration: eurobloodnet.eu/news/698/reg...
#ERNs #ERNeu
Attendees at a conference examining scientific posters in a bright, modern venue with large windows and city views. Overlapping text: turn your work into dialogue
If you had 300 words to capture the impact of your work in rare diseases, what would you say?
Poster abstracts at #ECRD2026 offer a structured space to share evidence, insights and lived experience.
🎟️ Accepted representing authors receive a 20% discount
👉https://go.eurordis.org/ecrd-posters-bluesky
During last week’s High-Level Meeting, we spoke to co-host MEP Andriukaitis to explore what he hopes will be the outcomes of the conference and its resulting declaration.
For EURORDIS, the next step is clear. 👀 #ECRD2026
👉 Read more: https://go.eurordis.org/KSwE1D
Two people talk in front of research posters at a conference. Text on the image promotes the ECRD 2026 hybrid event, 3–4 June 2026, in Prague and online, with the message: “Working on something that could impact rare disease policy?”
We want to hear about it! 👂
At #ECRD2026, posters are more than summaries — they drive evidence exchange across rare disease research, care and policy.
Submit by 6 March 2026:
👉https://go.eurordis.org/Submityourposter
🎟️ Accepted representing authors receive a 20% registration discount
Two professionals engaged in conversation at a conference with a banner announcing registrations now open for the 13th European Conference in Prague and online, June 2026.
🚨 Registrations are OPEN for #ECRD2026
2026 marks a defining moment for rare disease policy in Europe. Five years after #Rare2030 and midway to the WHO 2028 target, #ECRD gathers the community to support the co-development of an EU Action Plan.
👉 Register now: https://www.rare-diseases.eu/register/
"Why share your work?" Feature a banner with an illustration of a man running on one of 6 tracks and a footer that says "ECRD, Hybrid, 3&4 June 2026, Prague & Online." Image depicts attendees at a conference focused on rare diseases, listening and taking notes during a session on paper and a laptop.
When Europe’s rare disease community convenes, knowledge is strengthened, perspectives are broadened, and meaningful policy dialogue emerges. This is the purpose of #ECRD2026.
Share your knowledge 👉 submit your poster abstract now: https://go.eurordis.org/Submityourposter
Proud to partner with @eurordis for #ECRD2026, Europe’s largest patient-led rare disease event. Join us in Prague & online, 3–4 June 2026. Poster abstracts now open! 👉 www.rare-diseases.eu/posters
💡 Your work can make an impact.
Share your research, advocacy, or innovation at #ECRD2026 — Europe’s leading rare disease policy event.
👉 Submit your poster abstract: https://go.eurordis.org/Submityourposter
#RareDiseases #PosterCall #Research
Two conference attendees discuss scientific posters displayed on boards in a bright, modern venue during a research event. ECRD 2026
💡 Your work can make an impact.
Share your research, advocacy, or innovation at #ECRD2026 — Europe’s leading rare disease policy event.
👉 Submit your poster: https://go.eurordis.org/Submityourposter
#RareDiseases #PosterCall #Research #EURORDIS
